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Örulv, Linda
Publikationer (10 of 16) Visa alla publikationer
Örulv, L. (2023). Neurodiversity and dementia: Pitfalls, possibilities and some personal notes. In: Richard Ward, Linn J. Sandberg (Ed.), Critical Dementia Studies: An Introduction (pp. 247-262). ROUTLEDGE
Öppna denna publikation i ny flik eller fönster >>Neurodiversity and dementia: Pitfalls, possibilities and some personal notes
2023 (Engelska)Ingår i: Critical Dementia Studies: An Introduction / [ed] Richard Ward, Linn J. Sandberg, ROUTLEDGE , 2023, s. 247-262Kapitel i bok, del av antologi (Refereegranskat)
Abstract [en]

A citizenship perspective for dementia is increasingly gaining ground, recognising people with dementia as active agents within the boundaries of their condition and with a vulnerability to marginalisation. The time has come for dementia research to learn from critical perspectives and analytical tools within the disability movement(s) to investigate the relationship between the boundaries of the condition and the process of marginalisation. This chapter tentatively outlines how the concept of neurodiversity and (selectively) the neurodiversity paradigm can contribute to critical dementia studies, discussing both possibilities and pitfalls. Neurodiversity refers to perceived variations in cognitive, affectual and sensory functioning differing from the majority. A neurodiversity paradigm challenges norms around such functioning and points to how they alienate and marginalise minorities that diverge from them, subjecting them to so-called cognitive othering. Pitfalls discussed include relativising increasingly disruptive difficulties among people with dementia and undermining the struggle in some groups for acceptance of neurodiversity as a natural variation in no need of any cure. Delving into the nuances of self-advocacy within the group of people with dementia and other neuro-minorities respectively, as well as differences in how the conditions manifest, this chapter points to how the pitfalls might be navigated in order to avoid inviting harmful inferences and comparisons. An explorative stance is stipulated, allowing for norm-critical exploration of a wide and heterogenous spectrum of varieties in neuro-functioning, equating health with well-being rather than with what is statistically normal. This opens up to alternative ways of imagining the world, alternative relations and public spaces, and alternative knowledge production. Drawing on personal experiences of being a neurodivergent researcher, the chapter elucidates the benefits of approaching dementia without a neurotypical gaze. Finally, it discusses the potentials of opening to forms of sociality and communication that would not be centred around neurotypical norms.

Ort, förlag, år, upplaga, sidor
ROUTLEDGE, 2023
Nationell ämneskategori
Geriatrik
Identifikatorer
urn:nbn:se:liu:diva-218376 (URN)10.4324/9781003221982-23 (DOI)001183173400019 ()9781032118833 (ISBN)9781003221982 (ISBN)9781032118802 (ISBN)
Tillgänglig från: 2025-10-06 Skapad: 2025-10-06 Senast uppdaterad: 2026-03-26Bibliografiskt granskad
Bertilsdotter Rosqvist, H., Örulv, L., Hasselblad, S., Hansson, D., Nilsson, K. & Seng, H. (2020). Designing an autistic space for research: exploring the impact of context, space, and sociality in autistic writing processes. In: Rosqvist, HB; Chown, N; Stenning, A (Ed.), Neurodiversity studies: A New Critical Paradigm (pp. 156-171). London: ROUTLEDGE
Öppna denna publikation i ny flik eller fönster >>Designing an autistic space for research: exploring the impact of context, space, and sociality in autistic writing processes
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2020 (Engelska)Ingår i: Neurodiversity studies: A New Critical Paradigm / [ed] Rosqvist, HB; Chown, N; Stenning, A, London: ROUTLEDGE , 2020, s. 156-171Kapitel i bok, del av antologi (Refereegranskat)
Abstract [en]

In this chapter we will explore autistic writing processes from a neurodiversity perspective informed by a social-cognitive model of autism. The analyses in this chapter is based on two data sources: a) eleven narratives written by autistic people about their writing processes (we are among these writers ourselves) and b) authors’ analytical reflections about our own writing processes during the process of writing the chapter. The data has been analysed alongside autistic autism theories – theories developed by autistic researchers about autism; principally a cognitive theory of autistic thinking styles (Seng, 2019) and a social theory of autistic sociality in autistic spaces (Sinclair, 2010). The chapter aims both at analysing different autistic writing processes in themselves, and at contributing to the development of methods for supporting autistic writing collectives both inside and outside of academia. We argue for the importance of challenging the stereotype of autistic loners, rather stressing the importance of autistic togetherness.

Ort, förlag, år, upplaga, sidor
London: ROUTLEDGE, 2020
Nationell ämneskategori
Socialt arbete
Identifikatorer
urn:nbn:se:liu:diva-218640 (URN)000701925400011 ()9780429322297 (ISBN)9780367338312 (ISBN)
Tillgänglig från: 2025-10-09 Skapad: 2025-10-09 Senast uppdaterad: 2026-06-09Bibliografiskt granskad
Örulv, L. (2017). Self-help, mutual support and advocacy: peers getting together. In: Lars-Christer Hydén, Eleonor Antelius (Ed.), Living with dementia: relations, responses and agency in everyday life (pp. 168-187). Basingstoke: Palgrave Macmillan, Sidorna 168-187
Öppna denna publikation i ny flik eller fönster >>Self-help, mutual support and advocacy: peers getting together
2017 (Engelska)Ingår i: Living with dementia: relations, responses and agency in everyday life / [ed] Lars-Christer Hydén, Eleonor Antelius, Basingstoke: Palgrave Macmillan, 2017, Vol. Sidorna 168-187, s. 168-187Kapitel i bok, del av antologi (Refereegranskat)
Ort, förlag, år, upplaga, sidor
Basingstoke: Palgrave Macmillan, 2017
Nyckelord
Demens, Demenssjuka, Självhjälpsgrupper
Nationell ämneskategori
Geriatrik
Identifikatorer
urn:nbn:se:liu:diva-165271 (URN)9781137593740 (ISBN)
Tillgänglig från: 2020-04-21 Skapad: 2020-04-21 Senast uppdaterad: 2020-04-21Bibliografiskt granskad
Örulv, L. (2016). Självhjälpsgrupper, nätverk och aktivism (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 203-211). Malmö: Gleerups Utbildning AB
Öppna denna publikation i ny flik eller fönster >>Självhjälpsgrupper, nätverk och aktivism
2016 (Svenska)Ingår i: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, s. 203-211Kapitel i bok, del av antologi (Övrigt vetenskapligt)
Ort, förlag, år, upplaga, sidor
Malmö: Gleerups Utbildning AB, 2016 Upplaga: 1
Nyckelord
Demenssjuka, Demens
Nationell ämneskategori
Humaniora Sociologi (exklusive socialt arbete, socialpsykologi och socialantropologi)
Identifikatorer
urn:nbn:se:liu:diva-126090 (URN)978-91-4069-165-1 (ISBN)
Tillgänglig från: 2016-03-14 Skapad: 2016-03-14 Senast uppdaterad: 2016-04-04Bibliografiskt granskad
Örulv, L. & Strandroos, L. (2016). Vardagsdraman på det särskilda boendet (1ed.). In: Ingrid Hellström, Lars-Christer Hydén (Ed.), Att leva med demens: (pp. 79-86). Malmö: Gleerups Utbildning AB
Öppna denna publikation i ny flik eller fönster >>Vardagsdraman på det särskilda boendet
2016 (Svenska)Ingår i: Att leva med demens / [ed] Ingrid Hellström, Lars-Christer Hydén, Malmö: Gleerups Utbildning AB, 2016, 1, s. 79-86Kapitel i bok, del av antologi (Övrigt vetenskapligt)
Ort, förlag, år, upplaga, sidor
Malmö: Gleerups Utbildning AB, 2016 Upplaga: 1
Nyckelord
Demenssjuka, Demens
Nationell ämneskategori
Humaniora Sociologi (exklusive socialt arbete, socialpsykologi och socialantropologi)
Identifikatorer
urn:nbn:se:liu:diva-126091 (URN)978-91-4069-165-1 (ISBN)
Tillgänglig från: 2016-03-14 Skapad: 2016-03-14 Senast uppdaterad: 2016-04-04Bibliografiskt granskad
Nedlund, A.-C., Taghizadeh Larsson, A., Örulv, L. & Österholm, J. (2015). Voice: An Analytical Framework for Exploring Citizenship in Dementia Research. In: : . Paper presented at the 2015 International Conference on Claiming Full Citizenship: Self Determination, Personalization and Individualized Funding,October 15 - October 17, 2015 The Hyatt Regency, Vancouver, BC.
Öppna denna publikation i ny flik eller fönster >>Voice: An Analytical Framework for Exploring Citizenship in Dementia Research
2015 (Engelska)Konferensbidrag, Muntlig presentation med publicerat abstract (Refereegranskat)
Abstract [en]

We will present voice as an analytical framework to enhance the problematization and investigation of citizenship for people living with dementia. We will also discuss the strengths and the potential of using such a framework when doing research on citizenship in general, and more specifically, for people living with dementia. The analytical framework that we will propose focuses on the multiple accounts of voice in use. Thus, the framework does not only embrace the issue of "whose voices?", but also the various ways voice has been conceptualised, framed and understood in different theoretical and empirical contexts as well as how these together in different ways have the potential to shed light on the possibility for people with dementia to remain participative actors in their neighbourhood, in society and furthermore, to have the opportunity to claim full citizenship.

Nationell ämneskategori
Freds- och konfliktforskning Övrig annan samhällsvetenskap
Identifikatorer
urn:nbn:se:liu:diva-124431 (URN)
Konferens
the 2015 International Conference on Claiming Full Citizenship: Self Determination, Personalization and Individualized Funding,October 15 - October 17, 2015 The Hyatt Regency, Vancouver, BC
Projekt
Medborgarskap och demens, CEDER
Tillgänglig från: 2016-01-31 Skapad: 2016-01-31 Senast uppdaterad: 2025-02-20
Örulv, L. (2014). The subjectivity of disorientation: moral stakes and concerns. In: Lars-Christer Hydén, Hilde Lindemann, and Jens Brockmeier (Ed.), Beyond Loss: dementia, identity, personhood (pp. 191-207). Oxford: Oxford University Press
Öppna denna publikation i ny flik eller fönster >>The subjectivity of disorientation: moral stakes and concerns
2014 (Engelska)Ingår i: Beyond Loss: dementia, identity, personhood / [ed] Lars-Christer Hydén, Hilde Lindemann, and Jens Brockmeier, Oxford: Oxford University Press, 2014, s. 191-207Kapitel i bok, del av antologi (Refereegranskat)
Abstract [en]

This collection of interdisciplinary essays by international researchers tries to see beyond the loss in dementia, exploring it as transformation and change of personhood and identity that typically is embedded in social life. The chapters identify three important themes: persons and personhood, identity and agency, and the social and the communal.

Ort, förlag, år, upplaga, sidor
Oxford: Oxford University Press, 2014
Nyckelord
Dementia, Alzheimer's disease., Identity (Psychology), Self (Philosophy), Demens, Alzheimers sjukdom, Identitet (psykologi)
Nationell ämneskategori
Freds- och konfliktforskning Övrig annan samhällsvetenskap
Identifikatorer
urn:nbn:se:liu:diva-91269 (URN)9780199969265 (ISBN)
Tillgänglig från: 2013-04-18 Skapad: 2013-04-18 Senast uppdaterad: 2025-02-20Bibliografiskt granskad
Hydén, L.-C., Plejert, C., Samuelsson, C. & Örulv, L. (2012). Feedback and common ground in conversational storytelling involvning people with Alzheimer's disease. Journal of Interactional Research in Communication Disorders/Equinox, 4(2), 211-247
Öppna denna publikation i ny flik eller fönster >>Feedback and common ground in conversational storytelling involvning people with Alzheimer's disease
2012 (Engelska)Ingår i: Journal of Interactional Research in Communication Disorders/Equinox, ISSN 2040-5111, E-ISSN 2040-512X, Vol. 4, nr 2, s. 211-247Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

The present article focuses on feedback in storytelling involving people with Alzheimer’s disease (AD), and how feedback is related to the ways participants establish a common ground (Clark 1996) in interaction. The establishment of common ground is important in all kinds of interaction and becomes an especially intricate process if participants have AD, since the achievement of common ground requires the ability to draw from knowledge and experiences relating to past as well as present events; an ability that is often hampered by the disease. Analyses show that other aspects than the actual content of the conversation are important for the participants – for instance being together, supporting the positive identities both presented in the story and embodied in the socially rewarding activity that they manage to engage in, implying that the participants create and sustain a common ground not so much about the story-layer as of the storytelling activity.

Ort, förlag, år, upplaga, sidor
Equinox Publishing, 2012
Nationell ämneskategori
Humaniora och konst Medicin och hälsovetenskap Jämförande språkvetenskap och allmän lingvistik
Identifikatorer
urn:nbn:se:liu:diva-98070 (URN)
Forskningsfinansiär
Riksbankens Jubileumsfond, M10-0187:1
Tillgänglig från: 2013-09-27 Skapad: 2013-09-27 Senast uppdaterad: 2018-01-11Bibliografiskt granskad
Örulv, L. (2012). Reframing dementia in Swedish self-help group conversations: Constructing citizenship. International journal of self help & self care, 6(1), 9-41
Öppna denna publikation i ny flik eller fönster >>Reframing dementia in Swedish self-help group conversations: Constructing citizenship
2012 (Engelska)Ingår i: International journal of self help & self care, ISSN 1091-2851, E-ISSN 1541-4450, Vol. 6, nr 1, s. 9-41Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

This study explores on a micro-level the activity of a self-help group for persons with dementia in Swedish municipal care, based on audio-recordings from 18 months' ethnographic fieldwork. The study focuses on the discursive construction of a shared meaning perspective and its inherent possibilities for liberation. Applying a citizenship perspective, the study approaches people with dementia as vulnerable to marginalization while at the same time capable of agency within the boundaries of their condition. The findings paint a complex picture involving opportunities and limitations of experiential knowledge, issues of double stigmatization, and constructs of being interrelated with other people and with the surrounding society. In the center is the overarching struggle of retaining citizenship in the face of the evolving disease.

Ort, förlag, år, upplaga, sidor
Baywood Publishing Company, Inc., 2012
Nyckelord
Dementia, citizenship, self-help groups, mutual support, meaning perspective, experiential knwoledge, discourse, Sweden
Nationell ämneskategori
Freds- och konfliktforskning Övrig annan samhällsvetenskap
Identifikatorer
urn:nbn:se:liu:diva-72831 (URN)10.2190/SH.6.1.c (DOI)
Tillgänglig från: 2011-12-08 Skapad: 2011-12-08 Senast uppdaterad: 2025-02-20Bibliografiskt granskad
Örulv, L. (2011). Demens: diagnosen som utmanar våra rädslor och fördomar. In: Georg Drakos, Lars-Christer Hydén (Ed.), Diagnos & identitet: (pp. 100-129). Stockholm: Gothia Förlag AB
Öppna denna publikation i ny flik eller fönster >>Demens: diagnosen som utmanar våra rädslor och fördomar
2011 (Svenska)Ingår i: Diagnos & identitet / [ed] Georg Drakos, Lars-Christer Hydén, Stockholm: Gothia Förlag AB, 2011, s. 100-129Kapitel i bok, del av antologi (Övrigt vetenskapligt)
Ort, förlag, år, upplaga, sidor
Stockholm: Gothia Förlag AB, 2011
Nyckelord
diagnos, identitet, kollektiv identitet, demens, kognitiv svikt, föreställningar, förväntningar, upplevelser, levd erfarenhet, vardag, mening, kulturbundna rädslor, stigma, skam, osäkerhet, tid, kontroll, hantera, stöd, ömsesidighet, sociokulturellt perspektiv, etnografi, samtal
Nationell ämneskategori
Samhällsvetenskap
Identifikatorer
urn:nbn:se:liu:diva-72832 (URN)9789172057807 (ISBN)
Projekt
Demens och person, FAS dnr 2008-0334
Tillgänglig från: 2011-12-08 Skapad: 2011-12-08 Senast uppdaterad: 2015-08-21Bibliografiskt granskad
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