Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregiversShow others and affiliations
2021 (English)In: Research in Autism Spectrum Disorders, ISSN 1750-9467, E-ISSN 1878-0237, Vol. 84, article id 101765Article in journal (Refereed) Published
Abstract [en]
Background: Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method: This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n = 62) and without (n = 216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results: Univariate analysis showed that caregivers of children on the autism spectrum with cooccurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions: The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports.
Place, publisher, year, edition, pages
ELSEVIER SCI LTD , 2021. Vol. 84, article id 101765
Keywords [en]
Autism; Child; Disability; Family; Routine; Intellectual disability
National Category
Public Health, Global Health and Social Medicine
Identifiers
URN: urn:nbn:se:liu:diva-175963DOI: 10.1016/j.rasd.2021.101765ISI: 000646742100008OAI: oai:DiVA.org:liu-175963DiVA, id: diva2:1558886
Note
Funding Agencies|Lishman Health Foundation
2021-06-012021-06-012025-02-20