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Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers
Linköping University, Department of Behavioural Sciences and Learning, Psychology. Linköping University, Faculty of Arts and Sciences.ORCID iD: 0000-0002-9111-0891
Vilnius University, Vilnius, Lithuania.
University of Groningen, Groningen, Netherlands; University of Twente, Enschede, Netherlands.
Linköping University, Department of Behavioural Sciences and Learning, Psychology. Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Biomedical and Clinical Sciences. Linköping University, Faculty of Medicine and Health Sciences. Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.ORCID iD: 0000-0003-4753-6745
2021 (English)In: Frontiers in Medicine, E-ISSN 2296-858X, Vol. 8Article in journal (Refereed) Published
Abstract [en]

Background: Informal caregivers are individuals who provide care for ill, frail, or otherwise dependent family members, siblings, or friends. Due to the caregiving demands, informal caregivers are known to experience negative mental health symptoms, such as stress or anxiety. Interventions based on Internet-based Cognitive Behavioral Therapy (ICBT) principles have been previously found to be effective for different populations and could also be considered as a plausible support option for informal caregivers. However, findings regarding effectiveness alone might not be sufficient for informing about the overall feasibility of the intervention.

Objective: The aim of this process evaluation study was to evaluate the feasibility of a previously developed ICBT intervention for informal caregivers in Lithuania. More specifically, we evaluated the suitability of the intervention in relation to its content and delivery mode.

Methods: Two studies were conducted. Study 1 consisted of participant evaluations of an 8-week, 8-module long therapist supported ICBT intervention. Evaluations for the Study 1 were retrieved from previously unused data, obtained from pilot testing of the intervention in which 63 informal caregivers took part. The evaluations contained of qualitative data (participant comments), as well as quantitative data (evaluations of each of the sessions). The Study 2 was an online stakeholder focus-group discussion conducted via Zoom. Eight stakeholders took part in the discussion, among whom there were social workers, medical professionals as well as individuals with caregiving experience themselves. Data were analyzed using descriptive statistics, thematic analysis, and data coding.

Results: Results of the Study 1 showed that most of the pilot randomized controlled trial participants evaluated content and format of the intervention positively. These results were complemented by the findings in the Study 2, in which stakeholders evaluated the intervention as suitable and promising. In addition, stakeholders made certain suggestions for improving the intervention’s usability for the informal caregivers. This included improving the instructions, providing with more guidance, and considering personalization options.

Conclusion: The process evaluation helped to evaluate the feasibility of the ICBT intervention for informal caregivers in Lithuania from the two perspectives: users and stakeholders. Our findings suggest that the intervention is suitable for the target population.

Place, publisher, year, edition, pages
Frontiers Media S.A., 2021. Vol. 8
Keywords [en]
process evaluation; ICBT; informal caregivers; feasibility; focus group
National Category
Applied Psychology
Identifiers
URN: urn:nbn:se:liu:diva-181004DOI: 10.3389/fmed.2021.725510ISI: 000725595900001PubMedID: 34869422OAI: oai:DiVA.org:liu-181004DiVA, id: diva2:1611457
Note

Funding agencies:This project has received funding from the European Union’sHorizon 2020 research and innovation programme under theMarie Skłodowska-Curie grant agreement No. 814072 andis part of The European Training Network on InformalCare (ENTWINE).

Available from: 2021-11-15 Created: 2021-11-15 Last updated: 2022-05-23Bibliographically approved
In thesis
1. Care for the Caregiver: Internet intervention for informal caregivers in Lithuania
Open this publication in new window or tab >>Care for the Caregiver: Internet intervention for informal caregivers in Lithuania
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Informal caregivers are individuals who provide care for significant others in need of support due to frailty or illness. Being able to support a family member can be a very rewarding but at the same time a demanding task. Consequently, informal caregivers are known to experience not only positive but also negative psychological health outcomes and should be offered appropriate support. The main goal of this thesis was to evaluate if Internet-based Cognitive Behavioural Therapy (ICBT) can be suited to provide Lithuanian informal caregivers with psychological support. In addition, a secondary aim was to collect information regarding Lithuanian informal caregiver characteristics, their experienced burden and support needs.

The results showed that Lithuanian informal caregivers experience unmet support needs and a high caregiver burden. The findings also show that ICBT can be an effective and acceptable support option for Lithuanian informal caregivers in reducing their burden, depression, anxiety, stress and increasing the perceived quality of life. In conclusion, ICBT should be considered a promising psychological support option for Lithuanian informal caregivers. Further research is needed to evaluate the suitability of ICBT in regular care.

Abstract [sv]

Informella vårdgivare är personer som tar hand om närstående som behöver stöd på grund av funktionsnedsättningar eller sjukdom. Att kunna stödja en närstående kan vara en givande men samtidigt krävande uppgift. Följaktligen är det känt att informella vårdgivare inte bara upplever positiva utan även negativa psykologiska hälsorisker och bör erbjudas lämpligt stöd. Huvudsyftet med denna avhandling var att utvärdera om internetbaserad kognitiv beteendeterapi (IKBT) kan vara ett lämpligt alternativ för att ge litauiska informella vårdgivare psykologiskt stöd. Dessutom var ett sekundärt mål att samla in information om litauiska informella vårdgivare, inklusive deras upplevda börda och behov av stöd.

Resultaten visade att litauiska informella vårdgivare har behov av stöd och en omfattande vårdgivarbörda. Resultaten visar också att ICBT kan vara ett effektivt och acceptabelt alternativ för litauiska informella vårdgivare för att minska deras börda, depression, ångest, stress samt öka den upplevda livskvaliteten. Sammanfattningsvis kan ICBT betraktas som ett lovande psykologiskt stödalternativ för litauiska informella vårdgivare. Ytterligare forskning krävs för att utvärdera om IKBT kan vara ett lämpligt alternativ i den reguljär vård.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2022. p. 79
Series
Linköping Studies in Arts and Sciences, ISSN 0282-9800 ; 831Linköping Studies in Behavioural Science, ISSN 1654-2029 ; 239
Keywords
Informal caregivers, Cognitive behavioural therapy, Internet interventions, ICBT, Caregiver burden, Informella vårdgivare, Närståendebörda, Internetbaserad intervention, Kognitiv beteendeterapi, Internetbaserad kognitiv beteendeterapi, IKBT, E-hälsa
National Category
Applied Psychology
Identifiers
urn:nbn:se:liu:diva-182174 (URN)10.3384/9789179291877 (DOI)9789179291860 (ISBN)9789179291877 (ISBN)
Public defence
2022-04-01, C3, C Building, Campus Valla, Linköping, 13:00 (English)
Opponent
Supervisors
Funder
EU, Horizon 2020, 814072
Available from: 2022-02-18 Created: 2022-01-17 Last updated: 2022-02-18Bibliographically approved

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Biliunaite, IevaAndersson, Gerhard

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