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Swedish Translation and Psychometric Validation of the Paediatric Throat Disorders Outcome Test (T-14)
Linköping University, Department of Biomedical and Clinical Sciences, Division of Sensory Organs and Communication. Linköping University, Faculty of Medicine and Health Sciences. Dept Otorhinolaryngol, Sweden.
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Nursing Sciences and Reproductive Health. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Anaesthetics, Operations and Specialty Surgery Center, Department of Clinical Neurophysiology. Jönköping Univ, Sweden; Western Norway Univ Appl Sci, Norway.ORCID iD: 0000-0002-0433-0619
Örebro Univ, Sweden.
Helsingborg Hosp, Sweden.
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2026 (English)In: Laryngoscope Investigative Otolaryngology (LIO), E-ISSN 2378-8038, Vol. 11, no 2, article id e70413Article in journal (Refereed) Published
Abstract [en]

Purpose: This study aimed to translate the T-14 questionnaire into Swedish and validate it in a Swedish pediatric population with tonsil-related disease. Methods: A prospective validation study was conducted across five Swedish otorhinolaryngology departments from October 2022 to June 2024. Translation followed a standardized forward-backward procedure. Caregivers of patients (< 16 years) scheduled for tonsil surgery completed the Swedish T-14 and EQ-5D-Y VAS (EuroQol five-Dimensional questionnaire for Youth, Visual Analog Scale [VAS]) at baseline, 2weeks later, and 6months postoperatively. A healthy control group was included for comparison. Psychometric evaluation included known-groups validity (Mann-Whitney U), construct validity (confirmatory factor analysis), convergent validity (Spearman's correlation), internal consistency (Cronbach's alpha), test-retest reliability (intraclass correlation coefficient), and responsiveness (Wilcoxon signed-rank, Cohen's d). Results: A total of 249 participants were included (case group 169, control group 80). Known-groups validity was confirmed, with significantly higher baseline T-14 scores in the case group (p < 0.001). Confirmatory factor analysis supported the predefined two-factor model (comparative fit index = 0.94, Tucker-Lewis index = 0.92, standardized root mean square residual = 0.061), although root mean square error of approximation (0.099) indicated some misfit. Convergent validity was demonstrated by a weak but significant negative correlation with EQ-5D-Y VAS (rs = -0.32; p < 0.001). Internal consistency was good (alpha= 0.83), and test-retest reliability showed good stability (ICC = 0.77). Responsiveness was strong, with a large reduction in T-14 scores 6 months after surgery (p < 0.001; Cohen's d = 1.89). Conclusion: T-14 demonstrated good validity, reliability, and responsiveness, effectively distinguishing patients from healthy controls. It is suitable for clinical use and enables comparisons with international studies.

Place, publisher, year, edition, pages
WILEY , 2026. Vol. 11, no 2, article id e70413
Keywords [en]
child; patient-reported outcome measure; T-14; tonsil surgery; validation study
National Category
Gastroenterology and Hepatology
Identifiers
URN: urn:nbn:se:liu:diva-223525DOI: 10.1002/lio2.70413ISI: 001748870600001PubMedID: 42046666Scopus ID: 2-s2.0-105036686630OAI: oai:DiVA.org:liu-223525DiVA, id: diva2:2057450
Note

Funding Agencies|Futurum-Akademin fr Hlsa och Vrd, Region Jnkpings lns [1035510]; Stiftelsen Acta Oto-Laryngologica

Available from: 2026-05-05 Created: 2026-05-05 Last updated: 2026-07-01
In thesis
1. Pediatric Tonsil and Adenoid Surgery: Epidemiology, Surgical Outcomes, and Patient‑Reported Measures
Open this publication in new window or tab >>Pediatric Tonsil and Adenoid Surgery: Epidemiology, Surgical Outcomes, and Patient‑Reported Measures
2026 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Tonsil and adenoid surgery are among the most commonly performed pediatric procedures in Sweden, yet important knowledge gaps remain regarding indications, outcomes, complication risks, and the associated patient‑reported symptom burden. The overarching aim of this thesis was to examine key aspects of contemporary clinical practice related to pediatric tonsil and adenoidectomy surgery in Sweden, with focus on epidemiology, safety, surgical outcomes, and the development and validation of a Swedish version of a pediatric patient‑reported outcome measure (PROM). The thesis comprises four studies based on register data, clinical outcome analyses, and psychometric validation.

Paper I mapped the national epidemiology of pediatric adenoidectomy between 2004 and 2013 using data from the National Patient Register. Hypertrophy was the most common indication, and combined adenotonsillar surgery was the most common procedure. Adenoidectomy was performed mainly in children aged 2-5 years, with higher incidence among boys.

Paper II examined postoperative morbidity and mortality following adenoidectomy in 51,746 procedures performed between 2007 and 2017. Late postoperative hemorrhage was rare, late bleeding events requiring return to theatre were exceptionally uncommon, and no deaths attributable to adenoidectomy were identified, confirming that the procedure is highly safe in the Swedish context.

Paper III evaluated postoperative bleeding, revision surgery, and caregiver‑reported symptom relief following 1,810 cold steel tonsillotomy procedures with or without adenoidectomy over a 10‑year period. The technique demonstrated low rates of postoperative bleeding, acceptable revision rates, and high caregiver‑reported symptom improvement. At the same time, the technique keeps instrument costs low and reduces environmental impact by avoiding disposable devices and advanced equipment.

Paper IV translated and validated the Paediatric Throat Disorders Outcome Test (T‑14) into Swedish. The instrument demonstrated strong known‑groups validity, an acceptable model fit in confirmatory factor analysis, good internal consistency, and high responsiveness to postoperative changes. The Swedish T‑14 enables structured pre‑ and postoperative assessment of symptom burden and demonstrates potential value for both clinical practice and future research.

Together, the findings demonstrate that pediatric adenoidectomy and cold‑steel tonsillotomy are safe procedures with low complication rates in routine clinical care. The thesis highlights important gaps in national outcome monitoring, particularly the lack of preoperative patient‑reported measures. The findings and the instrument presented may contribute to more informed evaluation, follow‑up, and clinical decision‑making in pediatric adenotonsillar surgery.

Place, publisher, year, edition, pages
Linköping: Linköping University Electronic Press, 2026. p. 88
Series
Linköping University Medical Dissertations, ISSN 0345-0082 ; 2025
Keywords
Adenoidectomy, Tonsillotomy, Pediatric otolaryngology, Postoperative hemorrhage, Patient‑reported outcome measures, T‑14
National Category
Oto-rhino-laryngology
Identifiers
urn:nbn:se:liu:diva-222887 (URN)10.3384/9789181184105 (DOI)9789181184099 (ISBN)9789181184105 (ISBN)
Public defence
2026-05-22, Aulan, Länssjukhuset Ryhov, Jönköping, 13:00
Opponent
Supervisors
Note

Funding: This research was supported by grants from Futurum, the Academy for Healthcare, Jönköping County Council; FORSS, the Research Council of South‑Eastern Sweden; and the Acta Oto‑Laryngologica Foundation. 

2026-04-15: The thesis was first published online. The online published version reflects the printed version.

2026-06-08: The thesis was updated with an errata list which is also downloadable from the DOI landing page. Before this date the PDF has been downloaded 126 times.

Available from: 2026-04-15 Created: 2026-04-15 Last updated: 2026-06-08Bibliographically approved

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