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  • 1.
    Aho, Anna Carin
    et al.
    Linnaeus Univ, Dept Hlth & Caring Sci, Vaxjo, Sweden.
    Hultsjö, Sally
    Cty Hosp, Psychiat Clin, Jonkoping, Sweden.
    Hjelm, Katarina
    Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Health Sciences.
    Young adults' experiences of living with recessive limb-girdle muscular dystrophy from a salutogenic orientation: an interview study.2015In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 37, no 22, p. 2083-2091Article in journal (Refereed)
    Abstract [en]

    To describe young adults' experiences of living with recessive limb-girdle muscular dystrophy (LGMD2) from a salutogenic orientation. Methods: A qualitative explorative interview study, including 14 participants aged 20-30 years, was performed focusing on comprehensibility, manageability and meaningfulness in daily life. Content analysis was used for data analysis. Result: Living with LGMD2 not only implies learning to live with the disease and the variations between good and bad periods but also means trying to make sense of a progressive disease that brings uncertainty about future health, by striving to make the best of the situation. Disease progression involves practical and mental struggle, trying to maintain control over one's life despite vanished physical functions that require continual adjustments to the body. Restrictions in a double sense were described, not only due to the disease but also due to poor comprehension of the disease in society. Lack of knowledge about LGMD2 among professionals often results in having to fight for the support needed. Conclusion: In order to manage daily life, it is important to be seen and understood as an individual in contacts with professionals and in society in general, to have informal social support and meaningful activities as well as access to personal assistance if necessary. Implications for Rehabilitation Recessive limb-girdle muscular dystrophy (LGMD2) is a group of progressive disorders, which manifest in physical and psychological consequences for the individual. According to the salutogenic orientation, people need to find life comprehensible, manageable and meaningful, i.e. to achieve a sense of coherence (SOC), but living with LGMD2 may recurrently challenge the individual's SOC. Through the holistic view of the individual's situation that the salutogenic orientation provides, professionals may support the individual to strengthen SOC and thereby facilitate the movement towards health.

  • 2.
    Atwine, Fortunate
    et al.
    School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden; Department of Nursing, Mbarara University of Science and Technology (MUST), Mbarara, Uganda.
    Hultsjö, Sally
    School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.
    Albin, Björn
    School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.
    Hjelm, Katarina
    Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Medicine and Health Sciences.
    Health-care seeking behaviour and the use of traditional medicine among persons with type 2 diabetes in south-western Uganda: a study of focus group interviews2015In: Pan African Medical Journal, ISSN 1937-8688, E-ISSN 1937-8688, Vol. 20, no 76Article in journal (Refereed)
    Abstract [en]

    Introduction: health-care seeking behaviour is important as it determines acceptance of health care and outcomes of chronic conditions but it has been investigated to a limited extent among persons with diabetes in developing countries. The purpose of the study was to describe health-care seeking behaviour and understand reasons for using therapies offered by traditional healers.

    Methods: descriptive study using focus-group interviews. Three purposive focus-groups were conducted in 2011 of 10 women and 7 men aged 39–72 years in Uganda. Data were collected through semi-structured interviews and qualitatively analysed according to a method described for focus-groups.

    Results: reasons for seeking help from traditional healers were symptoms related to diabetes such as polydipsia, fatigue and decreased sensitivity in lower limbs. Failure of effect from western medicine was also reported. Treatment was described to be unknown extracts, of locally made products taken as herbs or food, and participants had sought help from different health facilities with the help of relatives and friends.

    Conclusion: the pattern of seeking care was inconsistent, with a switch between different health care providers under the influence of the popular and folk sectors. Despite beliefs in using different healthcare providers seeking complementary and alternative medicine, participants still experienced many physical health problems related to diabetes complications. Health professionals need to be aware of the risk of switches between different health care providers, and develop strategies to initiate health promotion interventions to include in the care actors of significance to the patient from the popular, folk and professional sectors, to maintain continuity of effective diabetes care.

  • 3.
    Hultsjö, Sally
    Linköping University, Department of Medical and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Caring for foreign‐born persons with psychosis and their families: Perceptions of psychosis care2009Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The aim of this thesis was to describe and analyse perceptions of psychosis care among those involved in care, foreign-born persons with psychoses, their families and health care staff, and further to reach agreement about core components in psychosis care. This was in order to find out whether current psychosis care in Sweden is suitable for foreign-born persons and their families. The study design was explorative and descriptive. Health care staff (n=35), persons with psychosis (n=22) and families (n=26) of persons with psychosis were chosen from different regions in Southern Sweden. To capture health care staff’s experiences and to explore whether specific needs occurred within psychiatric care, nine focus group interviews were held. The perspectives of psychosis care among persons with psychoses and their families were captured through individual interviews. Finally, a study was accomplished all over Sweden in which staff, foreign-born persons with psychosis and foreign-born families of persons with psychoses answered a questionnaire to identify core components in psychosis care of foreign-born persons and their families. There was agreement that the core components in psychosis care concern general psychiatric caring, even though varying perceptions were identified. Asking about foreign-born persons’ religious and ethnic background or having the possibility to decide whether care should be provided by male or female staff were agreed to be less important. No agreement could be reached concerning the importance of considering different perceptions of psychosis care, treatments and different ways of managing the psychosis. Nor could agreement be reached as to whether staff should have specific cultural knowledge and whether interpreters should be unknown to the family but speak the right dialect. Perceptions among staff in somatic and psychiatric care as well as perceptions among foreign- and Swedish-born persons with psychosis and their families were more similar than different. General psychiatric care is important for Swedish-born as well as foreign-born persons with psychosis and their families, indicating the importance of not letting culturally determined perceptions dictate the care and take away energy from health care staff and make them lose their focus on the basic elements in general psychiatric care. However, within the general care there were individual perceptions on whose importance those involved in care did not agree. Further development suggested is to illuminate the importance of identifying individual perceptions which may differ between different persons and could be related to cultural background. Staff need to acquire strategies so they can easily manage to encounter and offer general care to foreign-born persons. Development must be achieved on both an organizational level and an individual level.

    List of papers
    1. Immigrants in emergency care: Swedish health care staff's experiences
    Open this publication in new window or tab >>Immigrants in emergency care: Swedish health care staff's experiences
    2005 (English)In: International Nursing Review, ISSN 0020-8132, E-ISSN 1466-7657, Vol. 52, no 4, p. 276-285Article in journal (Refereed) Published
    Abstract [en]

    Background: During the past few decades Sweden has developed into a multicultural society. The proportion of patients with different cultural backgrounds increases, which naturally makes new demands on health care staff.

    Aim: To identify whether staff in somatic and psychiatric emergency care experienced problems in the care of migrants, and if so to compare these.

    Method: The study design was explorative. Focus group interviews of 22 women and 13 men working as nurses and assistant nurses at an emergency ward, an ambulance service and a psychiatric intensive care unit were held.

    Findings: The results showed that the main problems experienced in all wards were difficulties related to caring for asylum-seeking refugees. Some dissimilarities were revealed: unexpected behaviours in migrants related to cultural differences described by staff working in the emergency ward; migrants' refusal to eat and drink and their inactive behaviour in the psychiatric ward; and a lot of non-emergency runs by the ambulance staff because of language barriers between the emergency services centre and migrants.

    Conclusion: The main problems experienced by the health care staff were situations in which they were confronted with the need to care for asylum-seeking refugees. Practice implications: These emphasize the importance of support from organizational structures and national policies to develop models for caring for asylum-seeking refugees. Simple routines and facilities to communicate with foreign-language-speaking migrants need to be developed. Health care staff need a deeper understanding of individual needs in the light of migrational and cultural background.

    Place, publisher, year, edition, pages
    Wiley InterScience, 2005
    Keywords
    Ambulance, Asylum-seeking Refugees, Emergency, Health Care Staff, Migrants, Psychiatry
    National Category
    Medical and Health Sciences
    Identifiers
    urn:nbn:se:liu:diva-18083 (URN)10.1111/j.1466-7657.2005.00418.x (DOI)
    Available from: 2009-05-05 Created: 2009-05-05 Last updated: 2017-12-13Bibliographically approved
    2. Perceptions of psychiatric care among foreign- and Swedish-born people with psychotic disorders
    Open this publication in new window or tab >>Perceptions of psychiatric care among foreign- and Swedish-born people with psychotic disorders
    2007 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 60, no 3, p. 279-288Article in journal (Refereed) Published
    Abstract [en]

    AIM: This paper is a report of a study to explore different perceptions of psychiatric care among foreign- and Swedish-born people with psychotic disorders.

    BACKGROUND: Research from different countries reports a high-incidence of psychosis among migrants. The risk-factors discussed are social disadvantages in the new country. To understand and meet the needs of people from different countries, their perspective of psychiatric care must be illuminated and taken into consideration.

    METHOD: A phenomenographic study was conducted in 2005-2006 using semi-structured interviews with a convenience sample of 12 foreign-born people and 10 Swedish-born people with psychosis.

    FINDINGS: Three categories were identified: personal and family involvement in care; relating to healthcare staff; and managing illness and everyday life. Foreign-born people differed from Swedish-born people in that they struggled to attain an everyday life in Sweden, relied on healthcare staff as experts in making decisions, and had religious beliefs about mental illness. Among Swedish-born people, the need for more support to relatives and help to perform recreational activities was important.

    CONCLUSION: It is important to identify individual perceptions and needs, which may be influenced by cultural origins, when caring for patients with psychosis. Previous experience of care, different ways of relating to staff, and individual needs should be identified and met with respect. Social needs should not be medicalized but taken into consideration when planning care, which illustrates the importance of multi-professional co-operation.

    Keywords
    Interviews, migrants, nursing, patients’ perceptions, phenomenography, psychiatric nursing, psychotic disorder
    National Category
    Medical and Health Sciences
    Identifiers
    urn:nbn:se:liu:diva-18084 (URN)10.1111/j.1365-2648.2007.04391.x (DOI)17822426 (PubMedID)
    Available from: 2009-05-05 Created: 2009-05-05 Last updated: 2017-12-13Bibliographically approved
    3. Foreign-born and Swedish-born families perceptions of psychosis care
    Open this publication in new window or tab >>Foreign-born and Swedish-born families perceptions of psychosis care
    2009 (English)In: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 18, no 1, p. 62-71Article in journal (Refereed) Published
    Abstract [en]

    The aim of the study was to describe how foreign-born and Swedish born families living in Sweden perceive psychosis care. Eleven foreign-born and 15 Swedish-born family members were interviewed and the data were analyzed using a phenomenographic approach. The findings showed three main descriptive categories: taking responsibility, access to care, and attitudes to psychosis. The degree of responsibility in the family decreased if there was easy access to care and support from health-care staff. Knowledge of psychosis was considered to be important in order to counteract prejudiced attitudes in the family and the community. Foreign-born families did not want to be treated differently from Swedes and stressed the importance of finding ways to communicate despite communication barriers. Foreign-born families also were affected by their experiences of psychiatric care and different beliefs about psychosis in their home country. The results indicate how important it is that health-care staff members treat families on equal terms. It is necessary to take the time to identify how to communicate in a good manner and to identify families previous experiences of and beliefs about psychosis care in order to help families face prejudice in society and to see beyond the psychosis.

    Keywords
    Family, phenomenography, psychosis, psychosis care, quality of care
    National Category
    Medical and Health Sciences
    Identifiers
    urn:nbn:se:liu:diva-17154 (URN)10.1111/j.1447-0349.2008.00587.x (DOI)
    Available from: 2009-03-07 Created: 2009-03-07 Last updated: 2017-12-13Bibliographically approved
    4. Identifying core components in care of foreign-born persons with psychosis and their families: Using the Delphi technique
    Open this publication in new window or tab >>Identifying core components in care of foreign-born persons with psychosis and their families: Using the Delphi technique
    (English)Manuscript (Other academic)
    Abstract [en]

    The purpose of this study was to let persons involved in psychosis care (foreign-born persons, families and health care staff) identify the core components in care of foreign-born persons with psychosis and their families in Sweden. The results from three previous qualitative studies consisting of perceptions of psychosis care were reformulated and structured into statements in a questionnaire which was delivered to 43 persons involved in psychosis care. The statements were scored in terms of perceived importance in two rounds using the Delphi technique. The results revealed agreement about the importance of general psychiatric care. Individual perceptions on which importance there was no agreement, suggested that staff must seek to understand a person’s individual perceptions to gain insight about ways to build an effective care alliance with foreign born persons with psychosis and their families.

    Keywords
    Delphi technique, foreign-born persons, psychosis care, nursing
    National Category
    Medical and Health Sciences
    Identifiers
    urn:nbn:se:liu:diva-18085 (URN)
    Available from: 2009-05-05 Created: 2009-05-05 Last updated: 2013-09-12Bibliographically approved
  • 4.
    Hultsjö, Sally
    et al.
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Berterö, Carina
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Arvidsson, Hans
    School of Health Sciences and Social Work, Växjö University, Sweden.
    Hjelm, Katarina
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Identifying core components in care of foreign-born persons with psychosis and their families: Using the Delphi techniqueManuscript (Other academic)
    Abstract [en]

    The purpose of this study was to let persons involved in psychosis care (foreign-born persons, families and health care staff) identify the core components in care of foreign-born persons with psychosis and their families in Sweden. The results from three previous qualitative studies consisting of perceptions of psychosis care were reformulated and structured into statements in a questionnaire which was delivered to 43 persons involved in psychosis care. The statements were scored in terms of perceived importance in two rounds using the Delphi technique. The results revealed agreement about the importance of general psychiatric care. Individual perceptions on which importance there was no agreement, suggested that staff must seek to understand a person’s individual perceptions to gain insight about ways to build an effective care alliance with foreign born persons with psychosis and their families.

  • 5.
    Hultsjö, Sally
    et al.
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Berterö, Carina
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Hjelm , Katarina
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Foreign-born and Swedish-born families perceptions of psychosis care2009In: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 18, no 1, p. 62-71Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to describe how foreign-born and Swedish born families living in Sweden perceive psychosis care. Eleven foreign-born and 15 Swedish-born family members were interviewed and the data were analyzed using a phenomenographic approach. The findings showed three main descriptive categories: taking responsibility, access to care, and attitudes to psychosis. The degree of responsibility in the family decreased if there was easy access to care and support from health-care staff. Knowledge of psychosis was considered to be important in order to counteract prejudiced attitudes in the family and the community. Foreign-born families did not want to be treated differently from Swedes and stressed the importance of finding ways to communicate despite communication barriers. Foreign-born families also were affected by their experiences of psychiatric care and different beliefs about psychosis in their home country. The results indicate how important it is that health-care staff members treat families on equal terms. It is necessary to take the time to identify how to communicate in a good manner and to identify families previous experiences of and beliefs about psychosis care in order to help families face prejudice in society and to see beyond the psychosis.

  • 6.
    Hultsjö, Sally
    et al.
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Berterö, Carina
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Hjelm, Katarina
    Linköping University, Department of Medicine and Health Sciences, Nursing Science. Linköping University, Faculty of Health Sciences.
    Perceptions of psychiatric care among foreign- and Swedish-born people with psychotic disorders2007In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 60, no 3, p. 279-288Article in journal (Refereed)
    Abstract [en]

    AIM: This paper is a report of a study to explore different perceptions of psychiatric care among foreign- and Swedish-born people with psychotic disorders.

    BACKGROUND: Research from different countries reports a high-incidence of psychosis among migrants. The risk-factors discussed are social disadvantages in the new country. To understand and meet the needs of people from different countries, their perspective of psychiatric care must be illuminated and taken into consideration.

    METHOD: A phenomenographic study was conducted in 2005-2006 using semi-structured interviews with a convenience sample of 12 foreign-born people and 10 Swedish-born people with psychosis.

    FINDINGS: Three categories were identified: personal and family involvement in care; relating to healthcare staff; and managing illness and everyday life. Foreign-born people differed from Swedish-born people in that they struggled to attain an everyday life in Sweden, relied on healthcare staff as experts in making decisions, and had religious beliefs about mental illness. Among Swedish-born people, the need for more support to relatives and help to perform recreational activities was important.

    CONCLUSION: It is important to identify individual perceptions and needs, which may be influenced by cultural origins, when caring for patients with psychosis. Previous experience of care, different ways of relating to staff, and individual needs should be identified and met with respect. Social needs should not be medicalized but taken into consideration when planning care, which illustrates the importance of multi-professional co-operation.

  • 7.
    Hultsjö, Sally
    et al.
    Ryhov County Hospital.
    Hjelm, Katarina
    University of Lund.
    Immigrants in emergency care: Swedish health care staff's experiences2005In: International Nursing Review, ISSN 0020-8132, E-ISSN 1466-7657, Vol. 52, no 4, p. 276-285Article in journal (Refereed)
    Abstract [en]

    Background: During the past few decades Sweden has developed into a multicultural society. The proportion of patients with different cultural backgrounds increases, which naturally makes new demands on health care staff.

    Aim: To identify whether staff in somatic and psychiatric emergency care experienced problems in the care of migrants, and if so to compare these.

    Method: The study design was explorative. Focus group interviews of 22 women and 13 men working as nurses and assistant nurses at an emergency ward, an ambulance service and a psychiatric intensive care unit were held.

    Findings: The results showed that the main problems experienced in all wards were difficulties related to caring for asylum-seeking refugees. Some dissimilarities were revealed: unexpected behaviours in migrants related to cultural differences described by staff working in the emergency ward; migrants' refusal to eat and drink and their inactive behaviour in the psychiatric ward; and a lot of non-emergency runs by the ambulance staff because of language barriers between the emergency services centre and migrants.

    Conclusion: The main problems experienced by the health care staff were situations in which they were confronted with the need to care for asylum-seeking refugees. Practice implications: These emphasize the importance of support from organizational structures and national policies to develop models for caring for asylum-seeking refugees. Simple routines and facilities to communicate with foreign-language-speaking migrants need to be developed. Health care staff need a deeper understanding of individual needs in the light of migrational and cultural background.

  • 8.
    Hultsjö, Sally
    et al.
    Linköping University, Faculty of Health Sciences. Linköping University, Department of Medicine and Care, Nursing Science.
    Hjelm, Katarina
    Linköping University, Faculty of Health Sciences. Linköping University, Department of Medicine and Care, Nursing Science.
    Mötet mellan vårdpersonal och patienter med utländsk bakgrund inom akutsjukvården i Sverige2006In: Flervetenskapliga perspektiv i migrationsforskning: årsbok 2006 från forskningsprofilen Arbetsmarknad, migration och etniska relationer (AMER) vid Växjö universitet / [ed] Katarina Hjelm, Växjö University Press , 2006, 1, p. 15-29Chapter in book (Other academic)
    Abstract [sv]

       

    Under mångkulturåret 2006 publiceras denna bok som är den fjärde årsboken från Växjö universitets forskningsprofil ”Arbetsmarknad, Migration och Etniska relationer (AMER). Forskningsprofilen inrättades år 2001 och får årligen betydande ekonomiskt stöd av Växjö universitet. Avsikten har varit att utveckla en forskningsmiljö omfattande fyra ämnen: historia, nationalekonomi, sociologi och vårdvetenskap. Via tilldelat anslag stöds även forskning inom den nationalekonomiska arbetsmarknadsforskargruppen CAFO och Växjö universitets samarbete med Svenska Emigrantinstitutet. Avsikten med forskningsmiljön är att utveckla och stimulera forskning och forskarutbildning inom området. Syftet är också att utveckla grundutbildningens innehåll och samverkan med det omgivande samhället.

    Bokens innehåll speglar flera vetenskapers syn på frågor inom migrationsområdet och känns extra viktig att publicera under år 2006 som utnämnts till mångkulturåret. Författarna i boken representerar inte enbart olika ämnesdiscipliner utan utgörs också av personer som kommer ifrån olika länder och med varierande erfarenhet och kompetens inom forskning.

    Att flytta till ett nytt land innebär en anpassningsprocess som kan inverka på migrantens hälsa. I boken återfinns tre kapitel som berör detta, två av dessa kommer ifrån ämnet vårdvetenskap och ett ifrån ämnet nationalekonomi. Unika resultat från Björn Albins doktorsavhandling redovisas i avsnittet ”Hälsa bland invandrare i Sverige i ett långtidsperspektiv”. Ny kunskap om erfarenheter av att vårda invandrare inom det svenska hälso-och sjukvårdssystemet har doktoranden Sally Hultsjö och docent Katarina Hjelm skrivit om i kapitlet ”Mötet mellan vårdpersonal och patienter med utländsk bakgrund inom akutsjukvården i Sverige”. Nydisputerade Maria Nilsson redovisar kunskapsläget kring ”Sjukfrånvaron bland invandrare i Sverige – Utvecklingen under perioden 1981-1991”. Faktorer som kan inverka på hälsa och sjukdom har att göra med t ex diskriminering men också med vilken generation av invandrare man tillhör. En junior- och en seniorforskare i ämnet nationalekonomi diskuterar metodologiska aspekter på dessa faktorer: Filosofie doktor Ali Ahmed och professor Jan Ekberg i kapitlet ”Kan diskriminering studeras med experimentella metoder?” och professor Jan Ekberg i avsnittet ”Kan man studera tre generationer invandrare i Sverige?”. En annan faktor av betydelse för anpassningen i det nya landet och levnadsvillkoren där är yrket och två avsnitt inom det sociologiska fältet berör detta: ”Svenska mot modersmål – utvecklingen av två olika lärargrupper” och ”Den gode invandraren bakar inte pizza – Invandrares företagande i svensk forskning och politik” vilka har författats av doktoranderna Anna-Maria Sarstrand respektive Henrik Hultman. Slutligen behöver vi historiska kunskaper för att förstå såväl vår samtid som framtid och boken avslutas med kapitlen ”…en, efter förhållandena utmärkt tillvaro…”- De danska flyktingarna, arbetsmarknadskommissionen och hjälpkommittén för danska flyktingar i Kalmar 1943” och ”Invandrare som önskade stanna. Ungerska lantarbetare i Sverige i slutet av 1940-talet” författade av filosofie doktorerna Malin Thor respektive Attila Lajos.

    Som redaktör är det särskilt glädjande att konstatera att de flesta av årsbokens kapitel är författade av doktorander eller tidigare doktorander inom forskningsprofilen AMER.

    Förhoppningen med boken är att de flervetenskapliga perspektiven skall bidraga till en ökad förståelse för mångkulturella spörsmål!

    Växjö i september 2006

  • 9.
    Hultsjö, Sally
    et al.
    Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Ryhov County Council, Jönköping, Sweden.
    Wärdig, Rikard
    Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences.
    Rytterström, Patrik
    Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Linköping University, Department of Medical and Health Sciences.
    The borderline between life and death: Mental healthcare professionals' experience of why patients commit suicide during ongoing care2019In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 28, no 9-10, p. 1623-1632Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES: To explore mental health professionals' experiences in regard to circumstances that cause the patient to take their own life during ongoing care.

    BACKGROUND: Suicide is a worldwide health problem, and of those who take their own life, nearly 20% have had contact with a psychiatric unit. Mental health professionals may have extended intuitive knowledge that has not been made visible. Mental health professionals' experiences can contribute knowledge that can complement suicide risk assessments and can be helpful in developing approaches and strategies where the hope is to identify and draw attention to people at risk of taking their own life.

    DESIGN: A reflective lifeworld research.

    METHODS: Twelve interviews with mental health professionals with experience of working in caring relationships with patients that had taken their life during the period of care. The study was performed in accordance with COREQ (see Supporting Information Data S1).

    RESULTS: Mental health professionals' experiences regarding circumstances that cause the patient to take their own life are related to the patient's life circumstances that led to a loss of dignity, and finally beyond retrieval. Mental health professionals share patients' struggle to choose between life and death, the darkness of their life and their hopeless situation. This shared experience also makes the mental health professionals wish to relieve patient's suffering but also gives them an understanding of why patients take their own life.

    CONCLUSIONS: The mental health professionals experience how the patient loses the possibility of living a worthwhile life, recognise darkness within the patient and see how the patient's life is fragile. Suicide described as logical and expected, based on their life and life circumstances, has not been found in previous research. Bearing this in mind, should psychiatric care focus on a proactive approach and act when these circumstances are identified?

    RELEVANCE TO CLINICAL PRACTICE: The Mental health professionals' tacit knowledge may be used to strengthen uncertain suicide assessments.

    The full text will be freely available from 2019-12-27 08:59
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