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Prevalence, content and significance of advance care planning in nursing home patients
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Primary Care Center, Primary Health Care Center Kisa.
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Primary Care Center, Primary Health Care Center Kärna.
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in Central Östergötland, Närvårdskliniken. Linköping University, Department of Biomedical and Clinical Sciences, Division of Surgery, Orthopedics and Oncology.
Primary Hlth Care Ctr Wetterhalsan, Sweden.
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2022 (English)In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 40, no 1, p. 29-38Article in journal (Refereed) Published
Abstract [en]

Objective Studies on advance care planning in nursing homes are rare, and despite their demonstrated favourable effects on end-of-life care, advance care plans are often lacking. Therefore, we wished to explore: (i) the prevalence of advance care plans in a Swedish nursing home setting using two different definitions, (ii) the content of advance care plans, (iii) adherence to the content of care plans and (iv) possible associations between the presence of advance care planning and background characteristics, physician attendance and end-of-life care. Design Retrospective chart review. Setting Twenty-two nursing homes in Sweden. Subjects A total of 367 deceased patients (included between 1 June 2018 and 23 May 2020) who had lived in nursing homes. Main outcome measures Electronic health record data on the prevalence of advance care plans with two different definitions and variables regarding background characteristics, physician attendance and end-of-life care, were collected. Results Of the study population, 97% had a limited care plan (ACP I) documented. When using the comprehensive definition (ACP II), also including patients preferences and involvement of family members in advance care planning, the prevalence was 77%. Patients with dementia more often had care plans, and a higher physician attendance was associated with presence of advance care plans. Prescription of palliative drugs and information to family members of the patients deterioration and impending death were more common in patients with care plans compared to those where such plans were missing. There was adherence to the care plan content. Conclusion In contrast to previous research, this study showed a high prevalence of advance care plans in nursing home patients. Patients with care plans more frequently received prescriptions of palliative drugs and their family members were informed to a greater extent about the patients deterioration and impending death compared to those without care plans. These aspects are often seen as vital components of good palliative care.

Place, publisher, year, edition, pages
Taylor & Francis Ltd , 2022. Vol. 40, no 1, p. 29-38
Keywords [en]
Advance care planning; end-of-life care; nursing homes; palliative care; primary healthcare
National Category
Nursing
Identifiers
URN: urn:nbn:se:liu:diva-183419DOI: 10.1080/02813432.2022.2036429ISI: 000756152500001PubMedID: 35170393OAI: oai:DiVA.org:liu-183419DiVA, id: diva2:1643867
Note

Funding Agencies|Medical Research Council of Southeast SwedenUK Research & Innovation (UKRI)Medical Research Council UK (MRC) [FORSS-930962, FORSS-940756]; County Council of Ostergotland [RO-938269]

Available from: 2022-03-11 Created: 2022-03-11 Last updated: 2023-05-04Bibliographically approved

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Kastbom, LisaFalk, MagnusKarlsson, MaritMilberg, Anna

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Division of Prevention, Rehabilitation and Community MedicineFaculty of Medicine and Health SciencesPrimary Health Care Center KisaPrimary Health Care Center KärnaNärvårdsklinikenDivision of Surgery, Orthopedics and OncologyDepartment of Advanced Home Care in Norrköping
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