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  • 1.
    Zeiler, Kristin
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences. Linköping University, Centre for Medical Humanities and Bioethics (CMHB).
    Segernäs, Anna
    Region Östergötland, Primary Care Center, Primary Health Care Center Ekholmen. Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences.
    Gunnarson, M.
    School of Culture and Education, Centre for Studies in Practical Knowledge, Södertörn University, Södertörn, Sweden.
    Entering the grey zone of aging between health and disease: a critical phenomenological account2023In: Continental philosophy review, ISSN 1387-2842, E-ISSN 1573-0611Article in journal (Refereed)
    Abstract [en]

    Phenomenological analyses of ageing and old age have examined themes such asalterity, finitude, and time, not seldom from the perspective of “healthy” aging.Phenomenologists have also offered detailed analyses of lived experiences of illnessincluding lived experiences of dementia. This article offers a phenomenological account of what we label as entering the grey zone of aging between “healthy” agingand aging with a disease. This account is developed through a qualitative phenomenological philosophy analysis of elderly persons’ lived experiences of being testedfor dementia through primary care in Sweden, i.e., within a cultural context wheredementia commonly is understood as a frightening a loss of self even though thisunderstanding also is questioned. To enter this grey zone of aging, we argue, doesnot dissolve dynamic self-becoming but can involve an experience of oneself as being old. Further, in the grey zone, the self experiences itself as neither fully healthynor as having a disease, and as needing to negotiate and live this ambiguity. Toenter this grey zone is to enter an affectively charged, sociocultural and medicalized zone, and while the self can still act in different ways within it, staying in thegrey zone can result in a re-orientation in the self’s mode of being, in ways thatare thoroughly beyond its control. To stay in the grey zone can have detrimentaleffects on the self, even though the self does not have a disease: the self can become“stuck” in a reflective mode of attending to embodiment, aging, health, and disease.

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  • 2.
    Woroniecki, Stephen
    et al.
    Linköping University, Department of Thematic Studies, Tema Environmental Change. Linköping University, Faculty of Arts and Sciences.
    Wibeck, Victoria
    Linköping University, Department of Thematic Studies, Tema Environmental Change. Linköping University, Faculty of Arts and Sciences. Linköping University, Centre for Climate Science and Policy Research, CSPR.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Linnér, Björn-Ola
    Linköping University, Department of Thematic Studies, Tema Environmental Change. Linköping University, Faculty of Arts and Sciences. Linköping University, Centre for Climate Science and Policy Research, CSPR.
    Dethroning the Planetary Perspective: Dealing with Actually-Occurring Transformations Using Dialogical Sense-Making and Critical Phenomenology2022In: PreprintsArticle in journal (Other academic)
    Abstract [en]

    Transformation studies lean towards the more practical aspects of change processes and are not yet dealing adequately with their personal and political dimensions. They are arguably constrained in doing so in their current stances, either fixated on systems and how to control them or on individualistic values and behaviours. In this study we show the range of actually-occurring societal transformations that people face can be usefully approached through a combination of dialogical sense-making and critical phenomenology. While distinct, these approaches share a concern with experience and meaning-making, concerns which are often neglected when societal transformation becomes abstracted and alienated from people’s lives. The two approaches reveal how societal transformational change is situated, shared, embodied and laden with diverse meanings. Dialogical sense-making expands the theorisation of the experiential, personal and political dimensions of transformation and shows how the practical dimension of change is always personal and political. Critical phenomenology addresses how the experience of transformation help shape subjectivity, as a lived relation to the world, and sheds light on taken-forgranted, lived norms about bodies and transformative change. Drawing together the three spheres of transformation – the practical, personal, and political - allows a fuller grasp of the complexity in which new worlds may emerge. Through a discussion of insights from these approaches, we develop a language and framework to understand how people interact with change processes. This development allows new questions about transformative change, based on a reframing of transformations that brings them closer to people’s lives. Together these approaches broaden and deepen social-science and humanities contributions to transformation studies and sustainability science. 

  • 3.
    Zeiler, Kristin
    Linköping University, Centre for Medical Humanities and Bioethics (CMHB). Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Embodiment: Contributions from Feminist Science and Technology Studies and Feminist Phenomenology2022In: The Routledge Handbook of Feminist Bioethics / [ed] Wendy A. Rogers; Jackie Leach Scully; Stacy M. Carter; Vikki A. Entwistle; Catherine Mills, New York and London: Routledge, 2022, p. 123-134Chapter in book (Refereed)
  • 4.
    Gunnarson, Martin
    et al.
    Södertörn Univ, Sweden.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Ethico-political aspects of clinical judgment in opportunistic screening for cognitive impairment: Arendtian and Aristotelian perspectives2022In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 25, p. 495-507Article in journal (Refereed)
    Abstract [en]

    This article examines a population-based opportunistic screening practice for cognitive impairment that takes place at a hospital in Sweden. At the hospital, there is a routine in place that stipulates that all patients over the age of 65 who are admitted to the ward will be offered testing for cognitive impairment, unless they have been tested within the last six months or have been diagnosed with any form of cognitive impairment. However, our analysis shows that this routine is not universally and mechanically applied. Rather, the health care professionals have developed and use an ethico-political judgment, concerning, for example, whom to test, when to offer the tests, and how to explain and perform them. This article explores the role and practice of this form of judgment, emphasising its political and ethical nature. The analysis is based on qualitative interviews with professionals and patients, and draws on the theories of Aristotle and Hannah Arendt.

  • 5.
    Wickström, Anette
    et al.
    Linköping University, Department of Thematic Studies, Department of Child Studies. Linköping University, Faculty of Arts and Sciences. Linköpings universitet.
    Morberg Jämterud, Sofia
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Inledning2022In: Screeningens mångsidighet: Dess möjligheter och utmaningar / [ed] Wickström, Anette; Morberg Jämterud, Sofia; Zeiler, Kristin, Lund: Nordic Academic Press, 2022, p. 9-25Chapter in book (Other academic)
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  • 6.
    Zeiler, Kristin
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Karlsson, Goran
    Motala Hosp, Sweden.
    Gunnarson, Martin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences. Sodertorn Univ, Sweden.
    Opportunistic cognitive screening in Sweden: What the tests mean and do for patients and healthcare professionals2022In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 21, no 1, p. 236-249Article in journal (Refereed)
    Abstract [en]

    Since 2017, opportunistic screening for cognitive impairment takes place at the geriatric ward of a local hospital in Sweden. Persons above the age of 65 who are admitted to the ward, who have not been tested for cognitive impairment during the last six months nor have a previously known cognitive impairment, are offered the Mini-Mental State Examination and the Clock-Drawing Test. This article analyses what the opportunistic screening practice means for patients and healthcare professionals. It combines a phenomenologically-oriented focus on subjectivity and sense-making with a focus that is inspired by science and technology studies on what the tests become within the specific context in which they are used, which allows a dual focus on subjectivity and performativity. The article shows how the tests become several different, not infrequently seemingly contradictory, things: an offer, an important tool for knowledge-production, something unproblematic yet also emotionally troubling, something one can fail and an indicator that one belongs to a risk group and needs to be tested. Further, the article shows how the practice is shaped by the sociocultural context. It examines the role of the affective responses to the test for subjectivity - particularly patient subjectivity - and offers a set of recommendations, if this practice were to expand to other hospitals.

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  • 7.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Testning och screening för covid-19: Kunskapsmässig och ontologisk osäkerhet under pandemin.2022In: Screeningens mångsidighet: Dess möjligheter och utmaningar / [ed] Anette Wickström, Sofia Morberg Jämterud, Kristin Zeiler, Lund: Nordic Academic Press, 2022, 1, p. 105-124Chapter in book (Other academic)
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  • 8.
    Gunnarson, Martin
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences. Centre for Studies in Practical Knowledge, School of Culture and Learning, Södertörn University, Huddinge, Sweden.
    Kapeller, Alexandra
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Ethico-Political Aspects of Conceptualizing Screening: The Case of Dementia2021In: Health Care Analysis, ISSN 1065-3058, E-ISSN 1573-3394, Vol. 29, no 4, p. 343-359Article in journal (Refereed)
    Abstract [en]

    While the value of early detection of dementia is largely agreed upon, population-based screening as a means of early detection is controversial. This controversial status means that such screening is not recommended in most national dementia plans. Some current practices, however, resemble screening but are labelled “case-finding” or “detection of cognitive impairment”. Labelled as such, they may avoid the ethical scrutiny that population-based screening may be subject to. This article examines conceptualizations of screening and case-finding. It shows how the definitions and delimitations of the concepts (the what of screening) are drawn into the ethical, political, and practical dimensions that screening assessment criteria or principles are intended to clarify and control (the how of screening, how it is and how it should be performed). As a result, different conceptualizations of screening provide the opportunity to rethink what ethical assessments should take place: the conceptualizations have different ethico-political implications. The article argues that population-based systematic screening, population-based opportunistic screening, and case-finding should be clearly distinguished.

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  • 9.
    Morberg Jämterud, Sofia
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Snoek, Anke
    Department of Health, Ethics and Society, Maastricht University, Maastricht, The Netherlands.
    van Langen, I M
    Department of Genetics, University of Groningen, Groningen, The Netherlands.
    Verkerk, Marian
    Department of Internal Medicine, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Qualitative study of GPs’ views and experiences of population-based preconception expanded carrier screening in the Netherlands: bioethical perspectives2021In: BMJ Open, E-ISSN 2044-6055, Vol. 11, no 12, article id e056869Article in journal (Refereed)
    Abstract [en]

    Objective Between 2016 and 2017, a population-based preconception expanded carrier screening (PECS) test was developed in the Netherlands during a pilot study. It was subsequently made possible in mid-2018 for couples to ask to have such a PECS test from specially trained general practitioners (GPs). Research has described GPs as crucial in offering PECS tests, but little is known about the GPs’ views on PECS and their experiences of providing this test. This article presents a thematic analysis of the PECS practice from the perspective of GPs and a bioethical discussion of the empirical results.

    Design Empirical bioethics. A thematic analysis of qualitative semi-structured interviews was conducted, and is combined with an ethical/philosophical discussion.

    Setting The Netherlands.

    Participants 7 Dutch GPs in the Netherlands, interviewed in 2019–2020.

    Results Two themes were identified in the thematic analysis: ‘Choice and its complexity’ and ‘PECS as prompting existential concerns’. The empirical bioethics discussion showed that the first theme highlights that several areas coshape the complexity of choice on PECS, and the need for shared relational autonomous decision-making on these areas within the couple. The second theme highlights that it is not possible to analyse the existential issues raised by PECS solely on the level of the couple or family. A societal level must be included, since these levels affect each other. We refer to this as ‘entangled existential genetics’.

    Conclusion The empirical bioethical analysis leads us to present two practical implications. These are: (1) training of GPs who are to offer PECS should cover shared relational autonomous decision-making within the couple and (2) more attention should be given to existential issues evoked by genetic considerations, also during the education of GPs and in bioethical discussions around PECS.

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  • 10.
    Wickström, Anette
    et al.
    Linköping University, Department of Thematic Studies, Department of Child Studies. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    The Performativity of Surveys: Teenagers’ Meaning-making of the ‘Health Behavior in School-aged Children Survey’ in Sweden2021In: Children & society, ISSN 0951-0605, E-ISSN 1099-0860, Vol. 35, no 3, p. 428-444Article in journal (Refereed)
    Abstract [en]

    The Health Behavior in School-Aged Children (HBSC) survey contains scales intended to measure life satisfaction, mental health problems, and socioeconomic status. This article takes inspiration from science and technology studies (STS) and analyse the survey as performative. It also examines subjective meaning-making through an analysis of interviews with 15-year-old teenagers. It shows how the survey enacts the subject position of an accountable teenager and how teenagers experience the survey as sending a message about how one should live. While some teenagers experience this as positive, others narrate feelings of shame. This could be interpreted as a way for them to be accountable for themselves.

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  • 11.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    An analytic framework for conceptualisations of disease: nine structuring questions and how some conceptualisations of Alzheimers disease can lead to diseasisation2020In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 23, p. 677-693Article in journal (Refereed)
    Abstract [en]

    According to the US National Institute on Aging and the Alzheimers Association (NIA-AA), Alzheimers disease (AD) should be understood as a biological construct. It can be diagnosed based on AD-characteristic biomarkers only, even if AD biomarkers can be present many years before a person experiences any symptoms of AD. The NIA-AAs conceptualisation of AD radically challenges past AD conceptualisations. This article offers ananalytic framework for the clarification and analysis of meanings and effects of conceptualisations of diseases such as that of AD. This framework consists of nine questions that allows us to determine how the conceptualisations of diseases, such as that of AD, link or decouple the following terms to/from each other: screening, diagnosis, pathology, disease (along the lines of what have been labelled as "biological-physiological" or "normative" conceptions of disease in philosophy of medicine), symptoms, and illness. It also includes questions regarding how specific decouplings open up for new categories through which people can understand themselves in new ways, and what spaces of possibilities specific conceptualisations (and their decouplings and linkages) open to. The article shows how specific decouplings/linkages can open up not only for the phenomena of pathologisation but also for a distinct, but related phenomenon here termed as diseasisation.

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  • 12.
    Murano, Maria Cristina
    et al.
    Linköping University, Department of Culture and Communication, Culture and Aesthetics. Linköping University, Faculty of Arts and Sciences. Medicine, Science, Health and Society (Cermes3), School for Advanced Studies in the Social Sciences (EHESS), Paris, France; Center for Bioethics, Children’s Mercy Kansas City, Kansas City, MO, USA.
    Slatman, Jenny
    Department of Culture Studies, Tilburg University, Tilburg, The Netherlands.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    How sociophenomenology of the body problematises the ‘problem-oriented approach’ to growth hormone treatment2020In: Medical Humanities, ISSN 1468-215X, E-ISSN 1473-4265, Vol. 46, p. 2-11Article in journal (Refereed)
    Abstract [en]

    This article examines how people who are shorter than average make sense of their lived experience of embodiment. It offers a sociophenomenological analysis of 10 semistructured interviews conducted in the Netherlands, focusing on if, how, and why height matters to them. It draws theoretically on phenomenological discussions of lived and objective space, intercorporeality and norms about bodies. The analysis shows that height as a lived phenomenon (1) is active engagement in space, (2) coshapes habituated ways of behaving and (3) is shaped by gendered norms and beliefs about height. Based on this analysis, the article challenges what we label as the ‘problem-oriented approach’ to discussions about growth hormone treatment for children with idiopathic short stature. In this approach, possible psychosocial disadvantages or problems of short stature and quantifiable height become central to the ethical evaluation of growth hormone treatment at the expense of first-hand lived experiences of short stature and height as a lived phenomenon. Based on our sociophenomenological analysis, this paper argues that the rationale for giving growth hormone treatment should combine medical and psychological assessments with investigations of lived experiences of the child. Such an approach would allow considerations not only of possible risks or disadvantages of short stature but also of the actual ways in which the child makes sense of her or his height.

  • 13.
    Folkmarson Käll, Lisa
    et al.
    Stockholms universitet.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Still Alice?: ethical aspects of conceptualising selfhood in dementia2020In: Routledge handbook of the medical humanities / [ed] Alan Bleakley, London och New York: Routledge, 2020, p. 290-299Chapter in book (Other academic)
    Abstract [en]

    The 2014 film Still Alice depicts the prominent linguistics professor Alice Howland who at the age of 50 is diagnosed with early onset familial Alzheimer’s Disease (AD). The film follows Alice from her first experiences of disorientation and forgetting of words through the progression of her condition that eventually leaves her unable to care for herself. This chapter analyses the film Still Alice in order to discuss frameworks for conceptualising subjectivity in relation to dementia, and particularly AD. In one scene Alice wakes up in the middle of the night distressed that her phone is missing and in the next scene her husband finds it in the freezer in the kitchen. The viewer is under the illusion that the second scene, coming straight after the first, portrays the next morning, as Alice says “I was looking for that last night” but then John reveals that a month has passed.

  • 14.
    Zeiler, Kristin
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    De Boer, Marjolein
    Tilburg University, the Netherlands.
    The Empirical and the Philosophical in Empirical Bioethics: Time for a Conceptual Turn2020In: AJOB Empirical Bioethics, ISSN 2329-4515, E-ISSN 2329-4523, Vol. 11, no 1, p. 11-13Article in journal (Refereed)
    Abstract [en]

    A growing number of scholars in bioethics engage with empirical work on stakeholders’ values, attitudes, and experiences as a basis for theorizing ethics in the context of healthcare. Related to this empirical turn, a debate is being conducted about how to combine empirical research with normative analysis. In this commentary, we are concerned with the more rarely discussed question of how to integrate philosophical, conceptual work into empirical bioethics. We suggest that empirical bioethics should make one more turn after the empirical one: a conceptual turn.

    The commentary offers a three-dimensional approach to doing philosophical empirical bioethics. Specifically, it proposes an integration of hermeneutical phenomenology into empirical bioethics.

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  • 15.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Why feminist technoscience and feminist phenomenology should engage with each other: On subjectification/subjectivity2020In: Feminist Theory, ISSN 1464-7001, E-ISSN 1741-2773, Vol. 21, no 3, p. 367-390Article in journal (Refereed)
    Abstract [en]

    Feminist technoscience and feminist phenomenology have seldom been brought into dialogue with each other, despite them sharing concerns with subjectivity and normativity, and despite both of them moving away from sharp subject-object distinctions. This is unfortunate. This article argues that, while differences between these strands need to be acknowledged, such differences should be put to productive use. The article discusses a case of school bullying, and suggests that bringing these analytic perspectives together enables and sharpens examinations of the role of subjectification and subject positions for subjectivity in the phenomenological sense; affectivity within material-discursive entanglements and constellations of humans and things, and as connecting the body, things and the world in specific ways; and normativity as enacted, lived and embedded in perception.

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  • 16.
    de Boer, Marjolein
    et al.
    Univ Oslo, Norway.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Slatman, Jenny
    Tilburg Univ, Netherlands.
    Sharing lives, sharing bodies: partners negotiating breast cancer experiences2019In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 22, no 2, p. 253-265Article in journal (Refereed)
    Abstract [en]

    By drawing on Jean-Luc Nancys philosophy of ontological relationality, this article explores what it means to be a we in breast cancer. What are the characteristicsthe extent and diversityof couples relationally lived experiences of bodily changes in breast cancer? Through analyzing duo interviews with diagnosed women and their partners, four ways of sharing an embodied life are identified. (1) While being different together, partners have different, albeit connected kinds of experiences of breast cancer. (2) While being there for you, partners take care of each other in mutually dependent ways. (3) While being reconnected to you, partners (re-)relate to each other through intimacy and sexuality. (4) While being like you, partners synchronize their embodied daily lives to one another, sometimes up to the point that the self cannot be distinguished from the other anymore. These ways reveal that being a we involves complex affective, bodily encounters in which the many fault lines that both separate partners into individual selves and join them together as a unity are continuously reshaped and negotiated. Being a we may be understood as something we have to do. Therefore, in being true to the legacy of Nancy, we argue at the end of this article for a sensible praxis of sharing a life and body, particularly in breast cancer.

  • 17.
    Guntram, Lisa
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    The Ethics of the Societal Entrenchment-approach and the case of live uterus transplantation-IVF2019In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 22, no 4, p. 557-571Article in journal (Refereed)
    Abstract [en]

    In 2014, the first child in the world was born after live uterus transplantation and IVF (UTx-IVF). Before and after this event, ethical aspects of UTx-IVF have been discussed in the medical and bioethical debate as well as, with varying intensity, in Swedish media and political fora. This article examines what comes to be identified as important ethical problems and solu-tions in the media debate of UTx-IVF in Sweden, showing specifically how problems, target groups, goals, benefits, risks and stakes are delineated and positioned. It also demonstrates how specific assumptions, norms and values are expressed and used to underpin specific positions within this debate, and how certain subjects, desires and risks become shrouded or simply omitted from it. This approach—which we label the Ethics of the Societal Entrenchment-approach, inspired by Koch and Stemerding (1994)—allows us to discuss how the identification of something as the problem helps to shape what gets to be described as a solution, and how specific solutions provide frameworks within which problems can be stated and emphasised. We also offer a critical discussion of whether some of these articulations and formations should be seen as ethically troubling, and if so, why.

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  • 18.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    On the Autós of autonomous decision making: intercorporeality, temporality, and enacted normativities in transplantation medicine2018In: Existential medicine: essays on health and illness / [ed] Kevin Aho, London and New York: Rowman & Littlefield International, 2018, p. 81-100Chapter in book (Refereed)
    Abstract [en]

    This chapter brings phenomenological philosophy to bioethics debates about decision-making in transplantation medicine in general and parental live kidney donation in specific. It clarifies why both discussions of parental live kidney donation in terms of coercion (Kärrfelt et al 2004) and as “indicative” of parents’ autonomy (if it expresses what they want or who they want to be, see Crouch and Elliot 1999) fail to make sense of the complexity of the situation. Noting that the rich literature that explores relational aspects of subjectivity and conceptualises autonomous individuals as making decisions situated within and dependent on particular social contexts (see Freeman 2011; Donchin 2001; Mackenzie and Stoljars 2000; Christman 1998; Friedman 1997) still rarely addresses the role of the body, the chapter also addresses the role of embodiment for perception and choice. It argues for the need to think-through what may be labelled as the autós of autonomy and, more precisely, the focus on one’s own, the same/sameness, oneself or one’s self that has come to characterise much autonomy discussions, via phenomenological philosophy.

    The chapter is divided into three parts. First, I make use of the phenomenological understanding of the intercorporeal self as being-in-the-world, in a discussion of how pain, fear or bodily symptoms of ESRD that unfolds in the shared space of child and parent can shape both of them in relation to each other (c.f. Käll 2013; Zeiler 2014a), feed into their bodily style of being-together, and help form parents’ perception of actions ‘within’ reach for them. Second, I shift the focus from the parent–child dyad to the larger semiotic–material context of haemodialysis and kidney transplantation in Sweden. This allows for an examination of embodied and enacted normativities, through an engagement with what Martin Gunnarson (2016: 128) has identified as a ‘dominant […] orientation towards transplantation’ in Sweden and Latvia. This second part also combines the discussion of an orientation towards transplantation with that of how norms about parenthood may be incorporated and excorporated into parents’ lived bodies,4 thereby making it possible to show why the no-choice theme in previous empirical work is understandable but more disconcerting than may first be assumed. Third, I argue that the acknowledgement of intercorporeal dimensions of bodily existence (argued for in Part I) and the role of orientation (argued for in Part II) demonstrates the need for a thinking-through of the autós of autonomous decision making, i.e. the understanding of the ‘ownness’ of this decision making, in ways other than those argued for in much of the bioethical autonomy and relational autonomy literature.

  • 19.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Teenage Girlhood and Bodily Agency: On Power, Weight, Dys-Appearance and Eu-Appearance in a Norwegian Lifestyle Programme2018In: Indo-Pacific Journal of Phenomenology, ISSN 2079-7222, E-ISSN 1445-7377, Vol. 8, no 1, p. 1-14Article in journal (Refereed)
    Abstract [en]

    Despite the growing literature on childhood obesity and lifestyle intervention programmes focusing on weight loss, few studies have examined young persons’ experiences of being identified as candidates for such programmes and of participating in them. This paper does so. Juxtaposing insights from phenomenology with an approach inspired by Foucault, the paper shows how teenage girls’ bodily self-perception and bodily self-awareness are shaped in intercorporeal assemblages comprising other people and specific features or elements of the lifestyle programme.

    Inspired by van Manen’s hermeneutic-phenomenological approach, with its point of departure in lived experience, this paper draws on interviews with Norwegian teenage girls participating in the same lifestyle programme and identifies three core thematic aspects of the girls’ experiences: being identified as a candidate for a lifestyle programme and not wanting this; negotiating the lack of weight loss and the scales; and bodily situated agency – feeling good and being able. Permeating all three themes are two central, interrelated phenomena: agency and resistance. Furthermore, the paper shows how a combination of Foucauldian insights and a phenomenological understanding of intercorporeality can help to shed light on the power, affective, material and temporal dimensions of dys-appearance (i.e., when one’s body appears as bad or wrong), as well as those of eu-appearance (i.e., when one’s body appears as healthy or strong), and thus contribute to the understanding of the girls’ narrated lived experiences.

    On the basis of these findings, we argue that weight-related treatment goals are not necessarily compatible with the strengthening of adolescents’ body images and self-esteem. However, whilst being obliged to attend to their bodies while in the programme, the girls also encountered unexpected, positive bodily feelings and experiences. Such events, we suggest, offer a means of resisting the more troubling dys-appearing bodily situations our participants described so powerfully.

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  • 20.
    Van Parys, Hanna
    et al.
    Psychology and Educational Sciences, Ghent University, Belgium.
    Provoost, Veerle
    Bioethics Institute Ghent, Ghent University, Belgium.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Medicine and Health Sciences.
    De Sutter, Petra
    Ghent University Hospital, Ghent, Belgium.
    Pennings, Guido
    Bioethics Institute Ghent, Ghent University, Belgium.
    Buysse, Ann
    Psychology and Educational Sciences, Ghent University, Belgium.
    Constructing and enacting kinship in sister-to-sister egg donation families: a multi-family member interview study2017In: Sociology of Health and Illness, ISSN 0141-9889, E-ISSN 1467-9566, Vol. 39, no 6, p. 847-862Article in journal (Refereed)
    Abstract [en]

    Although intra-familial egg donation has been practiced for more than 15 years in several countries, little is known about family relationships in this family type. Framed within the new kinship studies, this article focuses on the experiential dimension of kinship in sister-to-sister egg donation families: how is kinship unpacked and reconstructed in this specific family constellation? Qualitative data analysis of interviews with receiving parents, their donating sisters and the donor children revealed six themes: (1) being connected as an extended family; (2)disambiguating motherhood; (3) giving and receiving as structuring processes; (4) acknowledging and managing the special link between donor and child; (5)making sense of the union between father and donor; and (6) kinship constructions being challenged. This study showed the complex and continuous balancing of meanings related to the mother-child dyad, the donor-child dyad and the donor-father dyad. What stood out was the complexity of, on the one hand cherishing the genetic link with the child allowed by the sisters egg donation, while, on the other, managing the meanings related to this link, by, for instance, acknowledging, downsizing, symbolising, and differentiating it from the mother-child bond. (A Virtual Abstract of this paper can be accessed at: https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA))

  • 21.
    Toledano, Sarah
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences. Uppsala University, Sweden.
    Hosting the others child? Relational work and embodied responsibility in altruistic surrogate motherhood2017In: Feminist Theory, ISSN 1464-7001, E-ISSN 1741-2773, Vol. 18, no 2, p. 159-175Article in journal (Refereed)
    Abstract [en]

    Studies on surrogate motherhood have mostly explored paid arrangements through the lens of a contract model, as clinical work or as a maternal identity-building project. Turning to the under-examined case of unpaid, so-called altruistic surrogate motherhood and based on an analysis of interviews with women who had been unpaid surrogate mothers in a full gestational surrogacy with a friend or relative in Canada, the United States or Australia, this article explores altruistic surrogate motherhood as relational work. It argues that this form of surrogate motherhood within close interpersonal relations can be conceptualised through the relational work involved in hosting a child for the intended parents. The article explores how relational work in this context implies an embodied, asymmetrical and far-reaching sense of responsibility that surrogate mothers describe as characteristic of their surrogacy experience. In this way, the article sheds light on feminist concerns about surrogacy as an embodied and objectifying work of women while at the same time illuminating how surrogate mothers respond to the intended parents in light of their pre-surrogacy relationship, how meanings are negotiated by them and how relationships are managed during the pregnancy.

  • 22.
    Slatman, Jenny
    et al.
    Maastricht University, Netherlands.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Devisch, Ignaas
    University of Ghent, Belgium.
    Can You Restore My "Own" Body? A Phenomenological Analysis of Relational Autonomy2016In: American Journal of Bioethics, ISSN 1526-5161, E-ISSN 1536-0075, Vol. 16, no 8, p. 18-20Article in journal (Other academic)
    Abstract [en]

    n/a

  • 23.
    Malmqvist, Erik
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Concluding reflections: bodily exchanges as sharing2016In: Bodily exchanges, bioethics and border crossing: perspectives on giving, selling and sharing bodies / [ed] Erik Malmqvist, Kristin Zeiler, London and New York: Routledge, 2016, p. 197-207Chapter in book (Refereed)
  • 24.
    Munthe, Christian
    et al.
    Göteborgs universitet.
    Broström, Linus
    Lunds universitet.
    Brülde, Bengt
    Göteborgs universitet.
    Cutas, Daniela
    Umeå och Göteborgs universitet.
    Eriksson, Stefan
    Uppsala universitet.
    Helgeson, Gert
    Karolinska institutet.
    Juth, Niklas
    Karolinska institutet.
    Kihlbom, Ulrik
    Uppsala universitet.
    Malmqvist, Erik
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences. Göteborg och Borås.
    Sandman, Lars
    Linköping University, Department of Medical and Health Sciences, Division of Health Care Analysis. Linköping University, Faculty of Medicine and Health Sciences. University of Borås, Sweden.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Johansson, Mats
    Lunds universitet.
    Efter skandalen: ”Gråzoner sätt att blanda bort korten”2016In: Svenska Dagbladet, ISSN 1101-2412Article in journal (Other (popular science, discussion, etc.))
    Abstract [sv]

    Efter skandalen kring kirurgen på Karolinska Institutet som gjorde experimentella operationer, talas det om gråzoner i lagen. Men detta stämmer inte, utan är ett sätt att blanda bort korten, skriver en rad professorer från sex olika universitet gemensamt.

  • 25.
    Zbikowski, Anke
    et al.
    Linköping University, Department of Clinical and Experimental Medicine, Division of Clinical Sciences. Linköping University, Faculty of Medicine and Health Sciences. Department for Obstetrics and Gynecology, Ryhov County Hospital, Jönköping, Sweden .
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Swahnberg, Katarina
    Linköping University, Department of Clinical and Experimental Medicine, Division of Clinical Sciences. Linköping University, Faculty of Medicine and Health Sciences. Department of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden .
    Forum Play as a method for learning ethical practice: A qualitative study among Swedish health-care staff2016In: Clinical Ethics, ISSN 1477-7509, E-ISSN 1758-101X, Vol. 11, no 1, p. 9-18Article in journal (Refereed)
    Abstract [en]

    Background: In Scandinavia 13–28% of gynecology patients have experienced abuse in health care in their life time, which contradicts the ethical obligations not to harm the patient and to protect the patient's dignity. Concerning learning to act ethically, scholars have emphasized the importance of combining theoretical and practical dimensions. This article explores Forum Play as a way of learning to act ethically in abusive situations in health care.

    Method: Ten health-care workers participating in a Forum Play course took part in this study. To explore participants' experiences of Forum Play, semi-structured interviews were conducted and processed by using the grounded theory analysis techniques of coding and constant comparison.

    Results: The analysis resulted in the core category “developing response–ability.” It encompasses the processes bringing about the ability to respond adequately to situations where abuse occurs and the conditions for these processes, as well as the participants' achieved understanding of the third person's potential to act in a situation with a power imbalance. Forum Play allows participants to reflect on both verbal and body language, and gives them time to enact and think through issues of moral agency.

    Conclusion: The simulated reality of Forum Play offers a platform where learning to act ethically in abusive situations in health care is facilitated by providing a safe space, suspending constricting structural conditions such as hierarchies and lack of time, fostering moral imagination, allowing creativity in developing and trying out a variety of acting alternatives, and reflecting upon the observed and experienced situation.

  • 26.
    Malmqvist, Erik
    et al.
    Linköping University, The Tema Institute, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, The Tema Institute, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Introduction2016In: Bodily Exchanges, Bioethics and Border Crossing: Perspectives on Giving, Selling and Sharing Bodies / [ed] Erik Malmqvist, Kristin Zeiler, London and New York: Routledge, 2016, p. 1-18Chapter in book (Refereed)
  • 27.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Relational ontology and ethics in online organ solicitation: the problem of sharing one's body when being touched online2016In: Bodily exchanges, bioethics and border crossing: Perspectives on Giving, Selling and Sharing Bodies / [ed] Erik Malmqvist and Kristin Zeiler, Abingdon: Routledge, 2016, p. 119-134Chapter in book (Other academic)
  • 28.
    Guntram, Lisa
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    ‘You have all those emotions inside that you cannot show because of what they will cause’: Disclosing the absence of one’s uterus and vagina2016In: Social Science and Medicine, ISSN 0277-9536, E-ISSN 1873-5347, Vol. 167, p. 63-70Article in journal (Refereed)
    Abstract [en]

    This article examines young women's experiences of telling others that they have no uterus and no, or a so-called small, vagina – a condition labelled ‘congenital absence of uterus and vagina’, which falls within the larger category of ‘atypical’ sex development. Our aim is to investigate how affective dissonances such as fear and frustration are expressed in young women's narratives about letting others know about their ‘atypical’ sex development, and how these women narrate desired steps to recognition. By drawing on feminist writings on the performativity of affects or emotions, we examine what affective dissonances accomplish within three identified narratives: how affective dissonances may contribute to the women's positioning of themselves vis-à-vis other individuals and how affective dissonances can imply a strengthening and/or questioning of norms about female embodiment and heterosexuality. This allows us to tease out how routes for questioning of these norms become available through the three narratives that together form a storyline of coming out about a congenital absence of a uterus and vagina in the Swedish context. Furthermore, by demonstrating how others' responses shape the women – their understandings of their own bodies, their envisaged future disclosures and their relations – our analysis highlights the multifaceted intersubjective and in other ways relational, affective and temporal dimensions of coming out about one's 'atypical' sex development.

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  • 29.
    Zeiler, Kristin
    Linköping University, The Tema Institute, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    A phenomenological approach to the ethics of transplantation medicine: sociality and sharing when living-with and dying-with others2014In: Theoretical Medicine and Bioethics, ISSN 1386-7415, E-ISSN 1573-0980, Vol. 35, no 5, p. 369-388Article in journal (Refereed)
    Abstract [en]

    Recent years have seen a rise in the number of sociological, anthropological, and ethnological works on the gift metaphor in organ donation contexts, as well as in the number of philosophical and theological analyses of giving and generosity, which has been mirrored in the ethical debate on organ donation. In order to capture the breadth of this field, four frameworks for thinking about bodily exchanges in medicine have been distinguished: property rights, heroic gift-giving, sacrifice, and gift-giving as aporia. Unfortunately, they all run into difficulties in terms of both making sense of the relational dimensions of postmortem and live organ donations and being normatively adequate in the sense of shedding light and providing guidance on ethical concerns when body parts are donated. For this reason, this article presents a phenomenological framework of giving-through-sharing, based on Maurice Merleau-Pontys philosophy. This framework makes sense of relational dimensions of postmortem and live organ donation. It also sheds light on three highly debated concerns in organ donation ethics: indebtedness on the part of recipients, the fact that some live donors do not experience donation as a matter of choice, and the potentially painful experience of donors relatives, who need to make decisions about postmortem organ donation at a time of bereavement. It can indirectly support what may be called a normalization of bodily exchanges in medicine.

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  • 30.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences. Uppsala University, Sweden.
    A philosophical defense of the idea that we can hold each other in personhood: intercorporeal personhood in dementia care2014In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, no 1, p. 131-141Article in journal (Refereed)
    Abstract [en]

    Since John Locke, regnant conceptions of personhood in Western philosophy have focused onindividual capabilities for complex forms of consciousness that involve cognition such as thecapability to remember past events and one’s own past actions, to think about and identify oneself asoneself, and/or to reason. Conceptions of personhood such as this one qualify as cognition-oriented,and they often fail to acknowledge the role of embodiment for personhood. This article offers analternative conception of personhood from within the tradition of phenomenology of the body. Thearticle presents a phenomenological analysis of joint musical activity in dementia care and outlines anintercorporeal conception of personhood based on this analysis. It also provides a philosophical basisfor the idea that others can hold us in personhood and it questions a strict one-body-one-person logicthat has pertained in much personhood debate.

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  • 31.
    Folkmarson Käll, Lisa
    et al.
    Linköping University, Department of Culture and Communication, Arts and Humanities. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, The Tema Institute, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Bodily Relational Autonomy2014In: Journal of consciousness studies, ISSN 1355-8250, E-ISSN 2051-2201, Vol. 21, no 9-10, p. 100-120Article in journal (Refereed)
    Abstract [en]

    Conceptions of autonomy in western philosophy and ethics have often centred on self-governance and self-determination. However, a growing bulk of literature also questions such conceptions, including the understanding of the autonomous self as a self-governing independent individual that chooses, acts, and lives in accordance with her or his own values, norms, or sense of sell This article contributes to the critical interrogation of selfhood, autonomy, and autonomous decision making by combining a feminist focus on relational dimensions of selfhood and autonomy with phenomenological philosophy of the embodied self as being-in-the-world. It offers a philosophical investigation of different dimensions of bodily relational autonomy by turning to phenomenological accounts of the lived body as self-reflexive. When so doing, we hope to contribute to bridging the gap that sometimes exists between discussions of autonomy in analytic moral philosophy and of freedom and facticity in phenomenological philosophy. We see this gap as unfortunate, and hold that a nuanced understanding of autonomy and autonomous decision making can be reached if these strands of philosophy are brought into dialogue.

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  • 32.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences.
    Correction: Neither property right nor heroic gift, neither sacrifice nor aporia: the benefit of the theoretical lens of sharing in donation ethics (vol 13, pg 225, 2010) in MEDICINE HEALTH CARE AND PHILOSOPHY vol 17, Issue 2, pg 3212014In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, no 2, p. 1p. 321-321Article in journal (Other academic)
    Abstract [en]

    n/a

  • 33.
    Zeiler, Kristin
    et al.
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences. Uppsala University, Sweden.
    Malmquist, Anna
    Linköping University, Department of Behavioural Sciences and Learning, Psychology. Linköping University, Faculty of Arts and Sciences.
    Lesbian Shared Biological Motherhood: The Ethics of IVF with Reception of Oocytes from Partner2014In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, no 3, p. 347-355Article in journal (Refereed)
    Abstract [en]

    IVF with ROPA (Reception of Oocytes from Partners) allows lesbian mothers to share biological motherhood. The gestational mother receives an egg from her partner who becomes the genetic mother. This article examines the ethics of IVF with ROPA with a focus on the welfare of the woman and the resulting child, on whether ROPA qualifies as a "legitimate" medical therapy that falls within the goals of medicine, and on the meaning and value attributed to a biologically shared bond between parents and child. We also contrast IVF with ROPA with egg donor IVF for heterosexual couples and intrafamilial live uterus transplantation with IVF, and show how Swedish legislation makes certain ways of sharing biological bonds out of place. In Sweden, IVF with ROPA is illegal, egg donor IVF for heterosexual couples is allowed and practiced as is sperm donor IVF for lesbians, and live uterus transplantation is performed within a research project (though not allowed in regular health care). But is ROPA really ethically more problematic than these other cases? The article argues that IVF with ROPA gives rise to fewer ethical questions than does live uterus transplantation with IVF and, in some cases, egg donor IVF.

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  • 34.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences.
    Neither property right nor heroic gift, neither sacrifice nor aporia: the benefit of the theoretical lens of sharing in donation ethics2014In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, no 2, p. 171-181Article in journal (Refereed)
    Abstract [en]

    Two ethical frameworks have dominated the discussion of organ donation for long: that of property rights and that of gift-giving. However, recent years have seen a drastic rise in the number of philosophical analyses of the meaning of giving and generosity, which has been mirrored in ethical debates on organ donation and in critical sociological, anthropological and ethnological work on the gift metaphor in this context. In order to capture the flourishing of this field, this article distinguishes between four frameworks for thinking about bodily exchanges in medicine: those of property rights, heroic gift-giving, sacrifice, and gift-giving as aporia. These frameworks represent four different ways of making sense of donation of organs as well as tissue, gametes and blood, draw on different conceptions of the relations between the self and the other, and bring out different ethical issues as core ones. The article presents these frameworks, argues that all of them run into difficulties when trying to make sense of reciprocity and relational interdependence in donation, and shows how the three gift-giving frameworks (of heroism, sacrifice and aporia) hang together in a critical discussion about what is at stake in organ donation. It also presents and argues in favour of an alternative intercorporeal framework of giving-through-sharing that more thoroughly explicates the gift metaphor in the context of donation, and offers tools for making sense of relational dimensions of live and post mortem donations.

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  • 35.
    Zeiler, Kristin
    et al.
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Guntram, Lisa
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Sexed embodiment in atypical pubertal development: intersubjectivity, excorporation and the importance of making space for difference2014In: Feminist phenomenology and medicine / [ed] Kristin Zeiler, Lisa Folkmarson Käll, New York: State University of New York, 2014, p. 141-159Chapter in book (Refereed)
  • 36.
    Folkmarson Käll, Lisa
    et al.
    Uppsala University, Sweden.
    Zeiler, Kristin
    Linköping University, Department of Thematic Studies, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Why feminist phenomenology and medicine?2014In: Feminist phenomenology and medicine / [ed] Kristin Zeiler och Lisa Folkmarson Käll, New York: State University of New York, 2014, p. 1-25Chapter in book (Refereed)
  • 37.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences.
    A phenomenology of excorporation, bodily alienation and resistance: rethinking sexed and racialized embodiment2013In: Hypatia, ISSN 0887-5367, E-ISSN 1527-2001, Vol. 28, no 1, p. 69-84Article in journal (Refereed)
    Abstract [en]

    The article examines how some culturally shared and corporeally enacted beliefs and norms about sexed and racialized embodiment can form embodied agency, and this with the aid of the concepts of incorporation and excorporation. It discusses how the phenomenological concept of excorporation can help us examine painful experiences of how one's lived body breaks in the encounter with others. The article also examines how a continuous excorporation can result in bodily alienation, and what embodied resistance can mean when one has undergone or undergoes excorporation. Elaborating on the work of, among others, Maurice Merleau-Ponty, Martin Heidegger, Drew Leder, and Sarah Ahmed, I discuss incorporation and excorporation of beliefs and norms regarding sexual difference, such as beliefs and norms regarding female and male embodiment, through a reading of Jeffrey Eugenides' novel Middlesex. I also suggest that it is useful to understand the postcolonial scholar Frantz Fanon's narrative of how he could not but attend to his own skin color while living in France in the 1940s and 1950s, in terms of excorporation. Whereas these are different narratives in many ways, I regard them as helpful for clarifying what excorporation implies and what analytic work this concept can enable.

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  • 38.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Division of Health and Society. Linköping University, Faculty of Arts and Sciences.
    Special Section on Sex and Surgery: Doing sex and feminist theory2013In: Feminist Theory, ISSN 1464-7001, E-ISSN 1741-2773, Vol. 14, no 1, p. 57-63Article in journal (Refereed)
    Abstract [en]

    n/a

  • 39.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Bringing the lived body to medical ethics education: learning to see the suffering other2012In: Reconceiving medical ethics / [ed] Christopher Cowley, London: Continuum, 2012, p. 44-55Chapter in book (Other academic)
    Abstract [en]

    Virtue ethical approaches, with their foci on the character of the moral subject, on motivations, emotions and relationships, can enable ethics in medicine and provide fuller ethical examinations and more context-sensitive and creative solutions than can principle-based or consequentialist reasoning alone. Such reasoning can explain the persistent interest with moral virtues in medicine. Virtue ethics is seen as a valuable alternative to other ways of grappling with moral dilemmas in medicine, where a number of principles have been applied to particular cases with some considerations of possible consequences of different actions (see Pellegrino 2001, Bolsin et al . 2005, Gardiner 2003, Thomasma 2000, Tong 1998). Though the latter frameworks give valuable ethical insights, they have their limits in terms of how different principles should be valued and weighted against each other. Virtue ethical approaches are commonly concerned with the subject becoming virtuous. This requires time and continuous practice. It involves habituation. In this regard, the development of virtues shares features with the development of practical skills. In both cases, we learn by doing. Despite the fact that the learning of practical skills is an interest for phenomenologists such as Maurice Merleau-Ponty (2006), surprisingly little dialogue has taken place between virtue ethics and phenomenological traditions. Such a dialogue will arise in this text. A phenomenological analysis can deepen our understanding of how the practical know-how of virtues can feed into the subject ’ s embodied existence and perception. It can throw new light on the debated phenomenon of moral perception. And it can matter for medical ethics education. A few previous studies have elaborated a phenomenology of virtue that examines what it is like to be a virtuous person (Annas 2008) or out lined a phenomenology of skill-acquisition where acting ethically is seen as a skill (Dreyfus and Dreyfus 2004). Such studies have contributed with insights as regards the role of moral know-how in moral development. They have not, however, examined bodily dimension of learning to act ethically and becoming virtuous, in any detail. This will be done here. My aim is to examine, phenomenologically, the role of the body when becoming virtuous and what incorporation of virtues-as-skills would mean for perception . This can further explain the phenomenon of moral perception, contribute to the discussion of alternative approaches to medical ethics and particularly so to the discussion of ethical competence and the learning of ethics in medical education. The text consists of five parts. I start by briefly outlining a virtue ethical approach to medical practice along the lines of Alasdair MacIntyre (1981) and Edmund Pellegrino (1995, 2001). In this reasoning, medicine is seen as a moral practice and an activity through which certain goods, that are internal to the practice, are reached. Virtues are defined in relation to the practice, as learned qualities that promote the achievement of the internal goods of the practice. This enables a discussion of what virtues health care professionals preferably should develop in order for them to achieve the internal goods of medicine. It also opens up a discussion of moral perception in medicine, and the second part contains a short discussion of moral perception and the benefit of seeing virtues-as-skills. The third part turns to phenomenology of the body and presents some core concepts in this perspective. In the fourth part, I examine the role of the body when becoming virtuous and the fifth part examines what it would mean to say that virtues-as-skills should be incorporated, for moral perception.

  • 40.
    Zbikowski, Ancke
    et al.
    Linköping University, Department of Clinical and Experimental Medicine, Gender and medicine. Linköping University, Faculty of Health Sciences.
    Brüggemann, Adrianus Jelmer
    Linköping University, Department of Clinical and Experimental Medicine, Gender and medicine. Linköping University, Faculty of Health Sciences.
    Wijma, Barbro
    Linköping University, Department of Clinical and Experimental Medicine, Gender and medicine. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Center of Paediatrics and Gynaecology and Obstetrics, Department of Gynaecology and Obstetrics in Linköping.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Swahnberg, Katarina
    Linköping University, Department of Clinical and Experimental Medicine, Gender and medicine. Linköping University, Faculty of Health Sciences.
    Ethical guidelines and the prevention of abuse in healthcare2012In: European Journal of Obstetrics, Gynecology, and Reproductive Biology, ISSN 0301-2115, E-ISSN 1872-7654, Vol. 165, no 1, p. 18-28Article, review/survey (Refereed)
    Abstract [en]

    Objective

    In obstetrical and gynaecological healthcare, patients often find themselves in a vulnerable position. Sensitive issues such as sexual and reproductive health are addressed and certain procedures can be experienced as abusive. According to research a lifetime prevalence of abuse in healthcare (AHC) can be assumed for 13–28% of female patients in the Nordic countries. In the present study we analyse the content of ethical documents for healthcare professionals within obstetrics and gynaecology in Sweden, in order to find out to what extent ethicalguidelines consider issues that have shown to be related to the occurrence of AHC.

    Study design

    We searched the literature to find empirical data on AHC. Guidelines for nurses, midwives and physicians were selected. After developing an analytical framework based on the empirical data the content of the ethicalguidelines was analysed.

    Results

    The various ethicalguidelines for staff working within obstetrics and gynaecology differ distinctively from each other regarding their content of issues that are related to AHC. Issues that were mostly disregarded were: considering the patient's perspective and the patients’ possible experience of violence, considering power imbalances within healthcare, sexual misconduct, how to deal with other professional's ethical misconduct and how professionals relate to each other. We found the ethicalguidelines of the International Federation of Gynecology and Obstetrics (FIGO) and of the International Confederation of Midwives to be those which contained most of the issues that have empirically shown to be important in regard to AHC.

    Conclusion

    While staff members from different professions may share responsibility for the same patient, their ethicalguidelines vary considerably. To become a possible resource for prevention of AHC, we suggest that ethicalguidelines in healthcare should be revised following empirical research on ethical conduct. As ethicalguidelines cannot be effective by their existence only, we would like to initiate a discussion on the function and use of ethicalguidelines in general and regarding AHC in particular. Being aware that ethicalguidelines are only a part of ethics in healthcare, however, we envision a broader approach to the aim of preventing AHC, where research is encouraged on how a virtue ethics approach could be applied.

  • 41.
    Zeiler, Kristin
    et al.
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Wickström, Anette
    Linköping University, Department of Culture and Communication, Arts and Humanities. Linköping University, Faculty of Arts and Sciences.
    Varför ifrågasätts inte andra icke-medicinska ingrepp?2012In: Svenska dagbladet, ISSN 1101-2412, no 7/1Article in journal (Other (popular science, discussion, etc.))
  • 42.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Weil2012In: Filosofi och medicin: från Platon till Foucault / [ed] Lennart Nordenfelt, Stockholm: Thales, 2012, p. 217-231Chapter in book (Other academic)
  • 43.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    With Levinas against Levinas: Steps Towards a Phenomenological Ethics of Bodily Giving in Medicine2012In: The Body as Gift, Resource and Commodity: Exchanging Organ, Tissues and Cells in the 21st Century / [ed] Martin Gunnarson, Fredrik Svenaeus, Huddinge: Södertörns högskola , 2012, p. 31-57Chapter in book (Other academic)
    Abstract [en]

    Departing from three metaphors—the body as gift, resource, and commodity—the book explores the contemporary exchange of organs, tissues, and cells. Although the gift is the sanctioned metaphor for donating parts of the body, the underlying perspective from the side of states, authorities, and the medical establishment often seems to be that the body shall be understood as a resource. But medicine, as some of the contributors to this book show, is not sealed off from the market economy. Increasingly, therefore, body parts become commodities on legal as well as illegal markets.

    The chapters of the book are arranged in a way that presents, one after the other, the three metaphors of the body, starting with the body as gift, proceeding by way of the body as resource, and ending in the body as commodity. Although all three metaphors as ways of conceptualizing and making use of the human body can be found throughout human history, the present drive of commercialization will increasingly force us to identify and scrutinize the way these metaphors are used. Not only in addressing the fascinating question of what kind of an object (subject) the human body is, but also in trying to decipher what interests lurk behind the use of the metaphors in question when claiming that human bodies, organs, tissues, and cells are gifts, resources or commodities. The ambition of this volume is to address and remedy the need of a hermeneutics not only of depth, but also of suspicion, in the case of organ transplantation and other medical technologies involving the transfer of human tissues and cells.

  • 44.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    Kroppens etik: Levinas och det kroppsliga givandets etik2011In: Människan sedd: genom olika vetenskapliga prismor / [ed] Matz Hammarström, Elisabeth Gerle och Peter Gärdenfors, Nora: Bokförlaget Nya Doxa, 2011, p. 153-171Chapter in book (Other academic)
    Abstract [sv]

    Hur ser vetenskapen på människan 150 år efter Darwins Om arternas ursprung?Är hon fortfarande skapelsens krona, eller bara ett djur som styrs av själviska gener?Och hur är det med hennes förnuft? Är det dags att nedgradera dess betydelse?Slår evolutionsläran undan benen för all form av gudstro eller finns det en möjlighet till fredlig samexistens mellan religion och darwinism? Kan idén om det "naturliga urvalet" hjälpa oss att förstå förändringsprocesser i samhället lika väl som i naturen? Går det att förena en humanistisk och en biologistisk syn på människan?I boken, som är en del i det samtal mellan olika positioner som blir allt viktigare, hävdas att evolutionsläran åtminstone är glasklar på enpunkt: den ger inget utrymme för rasistiska spekulationer om olika etniska gruppers olika värde.Möt den mångfasetterade människan, sedd genom ett antal olika vetenskapliga prismor.Människan sedd genom olika vetenskapliga prismor

  • 45.
    Zeiler, Kristin
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Arts and Sciences.
    A phenomenological analysis of bodily self-awareness in the experience of pain and pleasure: on dys-appearance and eu-appearance2010In: MEDICINE HEALTH CARE AND PHILOSOPHY, ISSN 1386-7423, Vol. 13, no 4, p. 333-342Article in journal (Refereed)
    Abstract [en]

    The aim of this article is to explore nuances within the field of bodily self-awareness. My starting-point is phenomenological. I focus on how the subject experiences her or his body, i.e. how the body stands forth to the subject. I build on the phenomenologist Drew Leders distinction between bodily dis-appearance and dys-appearance. In bodily dis-appearance, I am only prereflectively aware of my body. My body is not a thematic object of my experience. Bodily dys-appearance takes place when the body appears to me as "ill" or "bad." This is often the case when I experience pain or illness. Here, I will examine three versions of bodily dys-appearance. Whereas many phenomenological studies have explored cases of bodily dys-appearance, few studies have focused on the opposite of bodily dys-appearance, i.e. on bodily modes of being where the body appears to the subject as something good, easy or well. This is done in this article. When the body stands forth as good, easy or well to the subject, I suggest that the body eu-appears to this person. The analysis of eu-appearance shows that the subject can attend to her or his body as something positive and that this attention need not result in discomfort or alienation. Eu-appearance can take place in physical exercise, in sexual pleasure and in some cases of wanted pregnancies. I also discuss, briefly, the case of masochism.

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  • 46.
    Zeiler, Kristin
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Medical and Health Sciences, Health and Society.
    Case. Parental living kidney donation2010In: Teaching Ethics in Organ Transplantation and Tissue Donation - Cases and Movies / [ed] Eds. S. Schicktanz, C. Wieseman, S. Wöhlke, in cooperation with A Carmi UNESCO Chair in Bioethics, Göttingen: Göttingen University Press , 2010, p. 19-20Chapter in book (Other (popular science, discussion, etc.))
  • 47.
    Malmqvist, Erik
    et al.
    Linköping University, The Tema Institute, Technology and Social Change. Linköping University, Faculty of Arts and Sciences.
    Zeiler, Kristin
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Medical and Health Sciences, Health and Society.
    Cultural Norms, the Phenomenology of Incorporation and the Experience of Having a Child Born with Ambiguous Sex.2010In: Social Theory and Practice, ISSN 0037-802X, E-ISSN 2154-123X, Vol. 36, no 1, p. 133-156Article in journal (Refereed)
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  • 48.
    Zeiler, Kristin
    et al.
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Health Sciences.
    Guntram, Lisa
    Linköping University, Department of Medical and Health Sciences, Health and Society. Linköping University, Faculty of Health Sciences.
    Lennerling, Anette
    Sahlgrenska sjukhuset, Göteborg.
    Moral tales of parental living kidney donation: a parenthood moral imperative and its relevance for decision making2010In: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 13, no 3, p. 225-236Article in journal (Refereed)
    Abstract [en]

    Free and informed choice is an oft-acknowledged ethical basis for living kidney donation, including parental living kidney donation. The extent to which choice is present in parental living kidney donation has, however, been questioned. Since parents can be expected to have strong emotional bonds to their children, it has been asked whether these bonds make parents unable to say no to this donation. This article combines a narrative analysis of parents' stories of living kidney donation with a philosophical discussion of conditions for parental decision-making. Previous research has shown that parents often conclude that it is "natural" to donate. Our study shows that this naturalness needs to be understood as part of a story where parental living kidney donation is regarded as natural and as a matter of non-choice. Our study also highlights the presence of a parenthood moral imperative of always putting one's child's needs before one's own. On the basis of these results, we discuss conditions for decision-making in the context of parental LKD. We argue that the presence of a parenthood moral imperative can matter with regard to the decision-making process when parents consider whether to volunteer as living kidney donors, but that it need not hamper choice. We emphasise the need for exploring relational and situational factors in order to understand parental decision-making in the context of parental LKD.

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  • 49.
    Zeiler, Kristin
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Medical and Health Sciences, Health and Society.
    Simone Weil - personen, det heliga och etiken2010In: På Spaning: från Svenska kyrkans forskardagar 2009 / [ed] Hanna Stenström, Stockholm: Verbum , 2010, p. 117-132Chapter in book (Other academic)
    Abstract [sv]

    På spaning: från Svenska kyrkans forskardagar 2009. Detta är tredje delen i en forskningsserie som vänder sig till alla inom kyrka och akademi, baserad på Svenska kyrkans forskardagar för kyrkorelevant forskning 2009. Boken fokuserar kring fyra stora utmaningar: utmaningar i möten med den Andre, utmaningar i möten med samhället, utmaningar i möten mellan kyrkan och dess medlemmar, och slutligen utmaningar i möten mellan nutid och tradition. Bland skribenterna märks Jesper Svartvik, Kristin Zeiler, Kjell-Åke Nordquist, Sara Gehlin, Jan-Olof Aggedal, Kerstin Wimmer, Robert K Johnston, Elisabeth Gerle m fl.

  • 50.
    Zeiler, Kristin
    Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Medicine and Health Sciences, Health and Society.
    Teologi för livets slut: Om palliativ sedering.2010In: Svensk teologisk kvartalskrift, ISSN 0039-6761, Vol. 86, no 1, p. 22-28Article in journal (Refereed)
12 1 - 50 of 75
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