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Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries: a survey with a descriptive cross-sectional design
Sunnaas Rehabil Hosp, Norway; Oslo Metropolitan Univ, Norway.
Sunnaas Rehabil Hosp, Norway.
Sunnaas Rehabil Hosp, Norway.
Sunnaas Rehabil Hosp, Norway; Sunnaas Rehabil Hosp, Norway.
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2022 (English)In: Spinal Cord, ISSN 1362-4393, E-ISSN 1476-5624, Vol. 60, no 4, p. 339-347Article in journal (Refereed) Published
Abstract [en]

Study design International multicentre cross-sectional study. Objectives To describe the organisation and systems of paediatric spinal cord injury (SCI) rehabilitation services in seven countries and compare them with available recommendations and key features of paediatric SCI. Setting Ten SCI rehabilitation units in seven countries admitting children and adolescents with SCI < 18 years of age. Methods An online survey reporting data from 2017. Descriptive and qualitative analysis were used to describe the data. Results The units reported large variations in catchment area, paediatric population and referrals, but similar challenges in discharge policy. Nine of the units were publicly funded. Three units had a paediatric SCI unit. The most frequent causes of traumatic injury were motor vehicle accidents, falls, and sports accidents. Unlike the other units, the Chinese units reported acrobatic dancing as a major cause. Mean length of stay in primary rehabilitation ranged between 18 and 203 days. Seven units offered life-long follow-up. There was a notable variation in staffing between the units; some of the teams were not optimal regarding the interdisciplinary and multiprofessional nature of the field. Eight units followed acknowledged standards and recommendations for specialised paediatric SCI rehabilitation and focused on family-centred care and rehabilitation as a dynamic process adapting to the child and the family. Conclusions As anticipated, we found differences in the organisation and administration of rehabilitation services for paediatric SCI in the ten rehabilitation units in seven countries. This might indicate a need for internationally approved, evidence-based guidelines for specialised paediatric SCI rehabilitation.

Place, publisher, year, edition, pages
SPRINGERNATURE , 2022. Vol. 60, no 4, p. 339-347
National Category
Physiotherapy
Identifiers
URN: urn:nbn:se:liu:diva-181451DOI: 10.1038/s41393-021-00726-1ISI: 000720685800001PubMedID: 34802054OAI: oai:DiVA.org:liu-181451DiVA, id: diva2:1615355
Note

Funding Agencies|South-Eastern Norway Regional Health Authority; Ministry of Health and Care Services in Norway (HOD); Sunnaas Rehabilitation Hospital

Available from: 2021-11-30 Created: 2021-11-30 Last updated: 2025-02-11

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Ertzgaard, Per
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Division of Prevention, Rehabilitation and Community MedicineFaculty of Medicine and Health SciencesDepartment of Rehabilitation Medicine
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Citation style
  • apa
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