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Narrative identity and dementia: The problem of living with fewer available resources
Linköping University, Department of Culture and Society, Division of Ageing and Social Change. Linköping University, Faculty of Arts and Sciences.ORCID iD: 0000-0002-3033-9879
Linköping University, Department of Behavioural Sciences and Learning, Psychology. Linköping University, Faculty of Arts and Sciences.
2020 (English)In: Identity Construction and Illness Narratives in Persons with Disabilities / [ed] Glintborg, C. & de la Mata, M. L., Routledge, 2020Chapter in book (Refereed)
Abstract [en]

A growing number of researchers have argued that both identity and self are narrative: a person’s identity develops and changes through a constant narrative elaboration and revision. Disorders like Alzheimer’s disease as well as many other brain disorders challenge the idea of a connection between human identity and stories. The reason for this is that dementia changes not only the story but also the storyteller: the kind of stories persons living with dementia tell often tend to deviate from cultural narrative norms and expectations. Storytelling is still a relevant activity for the person with dementia at all the different stages of the disease process for the simple reason that both the person with dementia and other family members have much of their identity invested in everyday stories, and they all continue to tell stories even when the person with dementia has severe problems with telling the stories. In dementia the pathological brain processes imply changes in the functional systems of the brain so that processes of the construction and maintenance of identities have less functional brain resources (episodic memory for instance). A consequence of the shifts in brain functionalities and resources is that narratives and identities become more dependent on other persons and socially and physically distributed cognitive processes. As the dementia progresses the patterns of engagement of the person with dementia in the storytelling activity will change. Some persons with dementia can tell autobiographical stories on their own, while others can do it with support, especially from their spouses. In this chapter we review how an interactional perspective so far has been used to understand the processes that produce narratives and identities of people with dementia across different types and stages of dementia. Also, drawing on our own and previous research, we suggest a framework for how narratives and identity construction can be understood in the case of dementia through the idea of collaborative compensatory adaption.

Place, publisher, year, edition, pages
Routledge, 2020.
Series
Interdisciplinary disability studies
National Category
Sociology (Excluding Social Work, Social Anthropology, Demography and Criminology)
Identifiers
URN: urn:nbn:se:liu:diva-188072Libris ID: lz39g1jljdhlgj67ISBN: 9781003021612 (electronic)OAI: oai:DiVA.org:liu-188072DiVA, id: diva2:1692651
Available from: 2022-09-02 Created: 2022-09-02 Last updated: 2025-02-17Bibliographically approved

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Hydén, Lars-ChristerForsblad, Mattias

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Division of Ageing and Social ChangeFaculty of Arts and SciencesPsychology
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Citation style
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