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Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers
Curtin Univ, Australia.
Curtin Univ, Australia; Edith Cowan Univ, Australia.
Curtin Univ, Australia.
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Anaesthetics, Operations and Specialty Surgery Center, Pain and Rehabilitation Center. Curtin Univ, Australia.
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2021 (English)In: Research in Autism Spectrum Disorders, ISSN 1750-9467, E-ISSN 1878-0237, Vol. 84, article id 101765Article in journal (Refereed) Published
Abstract [en]

Background: Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method: This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n = 62) and without (n = 216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results: Univariate analysis showed that caregivers of children on the autism spectrum with cooccurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions: The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports.

Place, publisher, year, edition, pages
ELSEVIER SCI LTD , 2021. Vol. 84, article id 101765
Keywords [en]
Autism; Child; Disability; Family; Routine; Intellectual disability
National Category
Public Health, Global Health and Social Medicine
Identifiers
URN: urn:nbn:se:liu:diva-175963DOI: 10.1016/j.rasd.2021.101765ISI: 000646742100008OAI: oai:DiVA.org:liu-175963DiVA, id: diva2:1558886
Note

Funding Agencies|Lishman Health Foundation

Available from: 2021-06-01 Created: 2021-06-01 Last updated: 2025-02-20

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Falkmer, Torbjörn
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Division of Prevention, Rehabilitation and Community MedicineFaculty of Medicine and Health SciencesPain and Rehabilitation Center
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