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“Mum Helps Me When the Internet Messes Up…”: Accessibility of eHealth Services for People with Intellectual Disability
Department of Psychoeducation and Psychology, Université du Québec en Outaouais, Gatineau, Qc, Canada.ORCID iD: 0000-0002-8250-1233
Center for Clinical Research Dalarna, Uppsala University, Falun, Sweden; Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden; School of Health and Welfare, Dalarna University, Falun, Sweden.ORCID iD: 0000-0002-8709-4446
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences.ORCID iD: 0000-0002-6413-584X
Social Research Center and Rehabilitation Technology, TU Dortmund University, Dortmund, Germany.ORCID iD: 0000-0002-1222-9246
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2024 (English)In: Universal Access in Human-Computer Interaction: 18th International Conference, UAHCI 2024, Held as Part of the 26th HCI International Conference, HCII 2024, Washington, DC, USA, June 29 – July 4, 2024, Proceedings, Part II / [ed] Margherita Antona, Constantine Stephanidis, Springer, 2024, p. 213-230Conference paper, Published paper (Refereed)
Abstract [en]

Many services have become digitized in society, including health services. Although there are many advantages to eHealth services, some segments of the population cannot reap those benefits.

Objectives: This study aimed to: 1- describe how people with intellectual disability use the internet in Sweden; and 2- understand the nature of the contextual and personal barriers these users face when trying to access eHealth services in particular.

Methods: Data from the nationwide survey “Swedes with Impairment and the Internet 2021” (SMFOI-21) were extracted for a subsample of 154 people with self-declared intellectual disability.

Results: Findings reveal that people with intellectual disability used the internet predominantly for entertainment purposes. Challenges arose in more complex online activities, like internet searches, logging into eHealth services, booking medical appointments, and financial transactions. Participants relied on support from family, guardians or staff to read, write, create and memorise passwords, understand content, or solve technical problems encountered. They expressed a desire to engage more independently in the digital society but faced barriers due to the cognitive requirements of using apps and the internet as designed by computer scientists, difficulties in navigating complex online processes, such as eHealth services, and a lack of accessible infrastructure. Conclusion: This research underscores the importance of improved accessibility, simplified interfaces, clearer instructions, and a supportive ecosystem to enhance their digital inclusion. It is a matter of people with intellectual disability being afforded equal rights to access health services.

Place, publisher, year, edition, pages
Springer, 2024. p. 213-230
Series
Lecture Notes in Computer Science, ISSN 0302-9743, E-ISSN 1611-3349 ; 14697
Keywords [en]
eHealth, Intellectual Disabilities, Digital Inclusion, Health Literacy, Impairments
National Category
Information Systems, Social aspects
Identifiers
URN: urn:nbn:se:liu:diva-204434DOI: 10.1007/978-3-031-60881-0_14ISI: 001285842600014OAI: oai:DiVA.org:liu-204434DiVA, id: diva2:1867801
Conference
18th International Conference, UAHCI 2024, HCII 2024, Washington, DC, USA, June 29 – July 4, 2024
Available from: 2024-06-11 Created: 2024-06-11 Last updated: 2025-02-17

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Alfredsson Ågren, Kristin

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Normand, Claude L.Gustavsson, CatharinaAlfredsson Ågren, KristinHeitplatz, Vanessa N.Chadwick, Darren D.Johansson, Stefan
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