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You Know This Better: Interactional Challenges for Couples Living with Dementia when the Epistemic Status Regarding Shared Past Events Is Uncertain
Linköping University, Faculty of Arts and Sciences. Linköping University, Faculty of Medicine and Health Sciences. Linköping University, Department of Biomedical and Clinical Sciences, Division of Sensory Organs and Communication.ORCID iD: 0000-0001-5085-4264
Linköping University, Department of Culture and Society, Division of Social Work. Linköping University, Faculty of Arts and Sciences.ORCID iD: 0000-0002-6877-1544
Linköping University, Faculty of Arts and Sciences. Linköping University, Department of Culture and Society, Division of Social Work.ORCID iD: 0000-0001-7562-991X
2024 (English)In: Dementia and Language: The Lived Experience in Interaction / [ed] Peter Muntigl, Charlotta Plejert, Danielle Jones, Cambridge University Press, 2024, p. 226-248Chapter in book (Refereed)
Abstract [en]

In this chapter, we investigate how a couple where one of the spouses is diagnosed with dementia handle challenges in narrations of past shared events that arise when the spouse with dementia has limited access to these events. Partners of people diagnosed with dementia recurrently have to take into consideration that their spouse may not remember details in stories they tell, even though the person with dementia is a main participant in the events being retold. The design of such stories is complex as the interactants must keep track of both the content of the story and manage the potential sensitivity of telling a story that should already be known to both spouses. We show how the spouse without dementia (re)organizes the participation framework in resourceful ways and delicately deals with her spouse’s limited memory using a variety of face-saving practices. The analyses highlight how issues related to knowledge and dementia can benefit from using an interactional and distributed perspective. While access and rights to knowledge is usually divided between participants depending on the knowledge domain and the participants’ relation to the topic, in the case of a dementia disease a more flexible approach towards such divisions could be advantageous.

Place, publisher, year, edition, pages
Cambridge University Press, 2024. p. 226-248
Series
Studies in Interactional Sociolinguistics
Keywords [en]
joint storytelling; distributed perspective; participation framework; unclear epistemic status; face-saving practices
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-212905DOI: 10.1017/9781108339377.015ISBN: 9781108424530 (print)ISBN: 9781108339377 (electronic)OAI: oai:DiVA.org:liu-212905DiVA, id: diva2:1950800
Available from: 2025-04-09 Created: 2025-04-09 Last updated: 2026-03-26Bibliographically approved

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Ekström, AnnaNilsson, ElinMajlesi, Ali Reza

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CiteExportLink to record
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Citation style
  • apa
  • ieee
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  • vancouver
  • oxford
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More styles
Language
  • de-DE
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  • Other locale
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Output format
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