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  • 1.
    Xu, Wenqian
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Taghizadeh Larsson, Annika
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Motel, Andreas
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Media Representation of Life Stages: Analysis of Photographs Posted on Norrköping Municipal Facebook Accounts2019Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Aim: It has been found by researchers that older adults are statistically underrepresented and associated with negative stereotypes in the mass media. Older adults are generally viewed as incompetent from stereotyped media content, which may make them socially excluded from a set of opportunities and resources. The media portrayals are conceived as value-expressive and constructing the image of older adults and ageing. The purpose of this study is to investigate how Norrköping municipality portrays citizens at different life stages in social media with a special emphasis on the use of age stereotypes in the photos used.

    Method: The material consists of the photos collected from 32 Facebook accounts produced by municipal bodies during the entire year of 2018. The analysis is based on a categorization of various features of the photos in order to statistically describe the relation between signs, activities and contexts associated with distinct life stages. Further, the meaning of frequently-used symbols in the photographs is analysed.

    Result: The study concludes that old age persons are numerically underrepresented in the material. A number of signs and activities in the photographs, and contexts beyond the photographs, that stereotypically corresponded to five distinct life stages (infancy, childhood, adolescence, adulthood and old age) are identified. Old age is repetitively portrayed in the context of coffee drinking and foot bathing on Norrköping municipality’s Facebook page, while adolescence is depicted with practical training at high schools to an excessive degree. Besides, the result suggests that certain minorities of citizens did not show up in the municipal social media: people with disabilities, migrants, people with dementia and on forth.

    Conclusion: The municipality communicates stereotypical images of life stages through associating with specific contexts in the photographic coverage. Therefore, communication professionals need to be aware of the stereotypical construction of life stages in the media.

  • 2.
    Odzakovic, Elzana
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten.
    Hyden, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Medicinska fakulteten.
    Festin, Karin
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för samhällsmedicin. Linköpings universitet, Medicinska fakulteten.
    Kullberg, Agneta
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för samhällsmedicin. Linköpings universitet, Medicinska fakulteten.
    People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study2019Inngår i: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 47, nr 2, s. 229-239Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AIMS: This study aims to examine what types of home care services and housing are granted to people with a dementia diagnosis and how these types are associated with socio-demographic factors (sex, age, marital status, native or foreign born, and regional area).

    METHODS: A cross-sectional study of all people diagnosed with dementia in three Swedish counties was conducted from the medical records in 2012. Logistic regression analysis was carried out to investigate associations between home care services and housing and socio-demographic variables.

    RESULTS: In total, 17,405 people had a dementia diagnosis, and the majority were women, aged 80+ years, and unmarried. Some 72% were living in ordinary housing and 28% lived in special housing. Of those who lived in ordinary housing, 50% did not receive any home care service. Not receiving any type of home care services was less common for older people and was also associated with being married and living in rural municipalities. The most common home care services granted were home help and personal care. Special housing was more common for older people, unmarried persons, and those living in rural municipalities.

    CONCLUSIONS: Most people with a dementia diagnosis were living in ordinary housing, and, surprisingly, half of those did not receive any type of home care service. This knowledge is essential for making the living conditions and needs of people living with dementia more visible and to provide good home care services for people with dementia and their families.

  • 3.
    Hydén, Lars-Christer
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Samuelsson, Christina
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för Logopedi, Audiologi och Otorhinolaryngologi. Linköpings universitet, Medicinska fakulteten.
    So they are not alive?2019Inngår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 18, nr 7-8, s. 2662-2678Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In some conversations involving persons with Alzheimers disease, the participants may have to deal with the difficulty that they do not share a common ground in terms of not only who is alive or dead, but even more, who could possibly be alive. It is as if the participants face a reality disjunction. There are very few empirical studies of this difficulty in conversations involving persons with Alzheimers disease or other kinds of dementia diagnoses. Often studies of confabulation have a focus on the behavior and experience of the healthy participants, but rarely on the interaction and the collaborative contributions made by the person with dementia. In the present article, we discuss various strategies used by all participants in an everyday conversation. The material consists of an hour long everyday conversation between a woman with Alzheimers disease and two healthy participants (relatives). This conversation is analyzed by looking at the organization of the interaction with an emphasis on how the participants deal with instances of reality disjunctions. The result from the analysis demonstrates that both the healthy participants as well as the person with dementia together skillfully avoid the face threats posed by reality disjunctive contributions by not pursuing argumentative lines that in the end might jeopardize both the collaborative and the personal relations.

  • 4.
    Majlesi, Ali Reza
    et al.
    Stockholm Univ, Sweden.
    Ekström, Anna
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för Logopedi, Audiologi och Otorhinolaryngologi. Linköpings universitet, Medicinska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Spatiotemporal arrangement of objects in activities with people with dementia2019Inngår i: Logopedics, Phoniatrics, Vocology, ISSN 1401-5439, E-ISSN 1651-2022, Vol. 44, nr 1, s. 31-40Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose: This study shows how the spatial organization of objects and their use may impact locally produced order of activities and how that can affect the accomplishment of everyday activities by people with dementia. Methods: The study is based on ethnomethodological conversation analysis of eight and a half hours of video recordings in three different settings. Eighteen sequences of activities identified were multimodally transcribed and analyzed. Results: The availability or non-availability of objects, their arrangements and manipulations play a crucial role in the management of the order of activities and may present both challenges and facilitations for people with dementia. The organizations of objects directly influence the order of the activity, and the objects potential use may afford actions that deviate from the trajectory and the order of the main activity. Conclusions: One of the significant uses of objects is how they contribute to the perceptual field where attention is organized for building actions. Participants in activities modify the perceptual field by manipulating objects in the material surrounds in response to the relevancies resulting from the unfolding activities. Therefore, spatial contingency is significant in the accomplishment of activities by people with dementia. As it is not self-evident that verbal instructions may result in the instructed actions accordingly, the rearrangement of objects and making them timely available to people with dementia may increase the possibilities of keeping the order of the activities intact.

  • 5.
    Österholm, Johannes H
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen för arbetsterapi. Linköpings universitet, Medicinska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Autobiographical occasions in assessment meetings involving persons with dementia2018Inngår i: Qualitative Social Work, ISSN 1473-3250, E-ISSN 1741-3117, Vol. 17, nr 1, s. 41-64Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    It has often been argued that identities have a strong connection to stories and storytelling and thus that life stories should be used to individualize care for people with dementia. A problem with this view is that storytellers are seen as individuals, freely reflecting on, composing, and telling life stories. This view becomes especially problematic when persons with dementia tell stories in institutional contexts where certain information is requested and necessary for decision-making. The aim of this study is to investigate how autobiographical stories are used and what functions they have in assessment meetings involving persons with dementia. Fifteen assessment meetings were audio-recorded and transcribed. Narratives were extracted and analyzed by coding who the narrator or narrators were, what the narrator(s) accomplished by telling this story, and what the consequences were for the ongoing meeting. It was found that all interlocutors told stories about the person with dementia. These stories were found to have three functions: (1) to justify why care services were needed; (2) to describe experiences about previous care; and (3) to provide a good working climate. Thus, not all autobiographical stories are the persons story. For care managers in their everyday work it is important to be aware of this and not only be satisfied with a story that suits the organizations needs. Furthermore, stories told in assessment meetings often positioned the person as dependent on others, which could undermine the identity and sense of self of the person with dementia.

  • 6.
    Kiwi, Mahin
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Antelius, Eleonor
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Deciding upon Transition to Residential Care for Persons Living with Dementia: why Do Iranian Family Caregivers Living in Sweden Cease Caregiving at Home?2018Inngår i: Journal of Cross-Cultural Gerontology, ISSN 0169-3816, E-ISSN 1573-0719, Vol. 33, nr 1, s. 21-42Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Previous research has shown how filial piety is strong among people of Iranian background and that traditional Iranian culture result in most families’ preferring to care for their elderly (and sick) family members at home. While acknowledging this, this article highlights what living in diaspora could mean in terms of cultural adaption and changing family values. By interviewing people with Iranian background living in Sweden (n = 20), whom all have been former primary caregivers to a relative living with dementia, we are able to show how the decision to cease caregiving at home is taken, and what underlying factors form the basis for such decision. Results indicate that although the existence of a Persian profiled dementia care facility is crucial in the making of the decision, it is the feeling of ‘sheer exhaustion’ that is the main factor for ceasing care at home. And, we argue, the ability to make such a decision based upon ‘being too tired’ must be understood in relation to transition processes and changes in lifestyle having an affect upon cultural values in relation to filial piety. Because, at the same time the changes on cultural values might not change accordingly among the elderly who are the ones moving into residential care, resulting in them quite often being left out of the actual decision.

  • 7.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Dementia, Embodied Memories, and the Self2018Inngår i: Journal of consciousness studies, ISSN 1355-8250, E-ISSN 2051-2201, Vol. 25, nr 7-8, s. 225-241Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Researchers in cognition and linguistics have in the last couple of decades argued that more complex memories of the kind often called episodic memories are embodied and are multimodal. This is something that is interesting in the field of persons living with, for example, neurodegenerative dementia. In this article the interest is on how bodily gestures can be used to make sense of episodic memories that cannot be verbally communicated by persons with dementia. Empirical examples are discussed with a focus on the use of bodily gestures and how the stories are connected to identities and a sense of self. A key conclusion is that embodied resources like bodily gestures can be used to construct and communicate a sense of self. It further indicates that modal aspects of memories are central in the communicative sense-making process. Finally, the examples demonstrate how embodied episodic memories can be used to present and sustain a sense of self

    Fulltekst tilgjengelig fra 2020-01-01 11:02
  • 8.
    Harding, Andrew J. E.
    et al.
    Univ Lancaster, England.
    Morbey, Hazel
    Univ Lancaster, England.
    Ahmed, Faraz
    Univ Lancaster, England.
    Opdebeeck, Carol
    Manchester Metropolitan Univ, England.
    Wang, Ying-Ying
    Univ Lancaster, England.
    Williamson, Paula
    Univ Liverpool, England.
    Swarbrick, Caroline
    Univ Manchester, England.
    Leroi, Iracema
    Univ Manchester, England.
    Challis, David
    Univ Manchester, England.
    Davies, Linda
    Univ Manchester, England.
    Reeves, David
    Univ Manchester, England.
    Holland, Fiona
    Univ Manchester, England.
    Hann, Mark
    Univ Manchester, England.
    Hellström, Ingrid
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen för omvårdnad. Linköpings universitet, Medicinska fakulteten. Region Östergötland, Närsjukvården i östra Östergötland.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Burns, Alistair
    Univ Manchester, England.
    Keady, John
    Univ Manchester, England; Greater Manchester Mental Hlth NHS Fdn Trust, England.
    Reilly, Siobhan
    Univ Lancaster, England.
    Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions2018Inngår i: Trials, ISSN 1745-6215, E-ISSN 1745-6215, Vol. 19, artikkel-id 247Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: The key aim of the study is to establish an agreed standardised core outcome set (COS) for use when evaluating non-pharmacological health and social care interventions for people living at home with dementia. Methods/design: Drawing on the guidance and approaches of the Core Outcome Measures in Effectiveness Trials (COMET), this study uses a four-phase mixed-methods design: 1 Focus groups and interviews with key stakeholder groups (people living with dementia, care partners, relevant health and social care professionals, researchers and policymakers) and a review of the literature will be undertaken to build a long list of outcomes. 2 Two rounds of Delphi surveys will be used with key stakeholder groups. Statements for the Delphi surveys and participation processes will be developed and informed through substantial member involvement with people living with dementia and care partners. A consensus meeting will be convened with key participant groups to discuss the key findings and finalise the COS. 3 A systematic literature review will be undertaken to assess the properties of tools and instruments to assess components of the COS. Measurement properties, validity and reliability will be assessed using the Consensus-based Standards for the Selection of Health Measurement (COSMIN) and COMET guidance. 4 A stated preference survey will elicit the preferences of key stakeholders for the outcomes identified as important to measure in the COS. Discussion: To the best of our knowledge, this study is the first to use a modified Delphi process to involve people living with dementia as a participant group. Though the study is confined to collecting data in the United Kingdom, use of the COS by researchers will enhance the comparability of studies evaluating non-pharmacological and community-based interventions.

  • 9.
    Myrberg, Karin
    et al.
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för Logopedi, Audiologi och Otorhinolaryngologi. Linköpings universitet, Medicinska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Samuelsson, Christina
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för Logopedi, Audiologi och Otorhinolaryngologi. Linköpings universitet, Medicinska fakulteten.
    Different approaches in aphasia assessments: a comparison between test and everyday conversations2018Inngår i: Aphasiology, ISSN 0268-7038, E-ISSN 1464-5041, Vol. 32, nr 4, s. 417-435Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: When it comes to aphasia assessments, many speech and language pathologists (SLPs) rely heavily on norm-referenced language tests, even though they are aware that certain important language skills can only be evaluated by analysis of conversational discourse. The formalized aphasia test situation is a typical example of institutional interaction, which differs in systematic ways from everyday conversations. This article examines conversations between persons with aphasia (PWAs) and SLPs in the two different contexts, a topic where previous research is limited. Aims: The aim is to compare the interactions between PWAs and SLPs in test conversations and in more everyday-like conversations and to relate the interactional data to the participants performance on the aphasia test battery. Methods amp; Procedures: Ten PWAs and three SLPs participated in the study. Each PWA participated in two conversations with an SLP, a test conversation, while performing tasks targeting the ability to produce sentences and narratives from an aphasia test battery, and a more everyday-like conversation. The conversations were audio and video recorded and thereafter transcribed. Three main observations considered to be important mechanisms for interaction organization were identified and calculated in the transcriptions. The test results were summarized and analyzed. Outcomes amp; results: The results demonstrated that there were a larger number of turns produced by the PWAs in the everyday conversations compared to the test conversations. Furthermore, there were more communicative initiatives and nonverbal contributions in the everyday conversations. The number of repairs initiated by the PWAs were equivalent, but looking at repair characteristics, it was found that repairs resolved within the same turn were found in the test conversations while repairs stretching over several turns were more frequent in the everyday conversations. Conclusions: The results of the present study demonstrated differences of the interaction between PWAs and SLPs in test conversations and in more everyday-like conversations. Furthermore, there seemed to be no obvious relationship between the participants actual test scores on the aphasia test battery and aspects of conversation that can be related to being a competent speaker.

  • 10.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Narrative Matters in Medical Contexts across Disciplines2018Inngår i: Biography, ISSN 0162-4962, E-ISSN 1529-1456, Vol. 41, nr 1, s. 152-154Artikkel, omtale (Annet vitenskapelig)
    Abstract [en]

    n/a

  • 11.
    Pettersson, Monica E.
    et al.
    Institute of Health and Care Sciences and Centre for Person-Centred Care, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; The Vascular Department, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Öhlén, Joakim
    Institute of Health and Care Sciences and Centre for Person-Centred Care, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.
    Friberg, Febe
    Department of Health studies, Faculty of Social sciences, University of Stavanger, Stavanger, Norway; Centre for Person-Centred Care, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa. Linköpings universitet, Medicinska fakulteten.
    Wallengren, Catarina
    Institute of Health and Care Sciences and Centre for Person-Centred Care, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.
    Sarenmalm, Elisabeth Kenne
    Research and Development, Skaraborg Hospital, Skövde and Institute of Health and Care Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.
    Carlsson, Eva
    Institute of Health and Care Sciences and Centre for Person-Centred Care, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; The Colorectal Unit, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Prepared for surgery: Communication in nurses preoperative consultations with patients undergoing surgery for colorectal cancer after a person-centred intervention2018Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, nr 13-14, s. 2904-2916Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aims and objectives

    To describe preoperative communication after a person‐centred intervention in nurses' consultations with patients undergoing surgery for colorectal cancer.

    Background

    Patients all over the world scheduled for surgery are referred to preoperative consultations with healthcare professionals. The goal is to assess the risk of perioperative complications, improving quality of care and enabling patients to be prepared for surgery and recovery. A person‐centred intervention was developed, which consisted of an interactive written patient education material and person‐centred communication.

    Design

    An explorative quantitative and qualitative study based on 18 audio‐taped transcriptions.

    Methods

    Eighteen patients preoperative nursing consultations at three Swedish hospitals were analysed quantitatively regarding structure: words, time, phases, questions, discursive space, and qualitatively: topics and how the person‐centred communication appeared in the consultations.

    Results

    The median time for consultations was 27 min (range 13–64 min). The nurses used two‐thirds of the discursive space in the consultations with the patients. The patient education material was used as a support to structure the consultation and discuss sensitive and difficult issues. Seven topics were discussed during the consultation. Two different approaches to communication were identified: Talking with the patient versus Talking to the patient. Talking with the patient (seen as person‐centred communication) was defined as: listening to the narrative and confirming each other, raising difficult topics, seeing each other as persons, building on strengths and resources, preparing for surgery and asking open questions.

    Conclusion

    Ways of communicating influence how the preoperative consultation develops. Talking with the patient could be seen as person‐centred communication in the preoperative care, and when using this approach, the intervention purpose of person‐centred communication was met.

    Relevance to clinical practice

    Education in person‐centred communication is important for nurses to improve their skills in performing preoperative consultations.

  • 12.
    Samuelsson, Christina
    et al.
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för Logopedi, Audiologi och Otorhinolaryngologi. Linköpings universitet, Medicinska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande. Linköpings universitet, Filosofiska fakulteten.
    Collaboration, trouble and repair in multiparty interactions involving couples with dementia or aphasia2017Inngår i: International Journal of Speech-Language Pathology, ISSN 1754-9507, E-ISSN 1754-9515, Vol. 19, nr 5, s. 454-464Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose: The aim of the present study was to identify problems with communication with persons with aphasia and persons with dementia in a collaborative interview setting with their significant others. In particular, to compare interactional practices used in order to resolve problems caused by specific symptoms. Method: Five persons with aphasia and five persons with dementia and their spouses participated in the study. Interviews were carried out couple by couple, and the interviews had a task-oriented character. The interviews were video and audio recorded. All interviews were transcribed. From the transcriptions categorisations according to previous literature were made. Result: The results demonstrated that repair sequences were frequent in interaction involving people with aphasia (PWA), and even more so in interaction involving persons with dementia (PWD). In general, it was the PWA/PWD that initiated the repair sequence more often than the spouse, thus keeping the general rule of a preference for self-initiated repair compared to other-initiated repair. Conclusion: The active involvement of the conversational partners in trouble solving sequences in interaction with PWA/PWD demonstrated in the present study indicates that the interactional style of the conversational partner to PWA/PWD important. This implies that conversation partner training programmes would be useful both for PWA and for PWD.

  • 13.
    Hydén, Lars-Christer
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Forsblad, Mattias
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Collaborative Remembering in Dementia: A Focus on Joint Activities2017Inngår i: Collaborative Remembering: Theories, Research, and Applications / [ed] Michelle L. Meade, Celia B. Harris, Penny Van Bergen, John Sutton, and Amanda J. Barnier, Oxford University Press, 2017, s. 436-455Kapittel i bok, del av antologi (Fagfellevurdert)
    Abstract [en]

    In this chapter we consider collaborative remembering and joint activates in everyday life in the case of people living with dementia.

    First, we review past research of practices that scaffolds the participation of persons with dementia in everyday chores under different stages of dementia diseases. We do so by suggesting three analytical types of scaffolding: when the scaffolding practices (i) frame the activity, (ii) guide actions, or (iii) are part of repair activities. Second, we review two aspects of collaborative remembering that are especially important in the case of dementia: training of scaffolding practices, and the sustaining and presentation of identities through collaborative storytelling. Finally, theoretical and methodological tendencies of the research field are summarized and future research needs are formulated.

  • 14.
    Björkman, Berit
    et al.
    Department of Physiology and Pharmacology, Section of Anesthesiology and Intensive Care, Karolinska Institutet, Stockholm, Sweden.
    Lund, Iréne
    Department of Physiology and Pharmacology, Karolinska Institutet, Stockholm, Sweden.
    Arnér, Staffan
    Department of Physiology and Pharmacology, Section of Anesthesiology and Intensive Care, Karolinska Institutet, Stockholm, Sweden.
    Hyden, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa. Linköpings universitet, Medicinska fakulteten.
    The meaning and consequences of amputation and mastectomy from the perspective of pain and suffering2017Inngår i: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 14, nr 1, s. 100-107Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background

    The concepts ‘pain’ and ‘suffering’ are frequently treated as synonymous. However, they are clearly distinct phenomena. Phantom phenomena including pain and sensory disturbances are still recognized as long-lasting problems after limb amputation and after mastectomy. The complex nature of phantom phenomena makes the interpretation of its results ambiguous, regarding the prevalence of pain, sensory disturbances and the accompanying suffering. There is clinical experience that suffering is a great burden for the individual but there is a lack of systematic studies of patients’ own evaluations of the suffering caused by their phantom phenomena.

    Objectives

    The overall aim of this study was to identify and describe patients’ suffering related to, and as a part, of their post-amputation situation.

    Methods

    The present study constitutes a part of a prospective, two-year follow up project investigating interviews of 28 men and women in different ages and who have undergone a limb amputation or mastectomy. The reason for amputation or mastectomy varied among the patients and included vascular diseases, cancer (sarcoma and breast-cancer) and trauma. Our ambition was to extract as much variations as possible in different, individualized aspects of the actual pain and suffering producing situation. The participants were, here, invited to open-ended, narrative-oriented interviews one month after the surgery. The interviews were transcribed verbatim and analyzed within qualitative methodology: thematic content analysis.

    Results

    Twenty-two of 28 interviewees experienced phantom pain and phantom sensations. The two surgical processes amputation and mastectomy meant for a majority of the interviewees a critical event with threatening consequences for everyday life such as loss of function and personal integrity. Nine interviewees felt even stigmatized as a result of their lost body part. Numerous inter-related factors following the amputation/mastectomy, which can inflict severe suffering on the amputee, were uncovered. The context in which the interviewees were informed about the decision to amputate proved to be one such critical and important factor.

    Conclusion

    To understand potential suffering in relation to phantom phenomena, it will never be enough merely to have knowledge of the underlying physiological or neurological mechanisms and/or the intensity of phantom pain and phantom sensations. Rather, it is necessary to find out how the loss of the body part and its everyday consequences are experienced by patients.

    Implications

    It is important to create time for real dialogue with the patients both during pre-operative preparation and post-operative rehabilitation in order to clarify and verbalize elements that constitute the patients individual suffering. Hopefully this strategy can alleviate future chronic pain problems, severe psycho-social distress and suffering. Such an approach ought to have impact also for perceived suffering after other types of surgery or different invasive treatments.

  • 15.
    Pettersson, Monica E.
    et al.
    University of Gothenburg, Sweden; University of Gothenburg, Sweden; Sahlgrenska University Hospital Sahlgrenska, Sweden.
    Ohlen, Joakim
    University of Gothenburg, Sweden; University of Gothenburg, Sweden; Ersta Skondal University of Coll, Sweden; Ersta Hospital, Sweden.
    Friberg, Febe
    University of Gothenburg, Sweden; University of Gothenburg, Sweden; University of Stavanger, Norway.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Avdelningen Åldrande och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Carlsson, Eva
    University of Gothenburg, Sweden; University of Gothenburg, Sweden; Sahlgrens University Hospital, Sweden.
    Topics and structure in preoperative nursing consultations with patients undergoing colorectal cancer surgery2017Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 31, nr 4, s. 674-686Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BackgroundThe preoperative education, which occurs in preoperative patient consultations, is an important part of the surgical nurses profession. These consultations may be the building blocks of a partnership that facilitates communication between patient and nurse. AimThe aim of the study was to describe topics and structure and documentation in preoperative nursing consultations with patients undergoing surgery for colorectal cancer. MethodThe study was based on analysis of consultations between seven patients and nurses at a Swedish university hospital. The preplanned preoperative consultations were audio-recorded and transcribed verbatim. The structure of the consultations was described in terms of phases and the text was analysed according to a manifest content analysis ResultsThe consultations were structured on an agenda that was used variously and communicating different topics in an equally varied manner. Seven main topics were found: Health status, Preparation before surgery, Discovery, Tumour, Operation, Symptoms and Recovery after surgery. The topic structure disclosed a high number of subtopics. The main topics Discovery, Tumour and Symptoms were only raised by patients and occupied only 11% of the discursive space. Documentation was sparse and included mainly task-oriented procedures rather than patients worries and concerns. ConclusionThere was no clear structure regarding preoperative consultation purpose and content. Using closed questions instead of open is a hindrance of developing a dialogue and thus patient participation. Preoperative consultation practice needs to be strengthened to include explicit communication of the consultations purpose and agenda, with nurses actively discussing and responding to patients concerns and sensitive issues. The results of the study facilitate the development of methods and structure to support person-centred communication where the patient is given space to get help with the difficult issues he/she may have when undergoing surgery.

  • 16.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande. Linköpings universitet, Filosofiska fakulteten.
    Att leva med demenssjukdom2016Inngår i: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, s. 17-39Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 17.
    Österholm, Johannes H
    et al.
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Hydén, Lars-Christer
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Citizenship as practice: Handling communication problems in encounters between persons with dementia and social workers2016Inngår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 15, nr 6, s. 1457-1473Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The overall aim of the study was to investigate if and how persons with dementia were able to take part in negotiations for formal support, as cases of citizenship as practice. The transcripts used for analysis were from 11 assessment meetings conducted in Sweden, in which the formal applicant was a person with dementia. The findings suggest that the actual participation of persons with dementia in assessment meetings varies. Communication problems were found in the meetings to different degrees and were dealt with differently and with various consequences. For those persons with dementia contributing at the same levels as the other participants, there was an attempt at mutual understanding. For those making fewer contributions, the other interlocutors took over the initiative and thus affected the practice of citizenship by persons with dementia in a negative way. The practice of citizenship is situation based and varies depending on all participants. When the person with dementia is able to participate in the conversation, social workers can facilitate for them to overcome communication problems by giving them more time and signaling acceptance. If the person with dementia has great problems in participating, the other participants can find different strategies to at least involve her or him in the conversation

  • 18.
    Henriksen, Oystein
    et al.
    University of Nordland, Norway.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande. Linköpings universitet, Filosofiska fakulteten.
    Communicating parent community at prevention meetings in Norwegian schools2016Inngår i: Qualitative Social Work, ISSN 1473-3250, E-ISSN 1741-3117, Vol. 15, nr 1, s. 55-69Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Parental cooperation has increasingly become a key component in alcohol prevention efforts in schools. Many prevention programs actively utilize parent participation in order to strengthen the sense of community between parents, develop shared attitudes toward alcohol use, delay the beginning of alcohol use for adolescents, and limit alcohol usage by young people. Strengthening community is thus a core goal in prevention activities. This article analyses how community is developed and expressed in discussions during formal school meetings involving parents. The data used in the analysis consists of audio recordings of parent meetings in alcohol prevention programs for eighth-grade students at four separate schools in different regions of Norway. The analysis focuses on how personal pronouns are used in the conversations to signal inclusion or exclusion from the community. The article also discusses how different discursive expressions of community are used by meeting participants to position themselves as responsible parents, and the relevance of these meetings for social work.

  • 19.
    Hydén, Lars-Christer
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Hälsouniversitetet. Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande. Linköpings universitet, Filosofiska fakulteten.
    Nilsson, Elin
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Socialt arbete. Linköpings universitet, Filosofiska fakulteten.
    Couples with dementia: Positioning the ‘we’ 2015Inngår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 14, nr 6, s. 716-733Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this article is to investigate how spouses in couples with dementia position themselves in relation to each other by analysing their use of pronouns, especially the we. The study uses joint interviews with 11 couples. Based on a quantitative analysis of pronoun use, it is argued that the pronoun we is used by all the spouses; however, it is used less frequently by the spouses with dementia in comparison with healthy spouses. A qualitative analysis of the use of the pronoun we shows that the spouses position, experience and consider themselves as a couple and that they position and experience themselves as individuals in relation to the couple. One of the challenges for couples with dementia is to be able to retain a we in face of the progression of the dementia disease. By positioning themselves in various ways, the spouses establish and negotiate quite a complex and emotionally charged web of relationships. 

  • 20.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Cutting Brussels sprouts: Collaboration involving persons with dementia2014Inngår i: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 29, s. 115-123Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    How people with dementia collaborate with other people is an area in need of more research and conceptualizations. Collaboration introduces a number of new possibilities and demands concerning cognitive and linguistic abilities and it is suggested that a theoretical framework that emphasize that cognitive resources are not exclusively individual, but are part of cognitive and communicative context. In this article focus is on joint activities and their collaborative organization is analyzed using an example involving persons with dementia working together with staff preparing a meal. The analysis shows that persons with dementia are able to collaborate in fairly advanced activities if they are supported in such a way that they can make use of the cognitive and linguistic resources of others, in particular cognitive functions having to do with planning and execution of actions. The organization of artifacts like kitchen tools can function as an external memory support. The results support a theoretical framework that help to understand what people can do together rather than focus on individual abilities. The results also indicate that is possible to learn how to organize collaboration involving persons with dementia by understanding how other persons abilities as well as artifacts can be used as external resources for support of cognitive and linguistic abilities. 

  • 21.
    Hallqvist, Anders
    et al.
    Linköpings universitet, Institutionen för beteendevetenskap och lärande, Pedagogik och vuxnas lärande. Linköpings universitet, Utbildningsvetenskap. Linköpings universitet, HELIX Vinn Excellence Centre. Linköpings universitet, Filosofiska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande. Linköpings universitet, Filosofiska fakulteten.
    End of journey, end of story? A longitudinal study of involuntary work transitions among laid-off workers2014Inngår i: Studies in Continuing Education, ISSN 0158-037X, E-ISSN 1470-126X, Vol. 36, nr 2, s. 201-217Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The purpose of this study is to increase knowledge regarding involuntary work transitions among laid-off workers. It is part of an ongoing cooperation with two outplacement agencies enrolling white-collar workers. The particular arrangements, which are based on collective agreements, include relatively generous support, both economically and regarding the educational and counselling arrangements offered. A narrative research approach is used and the analysis is based on interviews with 15 people, conducted on two occasions with about a year in between. Conceptualizing the transition as a biographical learning process, the findings point out a great variety within and between cases. While the basic distinction is drawn between people who have changed their status and those who have not, a number of rhetorical varieties are identified, pointing to different modes of biographical learning. The originality of the paper lies in its narrative approach and the particular conceptual framework showing that biographical learning is a vital part of enforced work transitions.

  • 22.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    How to do things with others: joint activities involving persons with Alzheimer's disease2014Inngår i: Beyond loss: dementia, identity, personhood / [ed] Lars-Christer Hydén, Hilde Lindemann, Jens Brockmeier, New York: Oxford University Press, 2014, 1, s. 137-154Kapittel i bok, del av antologi (Fagfellevurdert)
  • 23.
    Squire, Corinne
    et al.
    University of East London, UK.
    Davis, Mark
    Monash University, Australia.
    Esin, Cigdem
    University of East London, UK.
    Andrews, Molly
    University of East London, UK.
    Harrison, Barbara
    University of East London, UK.
    Hydén, Lars-Christer
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Hydén, Margareta
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Socialt arbete. Linköpings universitet, Filosofiska fakulteten.
    What is Narrative Research?2014Bok (Fagfellevurdert)
    Abstract [en]

    Narrative research has become a catchword in the social sciences today, promising new fields of inquiry and creative solutions to persistent problems.

    This book brings together ideas about narrative from a variety of contexts across the social sciences and synthesizes understandings of the field. Rather than focusing on theory, it examines how narrative research is conducted and applied. It operates as a practical introductory guide, basic enough for first-time researchers, but also as a window onto the more complex questions and difficulties that all researchers in this area face.

    The authors guide readers through current debates about how to obtain and analyse narrative data, about the nature of narrative, the place of the researcher, the limits of researcher interpretations, and the significance of narrative work in applied and in broader political contexts.

  • 24.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Bodies, embodiment and stories2013Inngår i: Doing Narrative Research / [ed] Molly Andrews, Corinne Squire, Maria Tamboukou, London: Sage Publications, 2013, 2, s. 126-141Kapittel i bok, del av antologi (Annet vitenskapelig)
    Abstract [en]

    Written by an international team of experts in the field, the second edition of this popular text considers both the theoretical underpinnings and practical applications of narrative research. The authors take the reader from initial decisions about forms of narrative research, through more complex issues of reflexivity, interpretation and the research context. Existing chapters have been updated to reflect changes in the literature and new chapters from eminent narrative scholars in Europe, Australia and the United States have been added on a variety of topics including narratives and embodiment, visual narratives, narratives and storyworlds, new media narratives and Deleuzian perspectives in narrative research. 

  • 25.
    Veetnisha Gunnarsson, Nina
    et al.
    Jönköping University, Sweden.
    Hemmingsson, Helena
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Hälsa, Aktivitet, Vård (HAV). Linköpings universitet, Hälsouniversitetet.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Borell, Lena
    Karolinska Institutet, Stockholm, Sweden.
    Managing Family Relations and Controlling Information While Supporting an Allergic Child2013Inngår i: Qualitative Sociology Review, ISSN 1733-8077, E-ISSN 1733-8077, Vol. 9, nr 3, s. 205-219Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This paper explores parental (particularly mothers’) support in the daily lives of children with allergies in a Swedish context. An ordinary life is established by making comparisons to what other children without allergies presumably can do (and eat). Although the parents’ goal is to support their child in managing allergies, neither their practical nor their interactional strategies work in a clear-cut direction to promote the child’s ordinary life and identity. On the contrary, parents’ accounts convey that they function just as much against an everyday life and the child’s identity. When managing family relations, parents expect immediate family members (specifically grandparents)to understand and accommodate the child’s needs.

    However, claims of family responsibility are made through moral tales about lack of support from “generalized others.” Family responsibility is also downplayed in parents’ accounts as demands of support may put parents’ moral self at risk. The strategy of information control in certain situations and (non-family) relations used to keep the child safe may risk stigmatizing the child, alternatively, making the child into a social threat. One of the conclusions that could be drawn from this study is that claims of family support may be contradictory to other cultural principles that ascribe responsibilities between families and individuals, as the principles of individual freedom and autonomy.

  • 26.
    Gunnarsson, Nina
    et al.
    Jönköping University, Sweden.
    Hemmingsson, Helena
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, Hälsa, Aktivitet, Vård (HAV). Linköpings universitet, Hälsouniversitetet.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Mothers’ accounts of healthcare encounters: Negotiating culpability and fulfilling the active mother role2013Inngår i: Discourse & Society, ISSN 0957-9265, E-ISSN 1460-3624, Vol. 24, nr 4, s. 1-15Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article explores mothers’ accounts of initial interactions and encounters with healthcare professionals and the outcomes where questions about their children’s problems are concerned. A case-based storyline was reconstructed as part of the analysis, focusing on

    when and how mothers claimed to be responsible parents. The outcomes of these encounters were presented by the mothers in this study as a drawn-out process, with disagreement between mothers and healthcare providers, resulting in different performances of moral agency. Some mothers portrayed themselves as dependent on healthcare expertise and made moral claims by attributing and deflecting blame, negotiating back and forth about their own and the healthcare professionals’ culpability, restoring moral agency. Other mothers did not generally defend or justify their actions or place blame, but appealed instead to fulfilment of the active mother role where they controlled the interaction and claimed full responsibility for their child’s care, hence presenting their moral agency as indisputable.

  • 27.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Storytelling in dementia: Embodiment as a resource2013Inngår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 12, nr 3, s. 359-367Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In narrative research about persons with dementia, much research focuses on individual storytellers and their stories often stressing the discursive or textual aspects of stories. As persons with Alzheimer’s disease generally have difficulties in telling stories according to often implicit narrative norms, they may appear to be less competent and agentive than what is actually the case. In the article, I argue for a change of focus from the textual aspects of narratives and the story as a product, to a focus on performative aspects and the embodied aspects of storytelling. A focus on the storytelling activity implies a change from the individual storyteller to the interaction with other participants in the storytelling situation. Drawing on two particular cases of storytelling, I stress the collaborative and embodied aspects of storytelling and argue that embodiment is less an individual expressive phenomenon than it is an interactive resource. 

  • 28.
    Carlsson, E
    et al.
    Sahlgrenska University Hospital, Gothenburg, Sweden.
    Pettersson, M
    University of Gothenburg, Sweden .
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten. University of Gothenburg, Sweden .
    Öhlen, J
    University of Gothenburg, Sweden .
    Friberg, F
    University of Gothenburg, Sweden .
    Structure and content in consultations with patients undergoing surgery for colorectal cancer2013Inngår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 17, nr 6, s. 820-826Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    PURPOSE:

    To explore the structure and content of pre-planned consultations as part of the care and treatment of patients undergoing surgery for colorectal cancer.

    METHODS:

    The study was based on 50 transcripts of audio-recorded pre-planned consultations between seven patients and 36 healthcare professionals from the time of diagnosis, pre-operative consultation, discharge consultation and pathology report in a colorectal unit.

    RESULTS:

    The spread of consultation time between professions was considerable. Total mean consultation time for patients during the care process (7 consultations/patient) was 111 min (range 83-191). The mean consultation time for surgeons was 18 min (7-40), anaesthesiologists 12 min (5-18) and nurses 14 min (5-49). Patients took up 40% of the word space, healthcare professionals used 59% and significant others 1%. Word space changed in such a way that the patient became more active towards the final consultation. Neither during the diagnosis consultation nor during the pre-operative consultation did the patients meet the operating surgeon. Six major subjects emerged: general health, diagnosis, surgical procedure, pre-operative preparations, recovery and treatment and follow-up.

    CONCLUSIONS:

    There is a need for clearer structure in the consultations. Most consultations lacked a clear introduction to the subject of the conversation. The study makes it possible to develop methods and structure for supporting conversations in which the patient is given space to help with the difficult issues present after undergoing surgery for colorectal cancer. The study also contributes to providing knowledge of how to organise surgical consultations in order to optimise person-centeredness, teamwork and clinical efficiency.

     

  • 29.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Towards an Embodied Theory of Narrative and Storytelling2013Inngår i: The Travelling Concept of Narrative / [ed] Matti Hyvärinen, Mari Hatavara, Lars-Christer Hydén, Amsterdam: John Benjamins Publishing Company, 2013, 1, s. 227-244Kapittel i bok, del av antologi (Annet vitenskapelig)
    Abstract [en]

    Narrative is a pioneer concept in our trans-disciplinary age. For decades, it has been one of the most successful catchwords in literature, history, cultural studies, philosophy, and health studies. While the expansion of narrative studies has led to significant advances across a number of fields, the travels for the concept itself have been a somewhat more complex. Has the concept of narrative passed intact from literature to sociology, from structuralism to therapeutic practice or to the study of everyday storytelling? In this volume, philosophers, psychologists, literary theorists, sociolinguists, and sociologists use methodologically challenging test cases to scrutinize the types, transformations, and trajectories of the concept and theory of narrative. The book powerfully argues that narrative concepts are profoundly relevant in the understanding of life, experience, and literary texts. Nonetheless, it emphasizes the vast contextual differences and contradictions in the use of the concept

  • 30.
    Hallqvist, Anders
    et al.
    Linköpings universitet, Institutionen för beteendevetenskap och lärande, Pedagogik och sociologi. Linköpings universitet, HELIX Vinn Excellence Centre. Linköpings universitet, Institutionen för beteendevetenskap och lärande, Arbete och arbetsliv. Linköpings universitet, Utbildningsvetenskap.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Work transitions as told: a narrative approach to biographical learning2013Inngår i: Studies in Continuing Education, ISSN 0158-037X, E-ISSN 1470-126X, Vol. 35, nr 1, s. 1-16Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In this article, we introduce a narrative approach to biographical learning; that is, an approach that considers autobiographical storytelling as a practice through which claims about life history are performed and negotiated. Using insights from narrative theory, we highlight evaluations in those narratives and suggest their crucial role in promoting self-reflective thought. The research area is unemployment, more specifically, work transitions following company restructuring and redundancy supported by outplacement services. Recognizing the learning potential in autobiographical storytelling, the article examines job-loss narratives told by people made redundant. The analysis focuses on strategies used in moments of evaluation. Our findings point to a variety of rhetorical strategies, different kinds of reflexivity and, in turn, variation in the potential for biographical learning.

  • 31.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Ansikten i möte2012Inngår i: Människans ansikten: Känslor, karaktärer och karikatyrer / [ed] Viveka Adelswärd och Per-Aanders Forstorp, Stockholm: Carlsson Bokförlag, 2012, s. 107-123Kapittel i bok, del av antologi (Annet vitenskapelig)
    Abstract [sv]

    "There will be time, there will be time, To prepare a face to meet the faces that you meet", lyder några rader ur T. S. Eliots dikt The Love Song of J. Alfred Prufrock. Människans ansikte är komplext och mångtydigt. Det uttrycker våra känslor och reaktioner, medvetet eller omedvetet. När vi ser en annan människas ansikte läser vi  eller tror oss läsa  hennes sinnesstämning och karaktär, hennes tankar och intentioner. Samtidigt är vi medvetna om att andra läser våra ansikten. Ett intrikat samspel mellan genuint och spelat, medvetet och omedvetet, pågår.

    I denna antologi presenterar sju forskare i åtta bidrag en del av den mångfacetterade forskning som finns kring hur människan tolkar ansikten, såväl naturliga som animerade och skulpterade. Vi kan bland annat läsa om datoranimerade ansikten och deras användningsområden; om ansiktet i mänskliga möten, hur människor gestaltar och reglerar sitt samspel i ansikte-mot-ansikte-situationer; om karikatyren och ansiktet som skämt. Bidragen kommer från ett brett mångvetenskapligt fält och vill ge underlag för diskussioner om ansiktets kraft, dess implikationer och innebörder. En tankeväckande och användbar bok, både för forskare och allmänhet. Boken innehåller intressanta bilder av konstnärer som Gert Germeraad, Mark Gilbert och Lovisa Ringborg.

  • 32.
    Hydén, Lars-Christer
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Plejert, Charlotta
    Linköpings universitet, Institutionen för kultur och kommunikation, Avdelningen för språk och kultur. Linköpings universitet, Filosofiska fakulteten.
    Samuelsson, Christina
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för neurovetenskap. Linköpings universitet, Hälsouniversitetet.
    Örulv, Linda
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Feedback and common ground in conversational storytelling involvning people with Alzheimer's disease2012Inngår i: Journal of Interactional Research in Communication Disorders/Equinox, ISSN 2040-5111, E-ISSN 2040-512X, Vol. 4, nr 2, s. 211-247Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The present article focuses on feedback in storytelling involving people with Alzheimer’s disease (AD), and how feedback is related to the ways participants establish a common ground (Clark 1996) in interaction. The establishment of common ground is important in all kinds of interaction and becomes an especially intricate process if participants have AD, since the achievement of common ground requires the ability to draw from knowledge and experiences relating to past as well as present events; an ability that is often hampered by the disease. Analyses show that other aspects than the actual content of the conversation are important for the participants – for instance being together, supporting the positive identities both presented in the story and embodied in the socially rewarding activity that they manage to engage in, implying that the participants create and sustain a common ground not so much about the story-layer as of the storytelling activity.

  • 33.
    Hallqvist, Anders
    et al.
    Linköpings universitet, Institutionen för beteendevetenskap och lärande, Pedagogik och sociologi. Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, HELIX Vinn Excellence Centre. Linköpings universitet, Institutionen för beteendevetenskap och lärande, Arbete och arbetsliv.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Learning in occupational transitions: a study of the process following job loss2012Inngår i: Work: A Journal of Prevention, Assessment and Rehabilitation, ISSN 1051-9815, Vol. 43, nr 3, s. 331-343Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: This article examines how workers supported by outplacement services engage with an occupational transition through problem solving and learning.

    Participants: The participants were 23 mid-life redundant white collar workers with at least eight years in their sector, organization or occupation. The selected interviewees either participated in training to broaden their professional competence or did not make any such ‘expansive’ efforts.

    Methods: The study was based on narrative interviews, which enabled a detailed cross case examination of individuals’ actions and choices and how the process unfolds over time.

    Results: The results showed that people treat their job loss as a practical problem to be solved using various strategies. This problemsolving process is structured, with people passing similar crossroads defining particular challenges and opportunities giving people limited sets of choices.

    Conclusion: The results point to the significance of creativity and learning in occupational transitions.

  • 34.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Letting Stories Breathe: A Socio-narratology2012Inngår i: Sociology of Health and Illness, ISSN 0141-9889, E-ISSN 1467-9566, Vol. 34, nr 1, s. 159-160Artikkel, omtale (Annet vitenskapelig)
    Abstract [en]

    n/a

  • 35.
    Björkman, Berit
    et al.
    Karolinska Institutet, Stockholm.
    Lund, Irene
    Karolinska Institutet, Stockholm.
    Anér, Staffan
    Karolinska Institutet, Stockholm.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Phantom phenomena – Their perceived qualities and consequences from the patient’s perspective2012Inngår i: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 3, nr 3, s. 134-140Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background and aim: The curious phenomenon phantom limbs early became the object of research, and its underlying mechanisms have been discussed over the years. The complex nature of phantom phenom- ena makes interpretation of the results ambiguous, regarding both prevalence and the accompanying suffering. There is a lack of knowledge about how amputees experience the meaning and consequences of phantom phenomena. The present aim, therefore, was to investigate how individuals, in an interview situation, described the qualities of possible perceived phantom phenomena, and how their experience affected their lives one month after the amputation/mastectomy.

    Methods: Twenty-eight women and men who had undergone a limb amputation or mastectomy were interviewed. The focused, narrative-oriented interviews were transcribed verbatim and the scripts were analysed with content analysis.Results: One month after the amputation the informants described and related their phantom pain and phantom sensations in sensory-discriminative, motivational-affective and cognitive-evaluative dimen- sions. The phantom sensations were experienced mainly as more agonizing than the phantom pain.

    Despite both the high intensity of and the high annoyance at the phantom pain and phantom sensations, a majority felt that the phantom phenomena were not a hindrance in their attempts to recapture ordinary life. But when the hindrance was evaluated as high, the annoyance was evaluated as the highest possible for both phenomena or for the phantom sensations alone, never for phantom pain alone. The interviewees’ reported attitudes of hindrance were also described and estimated in the light of their sociocultural circumstances. Thus, other preceding and/or co-existent pain conditions as well as factors such as pre- operative information, the respondents’ views on pain treatment, and their knowledge and understanding of phantom phenomena were mentioned and related to the pain-producing situation.

    Two-thirds of the interviewees had received post-surgical information and for some, the phenomena were well-known from earlier experience. A majority applied some version of the medical explanation model, irrespective of age or level of education. However neither information nor medical explanation, or both, sufficed for them to understand their own phantom phenomena. Thus, differences between the concepts explanation and understanding seemed significant for the annoyance related to the phantom phenomena.

    Regarding background data: (i) the majority of the interviewees had had pre-amputation pain prob- lems; (ii) the breast-cancer phantoms differed in several ways; (iii) there were some age and gender differences in the descriptions of hindrance.Conclusions and implications: These findings highlight the importance of observing the individual approach to the phenomena as a process of evaluation and selection. In addition, experience and under- standing of the phantoms also have sociocultural aspects. There follows the need for individualized communication and information from the clinician, and for incorporating a socioscientific and meaning- centred approach in future studies. The present insights could also be of value in other iatrogenic pain conditions. 

  • 36.
    Hallqvist, Anders
    et al.
    Linköpings universitet, Institutionen för beteendevetenskap och lärande, Pedagogik och sociologi. Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, HELIX Vinn Excellence Centre. Linköpings universitet, Institutionen för beteendevetenskap och lärande, Arbete och arbetsliv.
    Ellström, Per-Erik
    Linköpings universitet, Institutionen för beteendevetenskap och lärande, Pedagogik och sociologi. Linköpings universitet, Filosofiska fakulteten.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    The many faces of biographical learning2012Inngår i: Studies in the Education of Adults, ISSN 0266-0830, E-ISSN 1478-9833, Vol. 44, nr 1, s. 70-84Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Our aim in this article is to look for more diversity within the concept of biographical leaning. As a conceptual tool for investigating learning in life transitions, biographical learning has gained some recognition over recent years. The concept centres on people’s abilities and possibilities to cope with change in a rapidly changing environment. As transitions have become more common, ‘learning processes within transition’ has become an important area for educational research. The development of the concept of biographical learning is related to this trend, since biographical learning processes appear to be more explicitly triggered when a person’s life course is changing and people are faced with transitions in it. In this article, biographical learning will be discussed in relation to research on restructuring, job loss and enforced work transitions. The article will suggest that such transitions may be understood in terms of biographical learning, acknowledging that learning in work transitions is not only about ensuring one’s ‘professional competence’ or ‘employability’ but includes identity issues and decision-making that affect one’s biography.

    Alheit and Dausien portray biographical learning as a certain perspective on lifelong learning, suggesting a ‘shift in analytic perspective’ and a departure from the policy-focused view in which lifelong learning is framed by political and economic precepts. Acknowledging the inner tensions between the ‘instrumentalist’ and ‘emancipative’ power of lifelong learning, the authors place some confidence in the latter, calling for an outlook in which the learning individual ‘is taken more seriously’. There are empirical reasons for such a preference. Although traditional lifeworlds are eroding, people’s responses are not inevitably a ‘panic’ reaction. Instead, people cope with changes rather creatively by using different action strategies that affect both their own biography and the social world in which they live.

    The concept of biographical learning is regarded as useful in this context, firstly because it takes account both of social structures and of the individual’s subjectivity. Hence, it recognizes people’s sense of being able to control their own lives interacting with biographical and structural conditions. Even though life chances are unequally distributed and agency is always ‘bounded’, when people face transitions decisions must be made and actions taken that are affected by and affect their biography. Secondly, biographical learning could be considered valuable because its scope is wider than predominant lifelong learning policies and because its aim extends beyond instrumental skills and ‘employability’. Thirdly, biographical learning can be regarded as helpful because it includes not only formal and organized aspects of learning, but also ‘cognitive and reflexive dimensions of learning as much as the emotional, embodied, pre-reflexive and non-cognitive aspects of everyday learning processes and practices’.

    However, further investigations of the concept are called for, as pointed out by Alheit and Dausien. One possible development concerns challenging its somewhat uniform character. While Alheit has identified three current ‘biographical coping patterns’ (‘patchworking’, ‘networking’ and ‘designing’; Alheit, 1999, p. 75), further analysis will probably reveal new insights and perhaps lead to a more complex description of what biographical learning is. It seems reasonable to assume, for example, that there might be differences between more continuous and more disruptive versions of biographical learning. In order to encompass a wider spectrum of approaches, the aim of this paper is to analyse, explore and expand the notion of biographical learning and to suggest a number of different modes of such learning.

  • 37.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, NISAL - Nationella institutet för forskning om äldre och åldrande. Linköpings universitet, Filosofiska fakulteten.
    Bakom ansiktet2011Inngår i: Diagnos & identitet / [ed] Georg Drakos, Lars-Christer Hydén och Forsberg, Jonas, Stockholm: Gothia Förlag AB, 2011, 1, s. 184-205Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 38.
    Hydén, Lars-Christer
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Antelius, Eleonor
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Communicative disability and stories: Towards an embodied conception of narratives2011Inngår i: Health, ISSN 1363-4593, E-ISSN 1461-7196, Vol. 15, nr 6, s. 588-603Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In this article we show that persons with communicative disabilities are often involved in storytelling that does not necessarily conform to the conventional expectations of what constitutes a narrative. By analyzing the relationship between story and storytelling event, and the relation between what could be called the primary storyteller and the vicarious storyteller, we show that storytellers with communicative disabilities are often quite inventive in finding ways of presenting themselves as competent storytellers even though they may have certain problems vocally animating a coherent, structured story. This lead us to conclude a necessary redefinition of what a narrative is – that it could be performed as well as it could be told – and that such a redefinition stresses methodological issues: in order to be able to study the life stories of people with communicative disabilities we need to use both narrative and ethnographic research methods.

  • 39.
    Samuelsson, Christina
    et al.
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Logopedi. Linköpings universitet, Hälsouniversitetet.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Intonational Patterns of Nonverbal Vocalizations in People With Dementia2011Inngår i: American Journal of Alzheimer’s Disease and Other Dementia, ISSN 1533-3175, E-ISSN 1938-2731, Vol. 26, nr 7, s. 563-572Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Nonverbal vocalizations in dementia are important clinically since they generally have been regarded as disruptive behavior that is disturbing. The aim of the present study is to describe the interactional pattern, including the prosodic package, of nonverbal vocalizations in a participant in a late stage of dementia. The acoustic analysis shows that the vocalizations do not differ significantly from the verbal utterances regarding mean fundamental frequency or pitch range. The mean fundamental frequency, F(0), of the utterances from Anna was significantly higher than the mean F(0) from the other elderly participants. The analysis demonstrates that there is a singing-like type of vocalizations that does not resemble the previously described patterns of nonverbal vocalizations. This pattern of the nonverbal vocalization does not resemble the intonation of Annas verbal utterances. The other participants perceive Annas vocalizations as potentially meaningful turns. Nonverbal vocalizations in clinical settings should be taken as communicative contributions.

  • 40.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Narrative collaboration and scaffolding in dementia2011Inngår i: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 25, nr 4, s. 339-347Artikkel i tidsskrift (Annet vitenskapelig)
  • 41.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Narrative Collaboration and Scaffolding in Dementia2011Inngår i: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 25, nr 4, s. 339-347Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    n/a

  • 42.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Non-verbal vocalizations, dementia and social interaction2011Inngår i: Communication & Medicine: An Interdisciplinary Journal of Healthcare, Ethics and Society, ISSN 1612-1783, E-ISSN 1613-3625, Vol. 8, nr 2, s. 135-144Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In later stages of Alzheimer’s disease many people will engage in noise-making (screaming and other kinds of sounds), often experienced as interruptive by others. A problem with the noise-making is the difficulty in understanding the meaning of the noise. This study addresses two questions: to what extent is noise-making responsive to the ongoing interac- tion and is noise-making regarded as meaningless behavior by other participants? The analysis of selec- tive examples shows that noises may be fitted into the conversational interaction to a certain degree and in some instances is also responsive to interac- tion. The co-participants tend to treat the noises as meaningful. A general conclusion is that if utteranc- es and responses in interaction are treated as if they are meaningful, they will become meaningful in their consequences for all participants. 

  • 43.
    Hyden, Lars- Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    The Importance of Providing Scaffolding to Support Patient Narratives When Brain Damage Impairs Storytelling Ability2011Inngår i: TOPICS IN STROKE REHABILITATION, ISSN 1074-9357, Vol. 18, nr 1, s. 52-54Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Boundaries connected to illness are defined and redefined through new ways of interacting with other people and especially by storytelling and listening to the stories of others. Diseases or traumas that affect the brain can result in memory loss, impaired cognition, and difficulties in expressing oneself clearly, hence making it difficult to present and negotiate identities. In such situations, others often try to remediate the communicative problems by taking over those narrative functions that are lost or impaired and thereby scaffolding the injured persons storytelling capacity. This narrative scaffolding is directed at keeping interpersonal relationships functional and makes it possible for persons with communicative disabilities to continue to be participants in a shared life.

  • 44.
    Björkman, Berit
    et al.
    Karolinska Institutet.
    Lund, Irene
    Karolinska Institutet.
    Anér, Staffan
    Karolinska Institutet.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Adult limb and breast amputees' experience and descriptions of phantom phenomena: a qualitative study2010Inngår i: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 1, nr 1, s. 43-49Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background

    Phantom phenomena – pain or other sensations appearing to come from amputated body parts – are frequent consequences of amputation and can cause considerable suffering. Also, stump pain, located in the residual limb, is in the literature often related to the phantom phenomena. The condition is not specific to amputated limbs and has, to a lesser extent, been reported to be present after radical surgery in other body parts such as breast, rectum and teeth.

    Multi-causal theories are used when trying to understand these phenomena, which are recognized as the result of complex interaction among various parts of the central nervous system confirmed in studies using functional brain imaging techniques.

    Functional brain imaging has yielded important results, but without certainty being related to phantom pain as a subjective clinical experience.

    There is a wide range of treatment methods for the condition but no documented treatment of choice.

    Aims

    In this study a qualitative, explorative and prospective design was selected, in the aim to understand the patients’ personal experience of phantom phenomena.

    The research questions focused at how patients affected by phantom pain and or phantom sensations describe, understand, and live with these phenomena in their daily life.

    This study expanded ‘phantom phenomena’ to also encompass phantom breast phenomenon. Since the latter phenomenon is not as well investigated as the phantom limb, there is clinical concern that this is an underestimated problem for women who have had breasts removed.

    Methods

    The present study forms the first part of a larger, longitudinal study. Only results associated with data from the first interviews with patients, one month after an amputation, are presented here. At this occasion, 28 patients who had undergone limb amputation (20) or mastectomy (8) were interviewed. The focused, semi-structured interviews were recorded, transcribed, and then analyzed using discourse-narrative analysis.

    Results

    The interviewees had no conceptual problems in talking about the phenomena or distinguishing between various types of discomfort and discomfort episodes. Their experience originated from a vivid, functioning body that had lost one of its parts. Further, the interviewees reported the importance of rehabilitation and advances in prosthetic technology. Loss of mobility struck older amputees as loss of social functioning, which distressed them more than it did younger amputees. Phantom sensations, kinetic and kinesthetic perceptions, constituted a greater problem than phantom pain experienced from the amputated body parts. The descriptions by patients who had had mastectomies differed from those by patients who had lost limbs in that the phantom breast could be difficult to describe and position spatially.

    The clinical implication of this study is that when phantom phenomena are described as everyday experience, they become a psychosocial reality that supplements the definition of phantom phenomena in scientific literature and clinical documentation.

    Conclusions

    There is a need for clinical dialogues with patients, which besides, providing necessary information about the phenomena to the patients creates possibilities for health professionals to carefully listen to the patients’ own descriptions of which functional losses or life changes patients fear the most. There is a need for more qualitative studies in order to capture the extreme complexity of the pain–control system will be highlighted.

  • 45.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Identity, Self, Narrative2010Inngår i: Beyond Narrative Coherence / [ed] Hyvärinen, M. Hyden, L.C. Saarenheimo, M. Tamboukou, M., John Benjamins Publishing Company, 2010, 1, s. 33-48Kapittel i bok, del av antologi (Annet vitenskapelig)
    Abstract [en]

    Beyond Narrative Coherence" reconsiders the way we understand and work with narratives. Even though narrators tend to strive for coherence, they also add complexity, challenge canonical scripts, and survey lives by telling highly perplexing and contradictory stories. Many narratives remain incomplete, ambiguous, and contradictory. Obvious coherence cannot be the sole moral standard, the only perspective of reading, or the criterion for selecting and discarding research material. "Beyond Narrative Coherence" addresses the limits and aspects of narrative (dis)cohering by offering a rich theoretical and historical background to the debate. Limits of narrative coherence are discussed from the perspective of three fields of life that often threaten the coherence of narrative: illness, arts, and traumatic political experience. The authors of the book cover a wide range of disciplines such as psychology, sociology, arts studies, political science and philosophy.

  • 46.
    Hydén, Lars-Christer
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Örulv, Linda
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Interaction and narrative structure in dementia2010Inngår i: Telling Stories: Language, Narrative, and Social Life / [ed] Schiffrin, D. De Fina, A. Nylund, A., Washington, DC: Georgetown University Press , 2010, s. 149-160Kapittel i bok, del av antologi (Annet (populærvitenskap, debatt, mm))
  • 47.
    Liden, Eva
    et al.
    University of Gothenburg.
    Ohlen, Joakim
    University of Gothenburg.
    Hydén, Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Friberg, Febe
    University of Gothenburg.
    Ways of talking about illness and prognosis in palliative cancer care consultations-two interactional frames2010Inngår i: SUPPORTIVE CARE IN CANCER, ISSN 0941-4355, Vol. 18, nr 4, s. 399-408Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The purpose of the study was to describe how interaction about changes in illness and prognosis was shaped by participants in outpatient palliative cancer care consultations. The data collection involved six video-recorded consultations at an outpatient oncology unit at a university hospital in Sweden. The interactions were studied by means of discourse analysis. Inclusion criteria for the patients were gastro-intestinal cancer and receiving palliative care. The sample included three men and three women, aged 54-70, with various metastasised gastro-intestinal tumours. Significant others (SOs) were included where patients brought one to the consultation. Three male consultants aged 55-59 participated. In palliative care consultations, the person-to-person and the patient-professional conversation frames were found to be in use as patients, SOs and physicians talked about the patients illness and prognosis. Within the patient-professional frame, three interactional patterns were found: the patient emphasising emotional experiences of illness or well-being and the physicians responding by toning down strategies, patients asking direct questions and getting straight answers and finally interaction marked by cautiousness and avoidances. Within the person-person frame, the interactions were described as: playful talk, collegial talk and existential talk. When patients shared their personal interpretations of illness and prognosis, their narrative was more enhanced by the person-to-person frame than the patient-professional frame. Finding out if and how patients and SOs want to express their worries and finding a balance between the interactional patterns that occur are ethical challenges which health professionals must face. Since patients and SOs may restrain their emotional experiences, investigating grounded ways of overcoming these difficulties is imperative.

  • 48.
    Hydén, Lars-Christer
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Örulv, Linda
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Narrative and identity in Alzheimer’s disease: a case study2009Inngår i: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 23, nr 4, s. 205-214Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In this case study, focus is on how persons with AD use their remaining linguistic and cognitive resources, together with non-verbal aspects of the storytelling event, as resources in communicating and negotiating their identities in everyday encounters. The results of the analysis, focusing on the telling of the stories, indicate that other aspects than the temporal and referential organization of the narratives has become important resources for the teller in establishing and negotiating identity. The telling of temporally discontinuous narratives does not appear to affect or disrupt the teller's experience of some sort of a continuous sense of self and identity but are probably more a problem to persons without this kind of diagnosis. Being afflicted by AD most likely leads persons to try to invent and use alternative communicative recourses in order to sustain factors like their senses of self and identities. For researchers this makes it important to try to base their analysis on the actual organization of the talk and to focus on the functions of various responses and utterances in the interaction.

  • 49.
    Gunnarsson, Nina
    et al.
    Karolinska Institutet, Stockholm.
    Hydén , Lars-Christer
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Organizing allergy and being a good parent: parents narratives about their childrens emerging problems2009Inngår i: Health, ISSN 1363-4593, E-ISSN 1461-7196, Vol. 13, nr 2, s. 157-174Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The article focuses on the early and problem-solving phases of the childs illness trajectory and on how child allergies are constructed and organized by the parents in a moral everyday context. The parents narratives were reconstructed as narratives, describing the pathways parents take before they decide to seek professional medical aid as well as showing how they construct themselves as responsible parents. Before consulting health professionals the parents have often tried a range of different ways to define, control and manage their childrens various problems. Allergy problems were interpreted and responded to differently, depending on the way they emerged in everyday life. Acute reactions quickly led to an illness definition and a diagnosis. Gradual and diffuse problems were not so easily defined. They were at first interpreted and responded to as normal infant problems, but, through the parents readiness and various situational and temporal clues, they were organized as symptoms of illness. Parents seek medical aid when their own strategies fail or do not fully work, but their decisions are also formed within a pre-problem context of their moral accountability as parents.

  • 50.
    Hydén, Lars-Christer
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för tema.
    Att analysera berättelser i forskningsintervjuer2008Inngår i: Narrativa metoder i socialt arbete / [ed] Sam Larsson, Yvonne Sjöblom & John Lilja, Lund: Studentlitteratur , 2008, 1, s. 111-132Kapittel i bok, del av antologi (Annet vitenskapelig)
    Abstract [sv]

    Denna antologi ger en bred introduktion till hur man kan använda berättelsemetoder inom forskning med fokus på olika typer av psykosociala problemområden. Teoretiska perspektiv presenteras liksom empiriska exempel på vad en narrativ strategi kan innebära vid forskning inom samhällsvetenskap och socialt arbete. Författarna diskuterar bland annat följande frågor:- Vad menas med en berättelse?- Hur kan man förstå och analysera berättelser inom det sociala fältet?- Hur kan man rent konkret använda berättelser i forskning inom socialt arbete? Boken innehåller också en diskussion om evaluerings- och bedömningskriterier inom narrativ forskning. Narrativa metoder i socialt arbete vänder sig främst till universitets- och högskolestudenter vid socionomutbildningar samt yrkesverksamma socialarbetare, psykologer och vårdpersonal som ska genomföra mindre undersökningar.

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