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  • 1.
    de Boer, Marjolein
    et al.
    Univ Oslo, Norway.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Slatman, Jenny
    Tilburg Univ, Netherlands.
    Sharing lives, sharing bodies: partners negotiating breast cancer experiences2019Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 22, nr 2, s. 253-265Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    By drawing on Jean-Luc Nancys philosophy of ontological relationality, this article explores what it means to be a we in breast cancer. What are the characteristicsthe extent and diversityof couples relationally lived experiences of bodily changes in breast cancer? Through analyzing duo interviews with diagnosed women and their partners, four ways of sharing an embodied life are identified. (1) While being different together, partners have different, albeit connected kinds of experiences of breast cancer. (2) While being there for you, partners take care of each other in mutually dependent ways. (3) While being reconnected to you, partners (re-)relate to each other through intimacy and sexuality. (4) While being like you, partners synchronize their embodied daily lives to one another, sometimes up to the point that the self cannot be distinguished from the other anymore. These ways reveal that being a we involves complex affective, bodily encounters in which the many fault lines that both separate partners into individual selves and join them together as a unity are continuously reshaped and negotiated. Being a we may be understood as something we have to do. Therefore, in being true to the legacy of Nancy, we argue at the end of this article for a sensible praxis of sharing a life and body, particularly in breast cancer.

  • 2.
    Guntram, Lisa
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    The Ethics of the Societal Entrenchment-approach and the case of live uterus transplantation-IVF2019Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    In 2014, the first child in the world was born after live uterus transplantation and IVF (UTx-IVF). Before and after this event, ethical aspects of UTx-IVF have been discussed in the medical and bioethical debate as well as, with varying intensity, in Swedish media and political fora. This article examines what comes to be identified as important ethical problems and solu-tions in the media debate of UTx-IVF in Sweden, showing specifically how problems, target groups, goals, benefits, risks and stakes are delineated and positioned. It also demonstrates how specific assumptions, norms and values are expressed and used to underpin specific positions within this debate, and how certain subjects, desires and risks become shrouded or simply omitted from it. This approach—which we label the Ethics of the Societal Entrenchment-approach, inspired by Koch and Stemerding (1994)—allows us to discuss how the identification of something as the problem helps to shape what gets to be described as a solution, and how specific solutions provide frameworks within which problems can be stated and emphasised. We also offer a critical discussion of whether some of these articulations and formations should be seen as ethically troubling, and if so, why.

  • 3.
    Murano, Maria Cristina
    et al.
    Linköpings universitet, Institutionen för kultur och kommunikation. Linköpings universitet, Filosofiska fakulteten. Medicine, Science, Health and Society (Cermes3), School for Advanced Studies in the Social Sciences (EHESS), Paris, France ; Center for Bioethics, Children’s Mercy Kansas City, Kansas City, MO, USA.
    Slatman, Jenny
    Department of Culture Studies, Tilburg University, Tilburg, The Netherlands.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    How sociophenomenology of the body problematises the ‘problem-oriented approach’ to growth hormone treatment2018Ingår i: Medical Humanities, ISSN 1468-215X, E-ISSN 1473-4265Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This article examines how people who are shorter than average make sense of their lived experience of embodiment. It offers a sociophenomenological analysis of 10 semistructured interviews conducted in the Netherlands, focusing on if, how, and why height matters to them. It draws theoretically on phenomenological discussions of lived and objective space, intercorporeality and norms about bodies. The analysis shows that height as a lived phenomenon (1) is active engagement in space, (2) coshapes habituated ways of behaving and (3) is shaped by gendered norms and beliefs about height. Based on this analysis, the article challenges what we label as the ‘problem-oriented approach’ to discussions about growth hormone treatment for children with idiopathic short stature. In this approach, possible psychosocial disadvantages or problems of short stature and quantifiable height become central to the ethical evaluation of growth hormone treatment at the expense of first-hand lived experiences of short stature and height as a lived phenomenon. Based on our sociophenomenological analysis, this paper argues that the rationale for giving growth hormone treatment should combine medical and psychological assessments with investigations of lived experiences of the child. Such an approach would allow considerations not only of possible risks or disadvantages of short stature but also of the actual ways in which the child makes sense of her or his height.

  • 4.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    On the Autós of Autonomous Decision Making: Intercorporeality, Temporality, and Enacted Normativities in Transplantation Medicine2018Ingår i: Existential Medicine: Essays on Health and Illness / [ed] Kevin Aho, London and New York: Rowman & Littlefield International, 2018, s. 81-100Kapitel i bok, del av antologi (Refereegranskat)
    Abstract [en]

    This chapter brings phenomenological philosophy to bioethics debates about decision-making in transplantation medicine in general and parental live kidney donation in specific. It clarifies why both discussions of parental live kidney donation in terms of coercion (Kärrfelt et al 2004) and as “indicative” of parents’ autonomy (if it expresses what they want or who they want to be, see Crouch and Elliot 1999) fail to make sense of the complexity of the situation. Noting that the rich literature that explores relational aspects of subjectivity and conceptualises autonomous individuals as making decisions situated within and dependent on particular social contexts (see Freeman 2011; Donchin 2001; Mackenzie and Stoljars 2000; Christman 1998; Friedman 1997) still rarely addresses the role of the body, the chapter also addresses the role of embodiment for perception and choice. It argues for the need to think-through what may be labelled as the autós of autonomy and, more precisely, the focus on one’s own, the same/sameness, oneself or one’s self that has come to characterise much autonomy discussions, via phenomenological philosophy.

    The chapter is divided into three parts. First, I make use of the phenomenological understanding of the intercorporeal self as being-in-the-world, in a discussion of how pain, fear or bodily symptoms of ESRD that unfolds in the shared space of child and parent can shape both of them in relation to each other (c.f. Käll 2013; Zeiler 2014a), feed into their bodily style of being-together, and help form parents’ perception of actions ‘within’ reach for them. Second, I shift the focus from the parent–child dyad to the larger semiotic–material context of haemodialysis and kidney transplantation in Sweden. This allows for an examination of embodied and enacted normativities, through an engagement with what Martin Gunnarson (2016: 128) has identified as a ‘dominant […] orientation towards transplantation’ in Sweden and Latvia. This second part also combines the discussion of an orientation towards transplantation with that of how norms about parenthood may be incorporated and excorporated into parents’ lived bodies,4 thereby making it possible to show why the no-choice theme in previous empirical work is understandable but more disconcerting than may first be assumed. Third, I argue that the acknowledgement of intercorporeal dimensions of bodily existence (argued for in Part I) and the role of orientation (argued for in Part II) demonstrates the need for a thinking-through of the autós of autonomous decision making, i.e. the understanding of the ‘ownness’ of this decision making, in ways other than those argued for in much of the bioethical autonomy and relational autonomy literature.

  • 5.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Teenage Girlhood and Bodily Agency: On Power, Weight, Dys-Appearance and Eu-Appearance in a Norwegian Lifestyle Programme2018Ingår i: Indo-Pacific Journal of Phenomenology, ISSN 2079-7222, E-ISSN 1445-7377, Vol. 8, nr 1, s. 1-14Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Despite the growing literature on childhood obesity and lifestyle intervention programmes focusing on weight loss, few studies have examined young persons’ experiences of being identified as candidates for such programmes and of participating in them. This paper does so. Juxtaposing insights from phenomenology with an approach inspired by Foucault, the paper shows how teenage girls’ bodily self-perception and bodily self-awareness are shaped in intercorporeal assemblages comprising other people and specific features or elements of the lifestyle programme.

    Inspired by van Manen’s hermeneutic-phenomenological approach, with its point of departure in lived experience, this paper draws on interviews with Norwegian teenage girls participating in the same lifestyle programme and identifies three core thematic aspects of the girls’ experiences: being identified as a candidate for a lifestyle programme and not wanting this; negotiating the lack of weight loss and the scales; and bodily situated agency – feeling good and being able. Permeating all three themes are two central, interrelated phenomena: agency and resistance. Furthermore, the paper shows how a combination of Foucauldian insights and a phenomenological understanding of intercorporeality can help to shed light on the power, affective, material and temporal dimensions of dys-appearance (i.e., when one’s body appears as bad or wrong), as well as those of eu-appearance (i.e., when one’s body appears as healthy or strong), and thus contribute to the understanding of the girls’ narrated lived experiences.

    On the basis of these findings, we argue that weight-related treatment goals are not necessarily compatible with the strengthening of adolescents’ body images and self-esteem. However, whilst being obliged to attend to their bodies while in the programme, the girls also encountered unexpected, positive bodily feelings and experiences. Such events, we suggest, offer a means of resisting the more troubling dys-appearing bodily situations our participants described so powerfully.

  • 6.
    Van Parys, Hanna
    et al.
    Psychology and Educational Sciences, Ghent University, Belgium.
    Provoost, Veerle
    Bioethics Institute Ghent, Ghent University, Belgium.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Medicinska fakulteten.
    De Sutter, Petra
    Ghent University Hospital, Ghent, Belgium.
    Pennings, Guido
    Bioethics Institute Ghent, Ghent University, Belgium.
    Buysse, Ann
    Psychology and Educational Sciences, Ghent University, Belgium.
    Constructing and enacting kinship in sister-to-sister egg donation families: a multi-family member interview study2017Ingår i: Sociology of Health and Illness, ISSN 0141-9889, E-ISSN 1467-9566, Vol. 39, nr 6, s. 847-862Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Although intra-familial egg donation has been practiced for more than 15 years in several countries, little is known about family relationships in this family type. Framed within the new kinship studies, this article focuses on the experiential dimension of kinship in sister-to-sister egg donation families: how is kinship unpacked and reconstructed in this specific family constellation? Qualitative data analysis of interviews with receiving parents, their donating sisters and the donor children revealed six themes: (1) being connected as an extended family; (2)disambiguating motherhood; (3) giving and receiving as structuring processes; (4) acknowledging and managing the special link between donor and child; (5)making sense of the union between father and donor; and (6) kinship constructions being challenged. This study showed the complex and continuous balancing of meanings related to the mother-child dyad, the donor-child dyad and the donor-father dyad. What stood out was the complexity of, on the one hand cherishing the genetic link with the child allowed by the sisters egg donation, while, on the other, managing the meanings related to this link, by, for instance, acknowledging, downsizing, symbolising, and differentiating it from the mother-child bond. (A Virtual Abstract of this paper can be accessed at: https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA))

  • 7.
    Toledano, Sarah
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten. Uppsala University, Sweden.
    Hosting the others child? Relational work and embodied responsibility in altruistic surrogate motherhood2017Ingår i: Feminist Theory, ISSN 1464-7001, E-ISSN 1741-2773, Vol. 18, nr 2, s. 159-175Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Studies on surrogate motherhood have mostly explored paid arrangements through the lens of a contract model, as clinical work or as a maternal identity-building project. Turning to the under-examined case of unpaid, so-called altruistic surrogate motherhood and based on an analysis of interviews with women who had been unpaid surrogate mothers in a full gestational surrogacy with a friend or relative in Canada, the United States or Australia, this article explores altruistic surrogate motherhood as relational work. It argues that this form of surrogate motherhood within close interpersonal relations can be conceptualised through the relational work involved in hosting a child for the intended parents. The article explores how relational work in this context implies an embodied, asymmetrical and far-reaching sense of responsibility that surrogate mothers describe as characteristic of their surrogacy experience. In this way, the article sheds light on feminist concerns about surrogacy as an embodied and objectifying work of women while at the same time illuminating how surrogate mothers respond to the intended parents in light of their pre-surrogacy relationship, how meanings are negotiated by them and how relationships are managed during the pregnancy.

  • 8.
    Slatman, Jenny
    et al.
    Maastricht University, Netherlands.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Devisch, Ignaas
    University of Ghent, Belgium.
    Can You Restore My "Own" Body? A Phenomenological Analysis of Relational Autonomy2016Ingår i: American Journal of Bioethics, ISSN 1526-5161, E-ISSN 1536-0075, Vol. 16, nr 8, s. 18-20Artikel i tidskrift (Övrigt vetenskapligt)
    Abstract [en]

    n/a

  • 9.
    Malmqvist, Erik
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Concluding reflections: Bodily exchanges as sharing2016Ingår i: Bodily Exchanges, Bioethics and Border Crossing: Perspectives on Giving, Selling and Sharing Bodies / [ed] Erik Malmqvist, Kristin Zeiler, London and New York: Routledge, 2016, s. 197-207Kapitel i bok, del av antologi (Refereegranskat)
  • 10.
    Munthe, Christian
    et al.
    Göteborgs universitet.
    Broström, Linus
    Lunds universitet.
    Brülde, Bengt
    Göteborgs universitet.
    Cutas, Daniela
    Umeå och Göteborgs universitet.
    Eriksson, Stefan
    Uppsala universitet.
    Helgeson, Gert
    Karolinska institutet.
    Juth, Niklas
    Karolinska institutet.
    Kihlbom, Ulrik
    Uppsala universitet.
    Malmqvist, Erik
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten. Göteborg och Borås.
    Sandman, Lars
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälso- och sjukvårdsanalys. Linköpings universitet, Medicinska fakulteten. University of Borås, Sweden.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Johansson, Mats
    Lunds universitet.
    Efter skandalen: ”Gråzoner sätt att blanda bort korten”2016Ingår i: Svenska Dagbladet, ISSN 1101-2412Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Efter skandalen kring kirurgen på Karolinska Institutet som gjorde experimentella operationer, talas det om gråzoner i lagen. Men detta stämmer inte, utan är ett sätt att blanda bort korten, skriver en rad professorer från sex olika universitet gemensamt.

  • 11.
    Zbikowski, Anke
    et al.
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för kliniska vetenskaper. Linköpings universitet, Medicinska fakulteten. Department for Obstetrics and Gynecology, Ryhov County Hospital, Jönköping, Sweden .
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Swahnberg, Katarina
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Avdelningen för kliniska vetenskaper. Linköpings universitet, Medicinska fakulteten. Department of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden .
    Forum Play as a method for learning ethical practice: A qualitative study among Swedish health-care staff2016Ingår i: Clinical Ethics, ISSN 1477-7509, E-ISSN 1758-101X, Vol. 11, nr 1, s. 9-18Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: In Scandinavia 13–28% of gynecology patients have experienced abuse in health care in their life time, which contradicts the ethical obligations not to harm the patient and to protect the patient's dignity. Concerning learning to act ethically, scholars have emphasized the importance of combining theoretical and practical dimensions. This article explores Forum Play as a way of learning to act ethically in abusive situations in health care.

    Method: Ten health-care workers participating in a Forum Play course took part in this study. To explore participants' experiences of Forum Play, semi-structured interviews were conducted and processed by using the grounded theory analysis techniques of coding and constant comparison.

    Results: The analysis resulted in the core category “developing response–ability.” It encompasses the processes bringing about the ability to respond adequately to situations where abuse occurs and the conditions for these processes, as well as the participants' achieved understanding of the third person's potential to act in a situation with a power imbalance. Forum Play allows participants to reflect on both verbal and body language, and gives them time to enact and think through issues of moral agency.

    Conclusion: The simulated reality of Forum Play offers a platform where learning to act ethically in abusive situations in health care is facilitated by providing a safe space, suspending constricting structural conditions such as hierarchies and lack of time, fostering moral imagination, allowing creativity in developing and trying out a variety of acting alternatives, and reflecting upon the observed and experienced situation.

  • 12.
    Malmqvist, Erik
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Introduction2016Ingår i: Bodily Exchanges, Bioethics and Border Crossing: Perspectives on Giving, Selling and Sharing Bodies / [ed] Erik Malmqvist, Kristin Zeiler, London and New York: Routledge, 2016, s. 1-18Kapitel i bok, del av antologi (Refereegranskat)
  • 13.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Relational ontology and ethics in online organ solicitation: the problem of sharing one's body when being touched online2016Ingår i: Bodily exchanges, bioethics and border crossing: Perspectives on Giving, Selling and Sharing Bodies / [ed] Erik Malmqvist and Kristin Zeiler, Abingdon: Routledge, 2016, s. 119-134Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 14.
    Guntram, Lisa
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    ‘You have all those emotions inside that you cannot show because of what they will cause’: Disclosing the absence of one’s uterus and vagina2016Ingår i: Social Science and Medicine, ISSN 0277-9536, E-ISSN 1873-5347, Vol. 167, s. 63-70Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This article examines young women's experiences of telling others that they have no uterus and no, or a so-called small, vagina – a condition labelled ‘congenital absence of uterus and vagina’, which falls within the larger category of ‘atypical’ sex development. Our aim is to investigate how affective dissonances such as fear and frustration are expressed in young women's narratives about letting others know about their ‘atypical’ sex development, and how these women narrate desired steps to recognition. By drawing on feminist writings on the performativity of affects or emotions, we examine what affective dissonances accomplish within three identified narratives: how affective dissonances may contribute to the women's positioning of themselves vis-à-vis other individuals and how affective dissonances can imply a strengthening and/or questioning of norms about female embodiment and heterosexuality. This allows us to tease out how routes for questioning of these norms become available through the three narratives that together form a storyline of coming out about a congenital absence of a uterus and vagina in the Swedish context. Furthermore, by demonstrating how others' responses shape the women – their understandings of their own bodies, their envisaged future disclosures and their relations – our analysis highlights the multifaceted intersubjective and in other ways relational, affective and temporal dimensions of coming out about one's 'atypical' sex development.

  • 15.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    A phenomenological approach to the ethics of transplantation medicine: sociality and sharing when living-with and dying-with others2014Ingår i: Theoretical Medicine and Bioethics, ISSN 1386-7415, E-ISSN 1573-0980, Vol. 35, nr 5, s. 369-388Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Recent years have seen a rise in the number of sociological, anthropological, and ethnological works on the gift metaphor in organ donation contexts, as well as in the number of philosophical and theological analyses of giving and generosity, which has been mirrored in the ethical debate on organ donation. In order to capture the breadth of this field, four frameworks for thinking about bodily exchanges in medicine have been distinguished: property rights, heroic gift-giving, sacrifice, and gift-giving as aporia. Unfortunately, they all run into difficulties in terms of both making sense of the relational dimensions of postmortem and live organ donations and being normatively adequate in the sense of shedding light and providing guidance on ethical concerns when body parts are donated. For this reason, this article presents a phenomenological framework of giving-through-sharing, based on Maurice Merleau-Pontys philosophy. This framework makes sense of relational dimensions of postmortem and live organ donation. It also sheds light on three highly debated concerns in organ donation ethics: indebtedness on the part of recipients, the fact that some live donors do not experience donation as a matter of choice, and the potentially painful experience of donors relatives, who need to make decisions about postmortem organ donation at a time of bereavement. It can indirectly support what may be called a normalization of bodily exchanges in medicine.

  • 16.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten. Uppsala University, Sweden.
    A philosophical defense of the idea that we can hold each other in personhood: intercorporeal personhood in dementia care2014Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, nr 1, s. 131-141Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Since John Locke, regnant conceptions of personhood in Western philosophy have focused onindividual capabilities for complex forms of consciousness that involve cognition such as thecapability to remember past events and one’s own past actions, to think about and identify oneself asoneself, and/or to reason. Conceptions of personhood such as this one qualify as cognition-oriented,and they often fail to acknowledge the role of embodiment for personhood. This article offers analternative conception of personhood from within the tradition of phenomenology of the body. Thearticle presents a phenomenological analysis of joint musical activity in dementia care and outlines anintercorporeal conception of personhood based on this analysis. It also provides a philosophical basisfor the idea that others can hold us in personhood and it questions a strict one-body-one-person logicthat has pertained in much personhood debate.

  • 17.
    Folkmarson Käll, Lisa
    et al.
    Linköpings universitet, Institutionen för kultur och kommunikation, Avdelningen för kulturvetenskaper, KVA. Linköpings universitet, Filosofiska fakulteten.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Bodily Relational Autonomy2014Ingår i: Journal of consciousness studies, ISSN 1355-8250, E-ISSN 2051-2201, Vol. 21, nr 9-10, s. 100-120Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Conceptions of autonomy in western philosophy and ethics have often centred on self-governance and self-determination. However, a growing bulk of literature also questions such conceptions, including the understanding of the autonomous self as a self-governing independent individual that chooses, acts, and lives in accordance with her or his own values, norms, or sense of sell This article contributes to the critical interrogation of selfhood, autonomy, and autonomous decision making by combining a feminist focus on relational dimensions of selfhood and autonomy with phenomenological philosophy of the embodied self as being-in-the-world. It offers a philosophical investigation of different dimensions of bodily relational autonomy by turning to phenomenological accounts of the lived body as self-reflexive. When so doing, we hope to contribute to bridging the gap that sometimes exists between discussions of autonomy in analytic moral philosophy and of freedom and facticity in phenomenological philosophy. We see this gap as unfortunate, and hold that a nuanced understanding of autonomy and autonomous decision making can be reached if these strands of philosophy are brought into dialogue.

  • 18.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Correction: Neither property right nor heroic gift, neither sacrifice nor aporia: the benefit of the theoretical lens of sharing in donation ethics (vol 13, pg 225, 2010) in MEDICINE HEALTH CARE AND PHILOSOPHY vol 17, Issue 2, pg 3212014Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, nr 2, s. 1s. 321-321Artikel i tidskrift (Övrigt vetenskapligt)
    Abstract [en]

    n/a

  • 19.
    Zeiler, Kristin
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten. Uppsala University, Sweden.
    Malmquist, Anna
    Linköpings universitet, Institutionen för beteendevetenskap och lärande, Psykologi. Linköpings universitet, Filosofiska fakulteten.
    Lesbian Shared Biological Motherhood: The Ethics of IVF with Reception of Oocytes from Partner2014Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, nr 3, s. 347-355Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    IVF with ROPA (Reception of Oocytes from Partners) allows lesbian mothers to share biological motherhood. The gestational mother receives an egg from her partner who becomes the genetic mother. This article examines the ethics of IVF with ROPA with a focus on the welfare of the woman and the resulting child, on whether ROPA qualifies as a "legitimate" medical therapy that falls within the goals of medicine, and on the meaning and value attributed to a biologically shared bond between parents and child. We also contrast IVF with ROPA with egg donor IVF for heterosexual couples and intrafamilial live uterus transplantation with IVF, and show how Swedish legislation makes certain ways of sharing biological bonds out of place. In Sweden, IVF with ROPA is illegal, egg donor IVF for heterosexual couples is allowed and practiced as is sperm donor IVF for lesbians, and live uterus transplantation is performed within a research project (though not allowed in regular health care). But is ROPA really ethically more problematic than these other cases? The article argues that IVF with ROPA gives rise to fewer ethical questions than does live uterus transplantation with IVF and, in some cases, egg donor IVF.

  • 20.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Neither property right nor heroic gift, neither sacrifice nor aporia: the benefit of the theoretical lens of sharing in donation ethics2014Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 17, nr 2, s. 171-181Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Two ethical frameworks have dominated the discussion of organ donation for long: that of property rights and that of gift-giving. However, recent years have seen a drastic rise in the number of philosophical analyses of the meaning of giving and generosity, which has been mirrored in ethical debates on organ donation and in critical sociological, anthropological and ethnological work on the gift metaphor in this context. In order to capture the flourishing of this field, this article distinguishes between four frameworks for thinking about bodily exchanges in medicine: those of property rights, heroic gift-giving, sacrifice, and gift-giving as aporia. These frameworks represent four different ways of making sense of donation of organs as well as tissue, gametes and blood, draw on different conceptions of the relations between the self and the other, and bring out different ethical issues as core ones. The article presents these frameworks, argues that all of them run into difficulties when trying to make sense of reciprocity and relational interdependence in donation, and shows how the three gift-giving frameworks (of heroism, sacrifice and aporia) hang together in a critical discussion about what is at stake in organ donation. It also presents and argues in favour of an alternative intercorporeal framework of giving-through-sharing that more thoroughly explicates the gift metaphor in the context of donation, and offers tools for making sense of relational dimensions of live and post mortem donations.

  • 21.
    Zeiler, Kristin
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Guntram, Lisa
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Sexed embodiment in atypical pubertal development: Intersubjectivity, excorporation and the importance of making space for difference2014Ingår i: Feminist Phenomenology and Medicine / [ed] Kristin Zeiler och Lisa Folkmarson Käll, New York: State University of New York, 2014, s. 141-160Kapitel i bok, del av antologi (Refereegranskat)
  • 22.
    Zeiler, Kristin
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Folkmarson Käll, Lisa
    Uppsala University, Sweden.
    Why Feminist Phenomenology and Medicine?2014Ingår i: Feminist Phenomenology and Medicine / [ed] Kristin Zeiler och Lisa Folkmarson Käll, New York: State University of New York, 2014, s. 1-25Kapitel i bok, del av antologi (Refereegranskat)
  • 23.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    A phenomenology of excorporation, bodily alienation and resistance: rethinking sexed and racialized embodiment2013Ingår i: Hypatia, ISSN 0887-5367, E-ISSN 1527-2001, Vol. 28, nr 1, s. 69-84Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The article examines how some culturally shared and corporeally enacted beliefs and norms about sexed and racialized embodiment can form embodied agency, and this with the aid of the concepts of incorporation and excorporation. It discusses how the phenomenological concept of excorporation can help us examine painful experiences of how one's lived body breaks in the encounter with others. The article also examines how a continuous excorporation can result in bodily alienation, and what embodied resistance can mean when one has undergone or undergoes excorporation. Elaborating on the work of, among others, Maurice Merleau-Ponty, Martin Heidegger, Drew Leder, and Sarah Ahmed, I discuss incorporation and excorporation of beliefs and norms regarding sexual difference, such as beliefs and norms regarding female and male embodiment, through a reading of Jeffrey Eugenides' novel Middlesex. I also suggest that it is useful to understand the postcolonial scholar Frantz Fanon's narrative of how he could not but attend to his own skin color while living in France in the 1940s and 1950s, in terms of excorporation. Whereas these are different narratives in many ways, I regard them as helpful for clarifying what excorporation implies and what analytic work this concept can enable.

  • 24.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Avdelningen för hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Special Section on Sex and Surgery: Doing sex and feminist theory2013Ingår i: Feminist Theory, ISSN 1464-7001, E-ISSN 1741-2773, Vol. 14, nr 1, s. 57-63Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    n/a

  • 25.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Bringing the lived body to medical ethics education: Learning to See the Suffering Other2012Ingår i: Reconceiving Medical Ethics / [ed] Christopher Cowley, London: Continuum, 2012, s. 44-55Kapitel i bok, del av antologi (Övrigt vetenskapligt)
    Abstract [en]

    This volume of original work comprises a modest challenge, sometimes direct, sometimes implicit, to the mainstream Anglo-American conception of the discipline of medical ethics.  It does so not by trying to fill the gaps with exotic minority interest topics, but by re-examining some of the fundamental assumptions of the familiar philosophical arguments, and some of the basic situations that generate the issues. The most important such situation is the encounter between the doctor and the suffering patient, which forms one of the themes of the book. The authors show that concepts such as the body, suffering and consent - and the role such concepts play within patients' lives - are much more complicated than the Anglo-American mainstream appreciates. Some of these concepts have been discussed with subtlety by Continental philosophers (like Heidegger, Ricoeur), and a secondary purpose of the volume is to apply their ideas to medical ethics. Designed for upper-level undergraduates and graduate students with some philosophical background in ethics, Reconceiving Medical Ethics opens up new avenues for discussion in this ever-developing field.   

  • 26.
    Zbikowski, Ancke
    et al.
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Genus och medicin. Linköpings universitet, Hälsouniversitetet.
    Brüggemann, Adrianus Jelmer
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Genus och medicin. Linköpings universitet, Hälsouniversitetet.
    Wijma, Barbro
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Genus och medicin. Linköpings universitet, Hälsouniversitetet. Östergötlands Läns Landsting, Barn- och kvinnocentrum, Kvinnokliniken i Linköping.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Swahnberg, Katarina
    Linköpings universitet, Institutionen för klinisk och experimentell medicin, Genus och medicin. Linköpings universitet, Hälsouniversitetet.
    Ethical guidelines and the prevention of abuse in healthcare2012Ingår i: European Journal of Obstetrics, Gynecology, and Reproductive Biology, ISSN 0301-2115, E-ISSN 1872-7654, Vol. 165, nr 1, s. 18-28Artikel, forskningsöversikt (Refereegranskat)
    Abstract [en]

    Objective

    In obstetrical and gynaecological healthcare, patients often find themselves in a vulnerable position. Sensitive issues such as sexual and reproductive health are addressed and certain procedures can be experienced as abusive. According to research a lifetime prevalence of abuse in healthcare (AHC) can be assumed for 13–28% of female patients in the Nordic countries. In the present study we analyse the content of ethical documents for healthcare professionals within obstetrics and gynaecology in Sweden, in order to find out to what extent ethicalguidelines consider issues that have shown to be related to the occurrence of AHC.

    Study design

    We searched the literature to find empirical data on AHC. Guidelines for nurses, midwives and physicians were selected. After developing an analytical framework based on the empirical data the content of the ethicalguidelines was analysed.

    Results

    The various ethicalguidelines for staff working within obstetrics and gynaecology differ distinctively from each other regarding their content of issues that are related to AHC. Issues that were mostly disregarded were: considering the patient's perspective and the patients’ possible experience of violence, considering power imbalances within healthcare, sexual misconduct, how to deal with other professional's ethical misconduct and how professionals relate to each other. We found the ethicalguidelines of the International Federation of Gynecology and Obstetrics (FIGO) and of the International Confederation of Midwives to be those which contained most of the issues that have empirically shown to be important in regard to AHC.

    Conclusion

    While staff members from different professions may share responsibility for the same patient, their ethicalguidelines vary considerably. To become a possible resource for prevention of AHC, we suggest that ethicalguidelines in healthcare should be revised following empirical research on ethical conduct. As ethicalguidelines cannot be effective by their existence only, we would like to initiate a discussion on the function and use of ethicalguidelines in general and regarding AHC in particular. Being aware that ethicalguidelines are only a part of ethics in healthcare, however, we envision a broader approach to the aim of preventing AHC, where research is encouraged on how a virtue ethics approach could be applied.

  • 27.
    Zeiler, Kristin
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Wickström, Anette
    Linköpings universitet, Institutionen för kultur och kommunikation, Avdelningen för kulturvetenskaper, KVA. Linköpings universitet, Filosofiska fakulteten.
    Varför ifrågasätts inte andra icke-medicinska ingrepp?2012Ingår i: Svenska dagbladet, ISSN 1101-2412, nr 7/1Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
  • 28.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Weil2012Ingår i: Filosofi och medicin: från Platon till Foucault / [ed] Lennart Nordenfelt, Stockholm: Thales, 2012, s. 217-231Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 29.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    With Levinas against Levinas: Steps Towards a Phenomenological Ethics of Bodily Giving in Medicine2012Ingår i: The Body as Gift, Resource and Commodity: Exchanging Organ, Tissues and Cells in the 21st Century / [ed] Martin Gunnarson, Fredrik Svenaeus, Huddinge: Södertörns högskola , 2012, s. 31-57Kapitel i bok, del av antologi (Övrigt vetenskapligt)
    Abstract [en]

    Departing from three metaphors—the body as gift, resource, and commodity—the book explores the contemporary exchange of organs, tissues, and cells. Although the gift is the sanctioned metaphor for donating parts of the body, the underlying perspective from the side of states, authorities, and the medical establishment often seems to be that the body shall be understood as a resource. But medicine, as some of the contributors to this book show, is not sealed off from the market economy. Increasingly, therefore, body parts become commodities on legal as well as illegal markets.

    The chapters of the book are arranged in a way that presents, one after the other, the three metaphors of the body, starting with the body as gift, proceeding by way of the body as resource, and ending in the body as commodity. Although all three metaphors as ways of conceptualizing and making use of the human body can be found throughout human history, the present drive of commercialization will increasingly force us to identify and scrutinize the way these metaphors are used. Not only in addressing the fascinating question of what kind of an object (subject) the human body is, but also in trying to decipher what interests lurk behind the use of the metaphors in question when claiming that human bodies, organs, tissues, and cells are gifts, resources or commodities. The ambition of this volume is to address and remedy the need of a hermeneutics not only of depth, but also of suspicion, in the case of organ transplantation and other medical technologies involving the transfer of human tissues and cells.

  • 30.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Levinas och det kroppsliga givandets etik2011Ingår i: Människan sedd: genom olika vetenskapliga prismor / [ed] Matz Hammarström, Elisabeth Gerle och Peter Gärdenfors, Nora: Bokförlaget Nya Doxa, 2011, s. 153-172Kapitel i bok, del av antologi (Övrigt vetenskapligt)
    Abstract [sv]

    Hur ser vetenskapen på människan 150 år efter Darwins Om arternas ursprung?Är hon fortfarande skapelsens krona, eller bara ett djur som styrs av själviska gener?Och hur är det med hennes förnuft? Är det dags att nedgradera dess betydelse?Slår evolutionsläran undan benen för all form av gudstro eller finns det en möjlighet till fredlig samexistens mellan religion och darwinism? Kan idén om det "naturliga urvalet" hjälpa oss att förstå förändringsprocesser i samhället lika väl som i naturen? Går det att förena en humanistisk och en biologistisk syn på människan?I boken, som är en del i det samtal mellan olika positioner som blir allt viktigare, hävdas att evolutionsläran åtminstone är glasklar på enpunkt: den ger inget utrymme för rasistiska spekulationer om olika etniska gruppers olika värde.Möt den mångfasetterade människan, sedd genom ett antal olika vetenskapliga prismor.Människan sedd genom olika vetenskapliga prismor

  • 31.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    A phenomenological analysis of bodily self-awareness in the experience of pain and pleasure: on dys-appearance and eu-appearance2010Ingår i: MEDICINE HEALTH CARE AND PHILOSOPHY, ISSN 1386-7423, Vol. 13, nr 4, s. 333-342Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this article is to explore nuances within the field of bodily self-awareness. My starting-point is phenomenological. I focus on how the subject experiences her or his body, i.e. how the body stands forth to the subject. I build on the phenomenologist Drew Leders distinction between bodily dis-appearance and dys-appearance. In bodily dis-appearance, I am only prereflectively aware of my body. My body is not a thematic object of my experience. Bodily dys-appearance takes place when the body appears to me as "ill" or "bad." This is often the case when I experience pain or illness. Here, I will examine three versions of bodily dys-appearance. Whereas many phenomenological studies have explored cases of bodily dys-appearance, few studies have focused on the opposite of bodily dys-appearance, i.e. on bodily modes of being where the body appears to the subject as something good, easy or well. This is done in this article. When the body stands forth as good, easy or well to the subject, I suggest that the body eu-appears to this person. The analysis of eu-appearance shows that the subject can attend to her or his body as something positive and that this attention need not result in discomfort or alienation. Eu-appearance can take place in physical exercise, in sexual pleasure and in some cases of wanted pregnancies. I also discuss, briefly, the case of masochism.

  • 32.
    Zeiler, Kristin
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle.
    Case. Parental living kidney donation2010Ingår i: Teaching Ethics in Organ Transplantation and Tissue Donation - Cases and Movies / [ed] Eds. S. Schicktanz, C. Wieseman, S. Wöhlke, in cooperation with A Carmi UNESCO Chair in Bioethics, Göttingen: Göttingen University Press , 2010, s. 19-21Kapitel i bok, del av antologi (Övrig (populärvetenskap, debatt, mm))
  • 33.
    Malmqvist, Erik
    et al.
    Linköpings universitet, Institutionen för tema, Tema teknik och social förändring. Linköpings universitet, Filosofiska fakulteten.
    Zeiler, Kristin
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle.
    Cultural Norms, the Phenomenology of Incorporation and the Experience of Having a Child Born with Ambiguous Sex.2010Ingår i: Social Theory and Practice, ISSN 0037-802X, E-ISSN 2154-123X, Vol. 36, nr 1, s. 133-156Artikel i tidskrift (Refereegranskat)
  • 34.
    Zeiler, Kristin
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Guntram, Lisa
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Lennerling, Anette
    Sahlgrenska sjukhuset, Göteborg.
    Moral tales of parental living kidney donation: a parenthood moral imperative and its relevance for decision making2010Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 13, nr 3, s. 225-236Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Free and informed choice is an oft-acknowledged ethical basis for living kidney donation, including parental living kidney donation. The extent to which choice is present in parental living kidney donation has, however, been questioned. Since parents can be expected to have strong emotional bonds to their children, it has been asked whether these bonds make parents unable to say no to this donation. This article combines a narrative analysis of parents' stories of living kidney donation with a philosophical discussion of conditions for parental decision-making. Previous research has shown that parents often conclude that it is "natural" to donate. Our study shows that this naturalness needs to be understood as part of a story where parental living kidney donation is regarded as natural and as a matter of non-choice. Our study also highlights the presence of a parenthood moral imperative of always putting one's child's needs before one's own. On the basis of these results, we discuss conditions for decision-making in the context of parental LKD. We argue that the presence of a parenthood moral imperative can matter with regard to the decision-making process when parents consider whether to volunteer as living kidney donors, but that it need not hamper choice. We emphasise the need for exploring relational and situational factors in order to understand parental decision-making in the context of parental LKD.

  • 35.
    Zeiler, Kristin
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle.
    Simone Weil - personen, det heliga och etiken2010Ingår i: På Spaning / [ed] Hanna Stenström, Verbum , 2010, s. 117-132Kapitel i bok, del av antologi (Övrigt vetenskapligt)
    Abstract [sv]

    På spaning: från Svenska kyrkans forskardagar 2009. Detta är tredje delen i en forskningsserie som vänder sig till alla inom kyrka och akademi, baserad på Svenska kyrkans forskardagar för kyrkorelevant forskning 2009. Boken fokuserar kring fyra stora utmaningar: utmaningar i möten med den Andre, utmaningar i möten med samhället, utmaningar i möten mellan kyrkan och dess medlemmar, och slutligen utmaningar i möten mellan nutid och tradition. Bland skribenterna märks Jesper Svartvik, Kristin Zeiler, Kjell-Åke Nordquist, Sara Gehlin, Jan-Olof Aggedal, Kerstin Wimmer, Robert K Johnston, Elisabeth Gerle m fl.

  • 36.
    Zeiler, Kristin
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle.
    Teologi för livets slut: Om palliativ sedering.2010Ingår i: Svensk teologisk kvartalskrift, ISSN 0039-6761, Vol. 86, nr 1, s. 22-28Artikel i tidskrift (Refereegranskat)
  • 37.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Deadly Pluralism? Why Death-Concept, Death-Definition, Death-Criterion and Death-Test Pluralism Should Be Allowed, Even Though It Creates Some Problems2009Ingår i: BIOETHICS, ISSN 0269-9702, Vol. 23, nr 8, s. 450-459Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Death concept, death definition, death criterion and death test pluralism has been described by some as a problematic approach. Others have claimed it to be a promising way forward within modern pluralistic societies. This article describes the New Jersey Death Definition Law and the Japanese Transplantation Law. Both of these laws allow for more than one death concept within a single legal system. The article discusses a philosophical basis for these laws starting from John Rawls understanding of comprehensive doctrines, reasonable pluralism and overlapping consensus. It argues for the view that a certain legal pluralism in areas of disputed metaphysical, philosophical and/or religious questions should be allowed, as long as the disputed questions concern the individual and the resulting policy, law or acts based on the policy/law, do not harm the lives of other individuals to an intolerable extent. However, while this death concept, death definition, death criterion and death test pluralism solves some problems, it creates others.

  • 38.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Ethics and Organ Transfer: A Merleau-Pontean Perspective2009Ingår i: HEALTH CARE ANALYSIS, ISSN 1065-3058, Vol. 17, nr 2, s. 110-122Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The articles aim is to explore human hand allograft recipients postoperative experience of disownership and their gradual experience of their new hand as theirs, with the aid of the work of the French phenomenologist Maurice Merleau-Ponty. Many have used a Merleau-Pontinian perspective in the analysis of embodiment. Far fewer have used it in medico-ethical analysis. Drew Leders phenomenologically based ethics of organ donation and organ sale is an exception to this tendency. The articles second aim is to examine Leders phenomenologically based ethics of organ donation and organ sale. Though I find parts of Leders approach promising, I also elaborate a line of reasoning that draws on Merleau-Ponty, that does allow us to argue for certain kinds of organ donation and against organ sale-and that avoids some of the problems with Leders approach. This alternative route builds on the concept of the integrity of the body-subject.

  • 39.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Just love in live organ donation2009Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 12, nr 3, s. 323-331Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Emotionally-related live organ donation is different from almost all other medical treatments in that a family member or, in some countries, a friend contributes with an organ or parts of an organ to the recipient. Furthermore, there is a long-acknowledged but not well-understood gender-imbalance in emotionally-related live kidney donation. This article argues for the benefit of the concept of just love as an analytic tool in the analysis of emotionally-related live organ donation where the potential donor(s) and the recipient are engaged in a love relation. The concept of just love is helpful in the analysis of these live organ donations even if no statistical gender-imbalance prevails. It is particularly helpful, however, in the analysis of the gender-imbalance in live kidney donations if these donations are seen as a specific kind of care-work, if care-work is experienced as a labour one should perform out of love and if women still experience stronger pressures to engage in care-work than do men. The aim of the article is to present arguments for the need of just love as an analytic tool in the analysis of emotionally-related live organ donation where the potential donor(s) and the recipient are engaged in a love relation. The aim is also to elaborate two criteria that need to be met in order for love to qualify as just and to highlight certain clinical implications.

  • 40.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Self and other in global bioethics: Critical hermeneutics and the example of different death concepts2009Ingår i: Medicine, Healthcare and Philosophy, ISSN 1386-7423, Vol. 12, nr 2, s. 137-145Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Our approach to global bioethics will depend, among other things, on how we answer the questions whether global bioethics is possible and whether it, if it is possible, is desirable. Our approach to global bioethics will also vary depending on whether we believe that the required bioethical deliberation should take as its principal point of departure that which we have in common or that which we have in common and that on which we differ. The aim of this article is to elaborate a theoretical underpinning for a bioethics that acknowledges the diversity of traditions and experiences without leading to relativism. The theoretical underpinning will be elaborated through an exploration of the concepts of sameness, otherness, self and other, and through a discussion of the conditions for understanding and critical reflection. Furthermore, the article discusses whether the principle of respect for the other as both the same and different can function as the normative core of this global bioethics. The article also discusses the New Jersey Death Definition Law and the Japanese Transplantation Law. These laws are helpful in order to highlight possible implications of the principle of respect for the other as both the same and different. Both of these laws open the door to more than one concept of death within one and the same legal system. Both of them relate preference for a particular concept of death to religious and/or cultural beliefs.

  • 41.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Self, Identities and Medicine: in HEALTH CARE ANALYSIS, vol 17, no. 22009Övrigt (Övrigt vetenskapligt)
  • 42.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Symposium on Genetics, Ethics and Identity.2009Ingår i: New genetics and society (Print), ISSN 1463-6778, E-ISSN 1469-9915, Vol. 28, nr 2, s. 153-156Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
  • 43.
    Zeiler, Kristin
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Wickström, Anette
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Hälsouniversitetet.
    Why do we perform surgery on newborn intersexed children? The phenomenology of the parental experience of having a child with intersex anatomies2009Ingår i: Feminist Theory, ISSN 1464-7001, E-ISSN 1741-2773, Vol. 10, nr 3, s. 359-377Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Few parents-to-be consider that their child may be born with ambiguous sex. Still, parents of a newborn child with ambiguous sex are expected to make a far-reaching decision for the child should the child be operated upon so that it has either female or male genitals? The aim of this article is to examine, phenomenologically, why parents decide to have their children undergo genital surgery when it is not necessary for the childs physiological functions. Drawing on phenomenological work by Maurice Merleau-Ponty, Simone de Beauvoir and Sara Ahmed, we examine parents frustration when their childs sex is ambiguous and their experiences of the practice of medical sex assignment. We also examine parental identity work when the child has been assigned a sex and the interaction between parents and medical professionals when parents make decisions regarding surgery on their child. Furthermore, we provide a critical perspective on the surgical practice.

  • 44.
    Zeiler, Kristin
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle.
    Rättrådig kärlek. En etik för intima relationer2008Ingår i: Svensk teologisk kvartalskrift, ISSN 0039-6761, Vol. 84, nr 3, s. 127-133Artikel i tidskrift (Refereegranskat)
  • 45.
    Zeiler, Kristin
    et al.
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Furberg, E
    Stockholm University.
    Tufveson, G
    Uppsala University Hospital.
    Welin, Stellan
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    The ethics of non-heart-beating donation: how new technology can change the ethical landscape.2008Ingår i: Journal of medical ethics, ISSN 1473-4257, Vol. 34, nr 7, s. 526-529Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The global shortage of organs for transplantation and the development of new and better medical technologies for organ preservation have resulted in a renewed interest in non-heart-beating donation (NHBD). This article discusses ethical questions related to controlled and uncontrolled NHBD. It argues that certain preparative measures, such as giving anticoagulants, should be acceptable before patients are dead, but when they have passed a point where further curative treatment is futile, they are in the process of dying and they are unconscious. Furthermore, the article discusses consequences of technological developments based on improvement of a chest compression apparatus used today to make mechanical heart resuscitation. Such technological development can be used to transform cases of non-controlled NHBD to controlled NHBD. In our view, this is a step forward since the ethical difficulties related to controlled NHBD are easier to solve than those related to non-controlled NHBD. However, such technological developments also evoke other ethical questions.

  • 46.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för hälsa och samhälle, Tema hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Complexities in Reproductive Choice: Medical Professionals' Attitudes to and Experiences of Pre-implantation Genetic Diagnosis2007Ingår i: Human Fertility, ISSN 1464-7273, E-ISSN 1742-8149, Vol. 10, nr 3, s. 165-174Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Studies have been made on attitudes to and experiences of women and men who have undergone pre-implantation genetic diagnosis (PGD), or who are regarded as potential users of this diagnostic method. Few studies have been conducted regarding the attitudes to and experiences of medical professionals as regards PGD. This paper reports on findings from such a qualitative study in which 18 semi-structured interviews were performed with geneticists and gynaecologists in Italy, Sweden and the UK. Interviewees emphasized, among other things, the importance of choice provision. Interviewees also told stories that indicated the many ways through which choice was feared to be hampered - or was hampered. A similar emphasis on the importance of PGD as one more alternative to choose between, for 'high-risk' couples, is not found in studies on the experiences, attitudes and views of potential, or actual, users of PGD.

  • 47.
    Zeiler, Kristin
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle.
    Gender and medical technologies: the case of living organ donation2007Ingår i: Dynamics of health and welfare: texts and contexts, Lisboa: Edicoes Colibri , 2007, s. 159-162Kapitel i bok, del av antologi (Övrigt vetenskapligt)
    Abstract [en]

    This part briefly reviews the most important contributions made to the wide issue of Gender and Health in Europe and Latin America over the past 12 years. Particular attention is paid to historiographic production focused on the contemporary world, identifying the main research lines and taking account of the constant interactions and exchanges among different disciplines, notably sociology, anthropology and history. Relevant non-European literature in the English language has been included when new topics are developed, theoretical contributions are advanced or European and/or Latin American realities are addressed. The following types of studies are reviewed: those that incorporate feminist perspectives, specifically a gender approach, to the study of health, medicine and healthcare practices; those that study the ways in which medicine and science have explained the feminine body and the sexual difference; those that make women the subject of investigation, addressing their health, work and role in social-cultural systems of health; and those that investigate the part played by male- -female relationships in healthcare organization and in the production of ideas, norms and values related to health and disease. First, we summarize the concepts of gender and androcentrism and their interest for the history of medicine and health, proposing some methodological points for a gender approach. Second, we outline the main contributions and research lines on these issues. Finally, the results of research into gender and health are illustrated by 15 collaborations that gather documentary sources and case studies.

  • 48.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Shared decision-making, gender and new technologies.2007Ingår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 10, nr 3, s. 279-287Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Much discussion of decision-making processes in medicine has been patient-centred. It has been assumed that there is, most often, one patient. Less attention has been given to shared decision-making processes where two or more patients are involved. This article aims to contribute to this special area. What conditions need to be met if decision-making can be said to be shared? What is a shared decision-making process and what is a shared autonomous decision-making process? Why make the distinction? Examples are drawn from the area of new reproductive medicine and clinical genetics. Possible gender-differences in shared decision-making are discussed.

  • 49.
    Zeiler, Kristin
    Linköpings universitet, Institutionen för medicin och hälsa, Hälsa och samhälle. Linköpings universitet, Filosofiska fakulteten.
    Who am I? When do "I" become another? An analytic exploration of identities, sameness and difference, genes and genomes.2007Ingår i: Health Care Analysis, ISSN 1065-3058, E-ISSN 1573-3394, Vol. 15, nr 1, s. 25-32Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    What is the impact of genetics and genomics on issues of identity and what do we mean when we speak of identity? This paper explores how certain concepts of identity used in philosophy can be brought together in a multi-layered concept of identity. It discusses the concepts of numerical, qualitative, personal and genetic identity-over-time as well as rival concepts of genomic identity-over-time. These are all understood as layers in the multilayered concept of identity. Furthermore, the paper makes it clear that our understanding of genomic identity and the importance attached to genomic sameness-over-time matters for the ethical questions raised by certain new gene technologies.

  • 50.
    Zeiler, Kristin
    Linköpings universitet, Filosofiska fakulteten. Linköpings universitet, Institutionen för hälsa och samhälle, Tema hälsa och samhälle.
    Gynaecologists and Geneticists as Storytellers: Disease, Choice and Normality as the Fabric of Narratives on Preimplantation Genetic Diagnosis2006Ingår i: Medical Technologies and the Life-world.: The Social Construction of Normality / [ed] Sonja Olin Lauritzen and Lars-Christer Hydén, London: Routledge , 2006, 1, s. 69-92Kapitel i bok, del av antologi (Övrigt vetenskapligt)
    Abstract [en]

    Although the use of new health technologies in healthcare and medicine is generally seen as beneficial, there has been little analysis of the impact of such technologies on people’s lives and understandings of health and illness. This ground-breaking book explores how new technologies not only provide hope for cure and well-being, but also introduce new ethical dilemmas and raise questions about the 'natural' body.

    Focusing on the ways new health technologies intervene into our lives and affect our ideas about normalcy, the body and identity, Medical Technologies and the Life World explores:

    • how new health technologies are understood by lay people and patients
    • how the outcomes of these technologies are communicated in various clinical settings
    • how these technologies can alter our notions of health and illness and create ‘new illness’.

    Written by authors with differing backgrounds in phenomenology, social psychology, social anthropology, communication studies and the nursing sciences, this sensational text is essential reading for students and academics of medical sociology, health and allied studies, and anyone with an interest in new health technologies.

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