Background:

Individuals who develop Young Onset Dementia (YOD) or Mild Cognitive Impairment (MCI) when they are working, experience difficulties completing work tasks. Most legislative guidelines for workplace accommodations, are geared toward physical and mental health problems, and are not easily transferable to individuals with cognitive impairments. This study aimed to explore workplace accommodations for individuals living with YOD to maintain meaningful work.

Method:

Semi-structured interviews about their experiences at work were conducted with 28 individuals in Canada, Finland, and Sweden.

Result:

Thematic analysis uncovered an overarching theme of ‘workplace context’ plus cross-cutting themes of ‘adapted accommodations’, ‘preparing for the future’, and ‘perceptions of support’. Factors relating to job role, organization, workplace culture, and workplace relationships influenced whether support was received.

Conclusion:

People who develop MCI or dementia whilst working require accommodations and support from their employers to maintain meaningful work and prepare for an uncertain future. Currently there is a lack of specific resources and policies on supporting individuals with YOD in the workplace, with individuals frequently making their own adaptations.