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Experiences of participation in people with intellectual disability, in relation to service support received, and views from professionals in the field of disability
Karolinska Inst, Sweden.
Linköping University, Department of Biomedical and Clinical Sciences, Center for Social and Affective Neuroscience. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Behavioural Sciences and Learning, Disability Research Division. Linköping University, Faculty of Arts and Sciences. Univ Gothenburg, Sweden.
Linköping University, Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine. Linköping University, Faculty of Medicine and Health Sciences. Uppsala Univ, Sweden.ORCID iD: 0000-0002-1545-3876
2024 (English)In: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309Article in journal (Refereed) Epub ahead of print
Abstract [en]

Purpose: to describe experiences of people with intellectual disability of participating in the cognitive adapted annual national user survey of social services, and their perception of participation in the municipalities' improvement work. Additionally, social service professionals' views of opportunities to involve people with intellectual disability in improvement work based on survey results. Methods: Focus groups of people with intellectual disability and individual interviews with professionals were conducted and analysed, using content analysis. Results: People with intellectual disability expressed they felt listened to, and supported in expressing their views, but there was discrepancy between their and professionals' perceptions of whether their views were considered, and if they were involved in the improvement process. Conclusions: Evaluating services received from social services is important, expressed by people with intellectual disability and professionals, but improvement is needed to feed back results to social services clients, and to involve them in the improvement process.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS LTD , 2024.
Keywords [en]
accessibility; autonomy; cognitive accessibility; human rights; intellectual disability
National Category
Social Work
Identifiers
URN: urn:nbn:se:liu:diva-207194DOI: 10.1177/17446295241272692ISI: 001287267500001PubMedID: 39117306OAI: oai:DiVA.org:liu-207194DiVA, id: diva2:1895007
Note

Funding Agencies|Swedish Research Council for Health, Working Life and Welfare (FORTE) [2019-01451]; Forte [2019-01451] Funding Source: Forte

Available from: 2024-09-04 Created: 2024-09-04 Last updated: 2024-09-04

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Wennberg, BirgittaKäcker, PiaLidström, Helene
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Journal of Intellectual Disabilities
Social Work

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