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Children & rsquo;s experiences of information, advice and support from healthcare professionals when their parent has a cancer disease- experiences from an oncological outpatient department
Linköpings universitet, Institutionen för hälsa, medicin och vård, Avdelningen för prevention, rehabilitering och nära vård. Linköpings universitet, Medicinska fakulteten. Jonkoping Univ, Sweden; Futurum Acad Hlth & Care, Sweden.ORCID-id: 0000-0002-0156-6677
Jonkoping Univ, Sweden; Linnaeus Univ, Sweden.
Jonkoping Univ, Sweden; Malmo Univ, Sweden.
2021 (engelsk)Inngår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 50, artikkel-id 101893Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Purpose: This study was carried out in order to evaluate children & rsquo;s experiences after taking part in the pilot clinical intervention & ldquo;See Me & rdquo; aimed at supporting children as relatives. Method: A qualitative explorative design with interviews was chosen, with analyses using an inductive approach. Interviews were conducted with 19 children (9 aged 7 & ndash;12 years and 10 aged 13 & ndash;18 years). The younger children were asked to draw a picture of a person in hospital, using the Child Drawing: hospital (CD:H) instrument to measure the child & rsquo;s level of anxiety. The older children completed the Caring Professional Scale (CPS) as a measure of the caring approach in their encounter with the nurse. Results: The interviews with the children show that: they felt expected and welcomed at the hospital; they needed knowledge about their parent & rsquo;s situation; they needed information and participation based on their individual situation; and they needed the nurse to offer them information and support. The results from the pictures showed that one child had above-average levels of anxiety. The older children reported that the nurses were Competent Practitioners, but to a lesser degree that they were Compassionate Healers. Conclusions: The results of this pilot study indicate that the structure of & ldquo;See Me & rdquo; could be used as a starting point to ensure that children as relatives receive information, advice, and support. Further the results indicate that both CD:H and CPS could be used to evaluated children & rsquo;s experiences of support when a parent has a long-term illness.

sted, utgiver, år, opplag, sider
ELSEVIER SCI LTD , 2021. Vol. 50, artikkel-id 101893
Emneord [en]
Children as relatives; Cancer; Clinical intervention; Support; Sweden
HSV kategori
Identifikatorer
URN: urn:nbn:se:liu:diva-175298DOI: 10.1016/j.ejon.2020.101893ISI: 000632612300006PubMedID: 33465701OAI: oai:DiVA.org:liu-175298DiVA, id: diva2:1547495
Tilgjengelig fra: 2021-04-27 Laget: 2021-04-27 Sist oppdatert: 2021-04-27bibliografisk kontrollert

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