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Östlund, Gunnel, associate professorORCID iD iconorcid.org/0000-0002-3068-5384
Alternative names
Publications (4 of 4) Show all publications
Sverker, A., Thyberg, I., Valtersson, E., Björk, M., Hjalmarsson, S. & Östlund, G. (2020). Time to update the ICF by including socioemotional qualities of participation?: The development of a ‘patient ladder of participation’ based on interview data of people with early rheumatoid arthritis (The Swedish TIRA study). Disability and Rehabilitation, 42(9)
Open this publication in new window or tab >>Time to update the ICF by including socioemotional qualities of participation?: The development of a ‘patient ladder of participation’ based on interview data of people with early rheumatoid arthritis (The Swedish TIRA study)
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2020 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 42, no 9Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim of was to identify and illustrate in what situations and with what qualities people with early RA experience participation in every day’s life.

Methods: 59 patients (age 18-63 years) were interviewed; 25 men and 34 women. Content analysis was used to identify meaning units which were sorted based on type of situations described and later on, categories based on quality aspects of participation were developed.

Results: Participation was described as: 1. being part of a group, where a sense of belonging arose. 2. In doing activities with others for example at work or in leisure. 3. When sharing everyday chores and responsibilities for example in domestic duties. 4. When experiencing influence on actions such as when being asked for opinions on how to conduct a specific task. 5. When having the possibility to give direction of goals in rehabilitation, or elsewhere. 6. When sharing decision making and experiencing a high degree of influence in the situation.

Conclusions: Participation from an individual’s perspective is about belonging and having influence that mediates a positive feeling of being included and that you matter as a person. The results are important when using participation as a goal in clinical care. It’s important to expand participation beyond the definitions in ICF and guidelines to include the patients’ socio-emotional participation in order to promote health.

Place, publisher, year, edition, pages
Taylor & Francis, 2020
Keywords
Critical incident technique; patient perspective; qualitative study; rheumatoid arthritis rehabilitation; social participation
National Category
Nursing
Research subject
Public Health Sciences
Identifiers
urn:nbn:se:liu:diva-161572 (URN)10.1080/09638288.2018.1518494 (DOI)000531028600003 ()30634866 (PubMedID)2-s2.0-85059905050 (Scopus ID)
Available from: 2019-11-05 Created: 2019-11-05 Last updated: 2021-05-05Bibliographically approved
Östlund, G., Thyberg, I., Björk, M., Valtersson, E. & Sverker, A. M. (2017). Hur hanterar män med reumatoid artrit delaktighetsinskränkningar i vardagslivet?. Best Practice, 31(9), 10-13
Open this publication in new window or tab >>Hur hanterar män med reumatoid artrit delaktighetsinskränkningar i vardagslivet?
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2017 (Swedish)In: Best Practice, ISSN 1329-1874, Vol. 31, no 9, p. 10-13Article in journal (Other academic) Published
National Category
Medical and Health Sciences Health Sciences
Identifiers
urn:nbn:se:liu:diva-161549 (URN)
Available from: 2017-07-10 Created: 2019-11-04 Last updated: 2021-08-03
Östlund, G., Björk, M., Thyberg, I., Valtersson, E. & Sverker, A. (2015). Adjustment, avoidance, interaction, and acceptance strategies where used by men with participation restrictions due to early RA. In: : . Paper presented at EULAR The European League Against Rheumatism, Roma, 2015.
Open this publication in new window or tab >>Adjustment, avoidance, interaction, and acceptance strategies where used by men with participation restrictions due to early RA
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2015 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Background: Approximately 1/3 of patients diagnosed with the chronic disease Rheumatoid Arthritis (RA) are men, however few studies describe experiences and strategies to handle daily activities [2]. Daily life with a chronic disease means learning to live under new circumstances. This also foresee a continuous adaptation to new ways of living. The process of coping in which the individual change the perceived cause of stress as in problem-focused coping or when managing the emotions of stress, as in emotion-focused coping where first mentioned by Lazarus and Folkman [1]. Coping is described as an individual style to handle stressful events that might be changed over time.

Objectives: The aim was to explore men's strategies for dealing with participation restrictions in everyday life due to early RA.

Methods: This study is associated with the prospective multi-centre early arthritis project under the Swedish acronym “TIRA-2” [3]. Participants were 25 males of which 22 were work active, mean age 53 years, contemporary treated with mean disease duration of 3 years. Individual interviews were done using the Critical Incident Technique (CIT) [4]. The verbatim transcribed text were analyzed and categorized using content analysis. The study has been approved by the Ethics Committee.

Results: The men experienced that RA partly required a changed life style and most of them used a combination of strategies to deal with the participation restrictions in relation to RA. In the adjustment strategy new behaviors and tools were used to solve participation restrictions. The avoidance strategy included deliberate avoidance of possible participation restrictions, such as staying at home in the evenings and avoiding socializing with friends. The interaction strategy included to verbally express needs and give demands in relation to others both at work and in the family and ask for help when needed. The acceptance strategy was identified by the wordings used when talking about the experienced participation restrictions as “I accept that everything takes longer time”.

Conclusions: The interviewed men with early RA were contemporary treated and active in the work force, still, all of them had to deal with some participation restrictions. Moreover, this study claims that most men used a combination of strategies to deal with the experienced participation restriction.

National Category
Nursing
Identifiers
urn:nbn:se:liu:diva-161529 (URN)
Conference
EULAR The European League Against Rheumatism, Roma, 2015
Note

AB1221-HPR (2015)

Available from: 2016-09-29 Created: 2019-11-05
Östlund, G., Björk, M., Thyberg, I., Valtersson, E., Stenström, B. & Sverker, A. M. (2013). Emotions related to participation restrictions experienced by patients with early rheumatoid arthritis: A qualitative interview study (The Swedish TIRA study). In: : . Paper presented at The European League Against Rheumatism, Madrid, June (pp. 362-362). BMJ Publishing Group Ltd, 72
Open this publication in new window or tab >>Emotions related to participation restrictions experienced by patients with early rheumatoid arthritis: A qualitative interview study (The Swedish TIRA study)
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2013 (English)Conference paper, Poster (with or without abstract) (Refereed)
Place, publisher, year, edition, pages
BMJ Publishing Group Ltd, 2013
National Category
Social Work
Identifiers
urn:nbn:se:liu:diva-161546 (URN)000331587902502 ()
Conference
The European League Against Rheumatism, Madrid, June
Available from: 2013-07-17 Created: 2019-11-05
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-3068-5384

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