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Maneuvering the care puzzle: Experiences of participation in care by frail older persons with significant care needs living at home
Linköping University, Department of Culture and Society, Division of Social Work. Linköping University, Faculty of Arts and Sciences.ORCID iD: 0000-0001-9293-4932
Linköping University, Department of Culture and Society, Division of Ageing and Social Change. Linköping University, Faculty of Arts and Sciences.ORCID iD: 0000-0002-1443-5895
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in Central Östergötland, Department of Acute Internal Medicine and Geriatrics.ORCID iD: 0000-0002-6452-3930
Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in Central Östergötland, Department of Activity and Health. Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine.
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2021 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 16, no 1, article id 1937896Article in journal (Refereed) Published
Abstract [en]

Purpose: Despite evidence that older persons want to be involved in care, little is known about how frail older people with significant care needs living at home experience participation in care provided by different stakeholders. This study investigates the experiences of participation in care by older people following their involvement in an intervention of a health care model called Focused Primary care (FPC).'Methods: Individual semi-structured interviews were conducted with 20 older persons in five municipalities in Sweden.Results: The results show that older persons highlighted opportunities and limitations for participation on a personal level i.e., conditions for being involved in direct care and in relation to independence. Experiences of participation on organizational levels were reported to a lesser degree. This included being able to understand the organizational system underpinning care. The relational dimensions of caregiving were emphasized by the older persons as the most central aspects of caregiving in relation to participation .Conclusions: Primary care should involve older persons more directly in planning and execution of care on all levels. An ongoing connection with one specialized elderly team and a coordinating person in Primary care who safeguards relationships is important fo rproviding participation in care for frail older persons with significant care needs living at home.

Place, publisher, year, edition, pages
Taylor & Francis, 2021. Vol. 16, no 1, article id 1937896
Keywords [en]
Older people; significant care needs; health care; primary care; participation; caregiving; relationship-based care; qualitative research
National Category
Social Work
Identifiers
URN: urn:nbn:se:liu:diva-178019DOI: 10.1080/17482631.2021.1937896ISI: 000673807500001PubMedID: 34261426OAI: oai:DiVA.org:liu-178019DiVA, id: diva2:1580924
Funder
Region Östergötland
Note

Funding: County Council of Ostergotland; Linkoping University from the strategic research fund for "Health Care and Welfare" [2016186-14]

Available from: 2021-07-17 Created: 2021-07-17 Last updated: 2023-06-18Bibliographically approved

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Olaison, AnnaCedersund, ElisabetMarcusson, JanSverker, Annette M.

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Olaison, AnnaCedersund, ElisabetMarcusson, JanValtersson, EvaSverker, Annette M.
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Division of Social WorkFaculty of Arts and SciencesDivision of Ageing and Social ChangeDivision of Prevention, Rehabilitation and Community MedicineFaculty of Medicine and Health SciencesDepartment of Acute Internal Medicine and GeriatricsDepartment of Activity and Health
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